Family resilience factors affecting family adaptation of children with cancer: A cross-sectional study

Park, Mina; Choi, Eun Kyoung; Lyu, Chuhl Joo; Han, Jung Woo; Hahn, Seung Min

doi:10.1016/j.ejon.2021.102078

Cited by 34 publications

(47 citation statements)

References 41 publications

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“…These families also exhibited strengths. [11][12][13] Respondents spoke of their resilience and the capacity they demonstrated in managing, coping, and finding hope and meaning. They described the empathy and mutual support between the ill parent and child for this diagnosis and treatment.…”

Section: Discussionmentioning

confidence: 99%

“…These families also exhibited strengths 11–13 . Respondents spoke of their resilience and the capacity they demonstrated in managing, coping, and finding hope and meaning.…”

Section: Discussionmentioning

confidence: 99%

“…Many of these families also exhibit great resilience and coping. 5,[11][12][13] The needs of families with two members concurrently receiving cancer treatment are not adequately known. The only published research is a single case study by Snow and Gilbertson, 14 leaving a void for guiding healthcare providers working with these families.…”

Section: Introductionmentioning

confidence: 99%

“…The impact is not entirely negative. Many of these families also exhibit great resilience and coping 5,11–13 …”

Section: Introductionmentioning

confidence: 99%

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When lightning strikes twice: Perceptions of oncology social workers about working with families with two members in treatment

2022

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Objective: Families with a parent and child concurrently receiving cancer treatment are not common, but their needs are typically more complex than families with only one member in treatment. They have a heightened sense of loss, vulnerability, and mortality. The study purpose was to: (1) describe quality of life, social support, resiliency, and loss for these families; and (2) describe how healthcare teams can support these families. Methods:This was a qualitative study with 20 oncology social workers who had worked with families with a parent and child concurrently receiving treatment for cancer within the past five years. The interview included questions about the emotional, social, financial, and other needs of these families, as well as their social support, quality of life, loss, and resiliency.Results: Three themes emerged from the data: 1. Increased demands on the family with a concurrent cancer treatment, including emotional, financial, and logistical challenges for the ill parent and child and for the healthy parent and siblings; 2.Greater resilience and coping skills were experienced by some families; and 3. Implications for the healthcare team, including emotional distress in treating these families, challenges in treatment adherence, and providing the necessary support to these families. Conclusion:Supporting these families is challenging for social workers and other members of the healthcare team. Understanding the emotional, financial and logistical needs of these families, and coordinating their care across the adult and pediatric teams, will better support the patients, as well as the healthcare providers who work with them.

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Section: Discussionmentioning

confidence: 99%

“…These families also exhibited strengths 11–13 . Respondents spoke of their resilience and the capacity they demonstrated in managing, coping, and finding hope and meaning.…”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…The impact is not entirely negative. Many of these families also exhibit great resilience and coping 5,11–13 …”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

When lightning strikes twice: Perceptions of oncology social workers about working with families with two members in treatment

2022

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“…In that sense, it becomes fundamental to understand which psychosocial factors may play a role in the prevention of these conditions and its burdensome consequences. Resilience, perceived social support ( Zhao et al, 2020 ; Tamura, 2021 ), perceived family support ( Su et al, 2017 ) and family communication skills ( Park et al, 2022 ) have been reported in the literature as important protective factors for symptoms of depression and for the adaptation to this life-threatening event. To optimize the prevention of these neuropsychiatric disorders, clinicians and researchers need to be attentive, screen and monitor affective symptoms in patients with cancer ( Walker et al, 2014 ) and, additionally, understand and bolster the psychosocial resources available both for patients and their relatives ( Seiler and Jenewein, 2019 ).…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural adaptation and psychometric evaluation of the Portuguese version of the family resilience questionnaire – short form (FaRE-SF-P) in women with breast cancer

et al. 2023

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BackgroundA diagnosis of cancer, and the resulting treatment process, can be perceived as a life-threatening event, affecting not only patients but also their social network and, more specifically, their relatives. While the ability to cope and adjust to difficult health situations may be challenging, family resilience may optimize a positive adaptation to adversity and contribute to enhance the patient’s quality of life. The Family Resilience Questionnaire (FaRE) is a self-report measure of family resilience that assesses this construct systematically. We aimed to validate the Portuguese version of a short form of the FaRE (FaRE-SF-P) in a sample of women with breast cancer.Methods147 women recently diagnosed with early breast cancer were recruited at the Champalimaud Clinical Centre in Lisbon. Participants completed psychometric assessment including the Portuguese version of the FaRE-SF-P, composed by two subscales of the original version – the FaRE Perceived Family Coping (FaRE-PFC) and the FaRE Communication and Cohesion (FaRE-CC). Confirmatory factor analysis (CFA) was performed to assess the factor structure of the FaRE-SF-P. Construct validity was assessed using the Hospital Anxiety and Depression Scale (HADS) for divergent validity, and the Modified Medical Outcomes Study Social Support Survey (mMOS-SS) as well as the social functioning subscale from the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30) for convergent validity.ResultsThe CFA results confirmed a correlated two-factor structure model consistent with the Perceived Family Coping and the Communication and Cohesion subscales. Internal consistency reliability indicated good values both for Perceived Family Coping and Communication and Cohesion subscales. The results for construct validity showed acceptable convergent and divergent validity.DiscussionThe FaRE-SF-P showed good psychometric properties demonstrating to be a valid and reliable family resilience measure to use in Portuguese women diagnosed with breast cancer. Since FaRE-SF-P is a short instrument it may be a useful screening tool in an oncological clinical practice routine.

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Sex differences in depression for childhood cancer survivors

Wang

et al. 2022

Psycho-Oncology

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Objective This study examines the differential association between sex and depression, and the possible mediating pathways. Methods We analysed survey data from 296 (age 7–17.1 years) cancer survivors from three centres affiliated with Beijing Children's Hospital. Linear regression analysis was used to assess the association between sex and depression. Quantile regression analysis was used to estimate the regression coefficients (β) and 95% confidence intervals for sex in depression at different quantiles. Mediation analysis with multiple mediators was used to explore the effects of sex on depression. Results Using linear regression, we found that the age ranged from 8.7 to 10.4 years and the regression coefficient of sex on depression was significant (β = −2.75, p = 0.03). Quantile regression results showed a significant negative association between sex and depression in the 0.30–0.75 quantiles. Mediation analysis revealed that boys were 1.545 times more depressed than girls, with family resilience, self‐perceived burden, and behavioural problems explaining approximately 16.79%, 21.57%, and 43.94% of the sex difference, respectively. The combined effect of family functioning, resilience, social support, self‐perceived burden, and behavioural problems might explain the 89.17% sex difference. Conclusion Clinicians should consider sex effects when assessing depression in childhood cancer survivors and target sex‐specific interventions for further treatment.

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Family resilience factors affecting family adaptation of children with cancer: A cross-sectional study

Cited by 34 publications

References 41 publications

When lightning strikes twice: Perceptions of oncology social workers about working with families with two members in treatment

When lightning strikes twice: Perceptions of oncology social workers about working with families with two members in treatment

Cross-cultural adaptation and psychometric evaluation of the Portuguese version of the family resilience questionnaire – short form (FaRE-SF-P) in women with breast cancer

Sex differences in depression for childhood cancer survivors

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