Family Involvement in Residential Long-Term Care

Jackson, Melanie; Gaugler, Joseph E.

doi:10.1891/9780826194572.0004

Cited by 2 publications

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“…Unlike the nursing home industry, however, in the United States, assisted living is not federally regulated. Family contributions are important in both settings ( Grabowski & Mitchell, 2009 ), possibly more so in assisted living ( Jackson & Gaugler, 2016 ).…”

Section: The Origins Of Family As “Just Visitors”mentioning

confidence: 99%

“…Family visits contribute to residents’ social and emotional well-being, which is justification enough, but visits rarely are exclusively social in nature ( Jackson & Gaugler, 2016 ). For example, staff rely on family to bring certain supplies, including medications, body wash, and incontinence pads or residents favorite snacks, all of which affect workers’ ability to execute care properly and cater to residents’ preferences ( Kemp et al, 2009, 2010 , 2019 ).…”

Section: The Origins Of Family As “Just Visitors”mentioning

confidence: 99%

“…Finally, although less frequent, families provide hands-on care to residents ( Jackson & Gaugler, 2016 ). This care sometimes involves residents with dementia or those with limited physical function ( Kemp et al, 2018 ).…”

Section: The Origins Of Family As “Just Visitors”mentioning

confidence: 99%

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#MoreThanAVisitor: Families as “Essential” Care Partners During COVID-19

Kemp

2020

The Gerontologist

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The public health response to the current Coronavirus pandemic in long-term care communities, including assisted living, encompasses prohibiting visitors. This ban, which includes family members, has been criticized for being unfair, unhealthy, and unsafe. Against this backdrop, I examine the roles family play in residents’ daily lives and care routines. I argue that classifying family as “visitors” rather than essential care partners overlooks their critical contributions and stems from taken-for-granted assumption about gender, families, and care work, and I demonstrate why families are more than visitors. Policies that ban family visits also reflect a narrow understanding of health that focuses on mitigating infection risk, but neglects overall health and well-being. This policy further stems from a limited comprehension of care relations. Research shows that banning family visits has negative consequences for residents, but also families themselves, and direct care workers. I argue that identifying ways to better understand and support family involvement is essential and demonstrate the utility of the Convoys of Care model for guiding the reconceptualization of family in long-term care research, policy, and practice during and beyond the pandemic.

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Section: The Origins Of Family As “Just Visitors”mentioning

confidence: 99%

Section: The Origins Of Family As “Just Visitors”mentioning

confidence: 99%

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#MoreThanAVisitor: Families as “Essential” Care Partners During COVID-19

Kemp

2020

The Gerontologist

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trabajo político de las emociones

Márquez Porras,

Bofill-Poch

2024

Civitas

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El artículo analiza la forma como la pandemia impactó el sistema de cuidados en España. Toma como elemento central de análisis la crisis del modelo residencial que la pandemia evidenció y lo hace desde la perspectiva de los familiares. La pandemia tuvo un impacto importante en las residencias, con uno de los índices de mortalidad más elevados de la Unión Europea. Ello provocó sufrimiento, no solo en los residentes, sino también en los familiares, quienes reaccionaron movilizándose y exigiendo responsabilidades por lo acontecido. En línea con la antropología de las emociones, se trata de analizar las gramáticas emocionales que subyacen a la protesta, para mostrar cómo el sufrimiento de los familiares se torna inteligible en el marco de un modelo de atención residencial en crisis, y como adquiere valor político más allá del ámbito privado e individual en el que suele pensarse el cuidado.

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Family Involvement in Residential Long-Term Care

Cited by 2 publications

References 0 publications

#MoreThanAVisitor: Families as “Essential” Care Partners During COVID-19

#MoreThanAVisitor: Families as “Essential” Care Partners During COVID-19

trabajo político de las emociones

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