Abstract:Structured Abstract
Purpose
The purpose of this study is to use a community-based participatory approach to pilot test a family model of diabetes education conducted in participants’ homes with extended family members. Approximately 50% of Marshallese adults have type 2 diabetes, and prior attempts at diabetes education have not been shown effective due in large part to very high attrition.
Research Design and Methods
The pilot test included six families (27 participants) who took part in a family model of … Show more
“…7–9,15 Prior studies evaluating DSME have failed to show glycemic control among participants. 16,17 Cultural adaption of DSME has been shown to be an effective strategy in other minority populations.…”
Objectives
The Marshallese population suffers from disproportionate rates of type 2 diabetes. This study identifies the underlying beliefs and perceptions that affect diabetes self-management behavior among the US Marshallese population living in Arkansas.
Methods
The study uses qualitative focus groups with a semi-structured interview guide developed using a community-based participatory research (CBPR) approach and the Health Belief Model. Data was collected from a total of N = 41 participants and bilingual community co-investigators provided translation as needed.
Results
The results show high-perceived threat, with most participants describing diabetes as inevitable and a death sentence. Participants are generally unaware of the benefits of diabetes self-management behaviors, and the Marshallese population faces significant policy, environmental, and systems barriers to diabetes self-management. The primary cue to action is a diagnosis of diabetes, and there are varying levels of self-efficacy.
Conclusions
The research grounded in the Health Belief Model provides important contributions that can help advance diabetes self-management efforts within Pacific Islander communities.
“…7–9,15 Prior studies evaluating DSME have failed to show glycemic control among participants. 16,17 Cultural adaption of DSME has been shown to be an effective strategy in other minority populations.…”
Objectives
The Marshallese population suffers from disproportionate rates of type 2 diabetes. This study identifies the underlying beliefs and perceptions that affect diabetes self-management behavior among the US Marshallese population living in Arkansas.
Methods
The study uses qualitative focus groups with a semi-structured interview guide developed using a community-based participatory research (CBPR) approach and the Health Belief Model. Data was collected from a total of N = 41 participants and bilingual community co-investigators provided translation as needed.
Results
The results show high-perceived threat, with most participants describing diabetes as inevitable and a death sentence. Participants are generally unaware of the benefits of diabetes self-management behaviors, and the Marshallese population faces significant policy, environmental, and systems barriers to diabetes self-management. The primary cue to action is a diagnosis of diabetes, and there are varying levels of self-efficacy.
Conclusions
The research grounded in the Health Belief Model provides important contributions that can help advance diabetes self-management efforts within Pacific Islander communities.
“…In 2015, McElfish, et al found that DSME in the home was effective when DSME was provided in a family setting in the home [11], but there is limited literature on this combined approach.…”
PurposeDiabetes self-management education and home visits have been found to improve clinical outcomes in individuals living with diabetes. The purpose of this pilot project was to evaluate the feasibility and effectiveness of conducting self-management education in patients' homes.MethodsBaseline biometric data was collected from a cohort of adult patients with diabetes. Home visits to 19 patients were conducted by doctoral students from Rutgers University School of Nursing. The visits included knowledge assessment, review of foods in the home, diabetes self-management education, and teaching the proper use of monitoring tools such as the glucometer and blood pressure monitor. Biomarkers were obtained post-intervention and were compared to baseline biomarkers. Descriptive lifestyle data was collected and opportunities for customized patient education were provided.ResultsThe biomarkers improved overall during the four months after the education intervention. The mean A1C reduced 12% (p=0.0107), the mean glucose reduced 12% (p=0.0994), the mean BMI reduced 2% (p=0.1490), the systolic pressure reduced 1% (p=0.4196), and the diastolic pressure remained stable. Specific goal setting further increased the improvement in the area the individual planned to address. ConclusionsThis project supports prior studies that found that in-home educational programs can improve the self-management of diabetes and lead to improvement in health indicators. The benefits of the study included personal attention in ensuring the correct use of home health monitoring devices, building self-management confidence, and identifying treatment barriers that may not be easily discerned in a clinic setting.
“…Stakeholders recommended that DSME be implemented within an extended family
model so additional family members could benefit and the patient with diabetes
would be supported by their family members (Hallgren et al, 2015; McElfish et
al., 2016). Stakeholders continue to work side by side with
researchers to culturally adapt DSME for implementation in a family model (McElfish, Bridges, et al, 2015). …”
This article illustrates how a collaborative research process can
successfully engage an underserved minority community to address health
disparities. Pacific Islanders, including the Marshallese, are one of the
fastest growing US populations. They face significant health disparities,
including extremely high rates of type 2 diabetes. This article describes the
engagement process of designing patient-centered outcomes research with
Marshallese stakeholders, highlighting the specific influences of their input on
a randomized control trial to address diabetes. Over 18 months, an
interdisciplinary research team used community-based participatory principles to
conduct patient-engaged outcomes research that involved 31 stakeholders in all
aspects of research design, from defining the research question to making
decisions about budgets and staffing. This required academic researcher
flexibility, but yielded a design linking scientific methodology with community
wisdom.
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