Family Quality of Life Perceived by Mothers of Children with ASD and ADHD

Romaniuk, Alyssa; Ward, Michelle A.; Henrikson, Brenna; Cochrane, Karis; Theule, Jennifer

doi:10.1007/s10578-022-01422-8

Cited by 6 publications

(3 citation statements)

References 50 publications

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“…Parents of children with ASD reported a moderate level of satisfaction with FQoL, as indicated by mean total scores ranging from 3 (fair) to 4 (more satisfied) at both waves 1 and 2, using a 5-point Likert scale. Previous studies reported similar satisfaction scores among children the ASD and those with developmental delay (3.59 at baseline, 3.69 at 1 year after intervention) using the same scale (Chiu et al, 2020;Lei & Kantor, 2022;Romaniuk et al, 2022). This study showed a significant increase in overall FQoL satisfaction and specific domain scores, including family interaction, parenting, and disability-related services, 1 year after diagnosis, and it is an exciting result.…”

Section: The Satisfaction Of Fqol and Its Changessupporting

confidence: 70%

The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

Dai,

Chen,

Deng

et al. 2023

Autism Research

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Improving the quality of family life (FQoL) is one of the ultimate goals for autism spectrum disorder (ASD) intervention, and parenting self‐efficacy and social support are critical for the well‐being of families. However, longitudinal studies focusing on FQoL and its predictors for families of children with ASD are scarce. This study aims to describe the characteristics of FQoL among parents of children newly diagnosed with ASD at two waves (newly diagnosed and diagnosed after one year) and to explore the predictors of FQoL at two waves. It was conducted at a tertiary hospital in Guangzhou, China. A total of 156 parents and their children were included in Wave 1, followed up with 110 in Wave 2 after 1 year. The overall satisfaction of FQoL improved (t = −2.128, p < 0.05), while satisfaction with physical/material well‐being decreased (t = 5.972, p < 0.01). Additionally, the overall importance rating of FQoL improved but did not have statistical significance (p > 0.05). Parents with higher parenting self‐efficacy (β = 0.716, P < 0.01), and more subjective social support (β = 1.127, p < 0.001) reported higher satisfaction with FQoL, and those with better social support utilization (β = 1.066, p < 0.05) reported higher importance for FQoL. FQoL needs to be improved in the early stage of ASD diagnosis, and parental self‐efficacy and social support can serve as the intervention targets.

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Section: The Satisfaction Of Fqol and Its Changessupporting

confidence: 70%

The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

Dai,

Chen,

Deng

et al. 2023

Autism Research

View full text Add to dashboard Cite

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“…This insight also opens up an avenue for further research to explore why fathers feel this way and how their experiences and expectations of FQOL differ from other family members. As there is a justifiable focus on mothers in many studies in the literature (for example, [ 34 , 35 , 36 ]), such understanding can contribute to more effective family support programs, ensuring that all members, including fathers, receive the appropriate resources and assistance to enhance their overall quality of life.…”

Section: Discussionmentioning

confidence: 99%

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Alnahdi

2024

Children

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This study investigates the family well-being among Saudi Arabian families with youth who have an intellectual disability. A sample of 148 family members, including parents and other relatives, was surveyed on emotional well-being, family interactions, and parenting. This study aimed to explore the unique challenges and dynamics within these families, providing insights into how an intellectual disability in a youth affects the family unit. The research highlights a gap in understanding the specific impacts of intellectual disability on family life in the Saudi context. Key findings include variations in family quality of life perceptions among different family members, with fathers showing distinct levels of satisfaction. This study contributes to the development of culturally sensitive support strategies and policies, emphasizing the need for targeted interventions to enhance the well-being of these families in Saudi Arabia.

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“…Studies that investigated an impact of the COVID-19 pandemic on FQOL among parents of children with SEND documented deteriorated emotional well-being and dissatisfaction with provision of disabilityrelated support to their children (Chan and Fung, 2022;Romaniuk et al, 2022). On the other hand, Bolbocean et al (2022) found no statistically significant differences in FQOL in families of children with autism and intellectual disability between the time periods before and during the first year of the pandemic, indicating family resilience due to other factors, such as positive parent-child relationships.…”

Section: Research On Family Quality Of Life During Covid-19 Pandemicmentioning

confidence: 98%

Family quality of life and family-school collaboration during the COVID-19 pandemic: perceptions of Swedish parents of adolescents with special educational needs

Zakirova-Engstrand,

Wilder

2024

Front. Educ.

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IntroductionCompared to other countries, Sweden did not introduce sudden lockdowns and school closures during the COVID-19 pandemic. Instead, the country chose a less restrictive approach to managing the pandemic, such as staying at home with any symptoms of cold or COVID-19, washing hands, and maintaining social distancing. Preschools and compulsory schools remained open. In this context, limited evidence exists about how Swedish families of students with special educational needs and disabilities (SEND) experienced collaboration with school professionals to support their children during the COVID-19, and how the pandemic affected parents’ perceptions of quality of their family life. The present study investigated parental perceptions of satisfaction with family-school collaboration and with family quality of life during the COVID-19 pandemic.MethodsTwenty-six parents of students with SEND who attended general lower secondary schools (grades 7-9) completed a survey using three measures: the demographic questionnaire, the Beach Center Family Quality of Life scale (FQOL), and the Family-School Collaboration scale – the adapted version of the original Beach Center Family-Professional Partnership Scale. Descriptive statistics, Pearson correlations were used to analyse data.ResultsParents felt less satisfied with family-school collaboration related to child-oriented aspects; they were least satisfied with their emotional well-being aspect of family quality of life. Strong, significant and positive associations were found between family-school collaboration and disability-related support aspect of FQOL.DiscussionThe findings point to the importance of family-school partnerships in promoting students’ positive school achievements, and in enhancing FQOL. The findings have practical implications for professional development of pre- and in-service teachers within the existing curricula of teacher preparation programs. Implications for further research are discussed given the study’s small sample size and challenges in recruitment of participants.

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Family Quality of Life Perceived by Mothers of Children with ASD and ADHD

Cited by 6 publications

References 50 publications

The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Family quality of life and family-school collaboration during the COVID-19 pandemic: perceptions of Swedish parents of adolescents with special educational needs

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