Family Impact of Assistive Technology Scale: Development of a Measurement Scale for Parents of Children with Complex Communication Needs

Delarosa, Elizabeth; Horner, Stephanie; Eisenberg, Casey; Ball, Laura J.; Renzoni, Anne Marie; Ryan, Stephen E.

doi:10.3109/07434618.2012.704525

Cited by 29 publications

(19 citation statements)

References 17 publications

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“…The test-retest reliability levels reported here are similar to those reported for original FIATS [49] and the FIATS-AAC-a companion parent-report measure of child and family functioning for face-to-face rather than written communication interventions [53]. This is the third study to estimate acceptable test-retest reliabilities for the four subscales shared with the original FIATS and FIATS-AAC measures [49,53].…”

Section: Phase 2: Test-retest Reliability and Convergent Construct Vasupporting

confidence: 74%

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Measurement of Assistive Technology Outcomes Associated with Computer-Based Writing Interventions for Children and Youth with Disabilities

Ryan

Sophianopoulos

2017

Technologies

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Abstract:Young people who have chronic disabilities use computer technologies and receive rehabilitation services to overcome functional limitations associated with writing activities. However, the functional impact of these specialized assistive technologies on the everyday lives of children is not clearly understood; in part due to the lack of targeted outcome measures. This article describes the development and evaluation of the Family Impact of Assistive Technology Scale for Writing Interventions (FIATS-WI). The FIATS-WI is a multi-dimensional, parent-report questionnaire designed to measure child functioning and outcomes associated with computer-based writing interventions for children and youth aged 5-18 years. Participants included parents of children with writing-related disabilities who completed the questionnaire at home during one of two study phases. In the first phase, 121 eligible parents, out of 364 invited, completed a single administration of the questionnaire. In the second phase, 28 out of 33 eligible parents completed the FIATS-WI twice to assess its stability. Item and subscale correlations informed an item reduction plan, and Cronbach's alpha and intraclass correlation coefficients provided acceptable estimates for internal consistency and test-retest reliability, respectively. Correlations between FIATS-WI scores and scores from a standardized home participation measure tested its convergent validity. The study provides emerging evidence for the FIATS-WI as a sound measure of computer-based writing technology outcomes for children and youth with disabilities.

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Section: Phase 2: Test-retest Reliability and Convergent Construct Vasupporting

confidence: 74%

“…This is the third study to estimate acceptable test-retest reliabilities for the four subscales shared with the original FIATS and FIATS-AAC measures [49,53].…”

Section: Phase 2: Test-retest Reliability and Convergent Construct Vamentioning

confidence: 99%

Measurement of Assistive Technology Outcomes Associated with Computer-Based Writing Interventions for Children and Youth with Disabilities

Ryan

Sophianopoulos

2017

Technologies

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“…Other investigators have stressed the important role families play in fostering children ' s AAC use, emphasizing the need to involve families in all stages of AAC program design, implementation, and evaluation (e.g., Delarosa et al 2012). They advocate for family-centered decision making and respect for parents ' values, expectations, beliefs, and priorities (Calculator & Black, 2010;Goldbart & Marshall, 2004;Granlund, Bj ö rck-Å kesson, Wilder, & Ylv é n, 2008;Johnson et al, 2006;Parette & Angelo, 1996;Starble, Hutchins, Favro, Prelock, & Bitner, 2005).…”

Section: Introductionmentioning

confidence: 97%

Parents’ Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome

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2013

Augmentative and Alternative Communication

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The primary purpose of this investigation was to enhance our understanding of AAC use by individuals with Angelman syndrome (AS) in relation to two broad genotypes: Deletion Positive (DP) and Non Deletion (ND). Previous investigators have suggested individuals without deletions typically exhibit stronger cognitive and communicative abilities than their DP counterparts. This investigation focused on several aspects of AAC use: communication systems used; exposure to, success with, and acceptance of electronic AAC devices; and exposure to practices associated with AAC acceptance. Results indicated that both groups rely heavily on unaided, nonsymbolic methods of communication, with the ND group more likely to use conventional, symbolic systems. While the two groups were similar with respect to exposure to an array of electronic devices, the DP group appeared more likely to have gone no further than low-tech devices such as the BIGmack™. There was strong evidence of both groups' capabilities for success with high-tech devices and overall acceptance of devices in terms of duration of use. This proved especially noteworthy in light of both groups' limited exposure to practices associated with AAC acceptance. Clinical implications of these findings are discussed along with future avenues of research.

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“…There is recognition of different family impacts related to various disorders, leading to scales for specific populations, such as individuals with chronic pain [19], using assistive communication technology [20] and with emotional/behavioural problems [21]. …”

Section: Discussionmentioning

confidence: 99%

“…Two well-validated and psychometrically sound scales, the Impact on Family Scale [10] and the Family Impact Module of the PedsQL [10,11], measure family impact for children with chronic illness. There is recognition of different family impacts related to various disorders, leading to scales for specific populations, such as individuals with chronic pain [19], using assistive communication technology [20] and with emotional/behavioural problems [21].…”

Section: Discussionmentioning

confidence: 99%

Validation of the Diabetes Family Impact Scale: a new measure of diabetes‐specific family impact

et al. 2015

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Aims To develop and validate the Diabetes Family Impact Scale, a scale to measure the impact of diabetes on families. Methods The Diabetes Family Impact Scale was developed by an iterative process, with input from multidisciplinary diabetes providers and parents of children with Type 1 diabetes. The psychometric properties of the Diabetes Family Impact Scale were assessed in parents of children with Type 1 diabetes. This assessment included internal consistency, convergent validity and exploratory factor analysis. Results Parents (n=148) of children (mean ±SD age 12.9±3.3 years) with Type 1 diabetes (mean ±SD duration 6.2±3.6 years) completed the 15-item Diabetes Family Impact Scale. After eliminating one item, the 14-item measure demonstrated good internal consistency (Cronbach’s α = 0.84). Correlations between the Diabetes Family Impact Scale and measures of parent diabetes burden (r=0.48, P<0.0001), stressful life events (r=0.28, P=0.0007), and child's quality of life (r=−0.52 and −0.54, P<0.0001 for generic and diabetes-specific quality of life, respectively) supported the convergent validity of the instrument. Factor analysis identified four factors corresponding to the four survey domains (school, work, finances and family well-being). Conclusions The Diabetes Family Impact Scale measures diabetes-specific family impacts with good internal consistency and convergent validity and may be a useful tool in clinical and research settings.

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Family Impact of Assistive Technology Scale: Development of a Measurement Scale for Parents of Children with Complex Communication Needs

Cited by 29 publications

References 17 publications

Measurement of Assistive Technology Outcomes Associated with Computer-Based Writing Interventions for Children and Youth with Disabilities

Measurement of Assistive Technology Outcomes Associated with Computer-Based Writing Interventions for Children and Youth with Disabilities

Parents’ Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome

Validation of the Diabetes Family Impact Scale: a new measure of diabetes‐specific family impact

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