Family members’ experience of participation in the needs of assessment when their older next of kin becomes in need of public home help: A qualitative interview study

Janlöv, Ann-Christin; Hallberg, Ingalill Rahm; Petersson, Kerstin

doi:10.1016/j.ijnurstu.2005.11.010

Cited by 22 publications

(24 citation statements)

References 17 publications

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“…Many next of kin, particularly daughters living outside of their relatives' households and spouses cohabiting with their next of kin, perceived emotions or internalised normative obligations that seem more decisive for their situation than both the absence of legal responsibilities and the legalised rights of their older relatives. This study, as well as a recent study of family members' experience of participation in needs assessment of older people (Janlöv, Rahm Hallberg & Persson, 2006), reveals that some next of kin feel left out without the possibility to influence or participate in the decisions and delivery of formal help. The sense of powerlessness experienced by some next of kin may be due, in part, to the way they have been treated by formal eldercare.…”

Section: Discussionmentioning

confidence: 60%

Motives, experiences and strategies of next of kin helping older relatives in the Swedish welfare context: a qualitative study

Dunér

2009

Int J Soc Welfare

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Dunér A. Motives, experiences and strategies of next of kin helping older relatives in the Swedish welfare context: a qualitative study Int J Soc Welfare 2010: 19: 54–62 © 2008 The Author(s), Journal compilation © 2009 Blackwell Publishing Ltd and the International Journal of Social Welfare. Next of kin provide the major part of the help given to older people in Sweden, a country where the official goals of formal eldercare are universality and extensive coverage. This qualitative interview study investigates the thoughts and actions of next of kin who provide informal help to older relatives who also receive formal help from the municipal eldercare. Informal help‐giving, in the context of Swedish social policy, was connected with a multiplicity of motives, experiences and strategies. The motives for help‐giving were moral considerations, emotional attachment and ‘out of necessity’. The experiences of next of kin support the idea of ambivalence as a significant feature of informal help‐giving. Different strategies were employed, both active and passive in nature, to manage their situation. The study points out the importance of outlining working forms and methods of collaboration for older persons and their informal and formal networks to lessen the ambivalence experienced by help‐giving next of kin.

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Section: Discussionmentioning

confidence: 60%

Motives, experiences and strategies of next of kin helping older relatives in the Swedish welfare context: a qualitative study

Dunér

2009

Int J Soc Welfare

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“…(2001)** To describe and interpret the meaning of the lived experience of home care nursing, as narrated by patients and family members Grafström et al (1993) To elucidate how relationships develop over time in abusive families Janlöv et al (2006)** To illuminate close family members' experiences of having an older next of kin becoming in need of public home help, their participation in the needs assessment procedure, and the decisions about their next of kin's public home help Jansson et al (2001) To describe which caring activities spouses performed when caring for a partner with dementia, and in what way these activities were carried out Lundh et al (2000) To consider the experiences of Swedish spouses who have placed a partner in a care home for older or "well-being," not even those articles with "health" or "well-being" in the title and/or objective/s (see Table 1). …”

Section: Sourcementioning

confidence: 99%

“…Lack of sleep also intensified SwFCs' feelings of anger, and feelings that they were incompetent as a caregivers (Caap-Ahlgren & Dehlin, 2002;Efraimsson et al;Ekwall, Sivberg, & Hallberg, 2005;Persson & Zingmark). As a result, they began to doubt their ability to provide care (Lundh, Sandberg, & Nolan, 2000;Persson & Zingmark;Stoltz et al, 2006), feeling helpless (Munck et al) and frustrated (Janlöv, Hallberg, & Petersson, 2006;Milberg & Strang, 2003;Munck et al).…”

Section: Relief From Carrying the Main Responsibilitymentioning

confidence: 99%

Family Caregivers’ Health in Connection With Providing Care

Erlingsson

Magnusson²,

Hanson³

2011

Qual Health Res

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Our aim was to investigate connections between Swedish family caregivers' health and providing care for an ill relative by conducting a systematic search and synthesis of previous research. We analyzed 31 articles using first qualitative content analysis then hermeneutic analysis. Analysis resulted in three derived themes-sliding sideways into caregiving, caregiving in reciprocity, and caregiving in disintegration-and a main interpretation and conceptual model of Swedish family caregivers' health-caregiving in a sphere of beliefs. Results indicated that Swedish family caregivers' beliefs, experiences of reciprocity, or nonsupport, together with quality of interpersonal relationships and feelings of responsibility and guilt, have a profound impact on their health. These results point to the value and importance of nurses gaining an understanding of family caregivers' beliefs and experiences of reciprocity or nonsupport to effectively promote family caregivers' health.

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“…When next of kin are not the main caregivers or not caregivers at all, they may still be affected by and involved in their relative's life situation. For example Janlöv et al (2006), explored the experience of family members' participating in a needs assessment when an older relative (mean age 83 years) reached the stage of needing public home help. The study disclosed the family's experience of being in transition, moving into a new phase, accompanied by an awareness of the countdown to the death of the relative.…”

Section: Introductionmentioning

confidence: 99%

The experience of being next of kin to an older person in the last phase of life

Andersson¹,

Ekwall²,

Hallberg³

et al. 2010

Pall Supp Care

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Being next of kin to an old person at the end of life means being a devoted companion during the transition toward the inevitable end, including the feeling of bearing the major responsibility and the need to be acknowledged by professionals. This study points to the importance of having access to professional care when it is needed, to complement and support the next of kin when his or her own resources and strength falter. This also includes support to enable the next of kin to remain involved in the care of his or her loved ones, thereby fulfilling their own wishes.

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Family members’ experience of participation in the needs of assessment when their older next of kin becomes in need of public home help: A qualitative interview study

Cited by 22 publications

References 17 publications

Motives, experiences and strategies of next of kin helping older relatives in the Swedish welfare context: a qualitative study

Motives, experiences and strategies of next of kin helping older relatives in the Swedish welfare context: a qualitative study

Family Caregivers’ Health in Connection With Providing Care

The experience of being next of kin to an older person in the last phase of life

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