Family grief therapy: a preliminary account of a new model to promote healthy family functioning during palliative care and bereavement

Kissane, David W.; Bloch, Sidney; McKenzie, Maria; McDowall, Anna C.; Nitzan, Rochelle

doi:10.1002/(sici)1099-1611(199801/02)7:1<14::aid-pon313>3.0.co;2-d

Cited by 81 publications

(45 citation statements)

References 17 publications

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“…Nuclear family functioning: The Family Environment Scale (FES; Kissane, Bloch, McKenzie, McDowall, & Nitzan, 1998;Moos, 1990;Moos & Moos, 1981) is a 12-item true/false response scale measuring three subscales: cohesiveness (e.g., "Family members really help and support one another"), expressiveness (e.g., "Family members often keep their feelings to themselves"), and conflict (e.g., "We fight a lot in our family"). Higher scores reflect greater cohesiveness, expressiveness, and less conflict (conflict is reverse scored; highest possible score for each subscale = 4 and the highest overall score = 12).…”

Section: Questionnairementioning

confidence: 99%

Talking across generations: Family communication aboutBRCA1andBRCA2genetic cancer risk

Young

Butow

Rhodes

et al. 2019

Journal of Genetic Counseling

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While family communication about a BRCA1 or BRCA2 (BRCA1/2) pathogenic variant can be a catalyst for the uptake of risk‐reducing measures in young adults, disseminating information within families and across generations is complex. This study aimed to explore how young adults and their families communicate about a BRCA1/2 pathogenic variant, from a family systems perspective. In‐depth family interviews and questionnaires (N = 67 individuals; 21 families) were completed at four metropolitan and regional genetic clinics in Australia. Data involved thematic analysis and interpretation based on family systems theory, including the use of standardized measures. Six key themes were identified and explored: (1) Responsibility to protect, (2) “It's a woman's problem,” (3) Family culture influences communication, (4) Adversarial growth and connection, (5) Key events can be relational turning points, and (6) Health professionals can help. Family identities were solidified through the incorporation of a pathogenic variant in family scripts, while members of the family who held differing views to their families expressed less agreeableness and openness to disseminate information. The collective family's experience and perspective toward a pathogenic variant can influence a young adult's decision‐making about genetic testing, risk‐management, and family planning. The utilization of family therapy skills in routine practice would be helpful in facilitating communication and the inclusion of standardized measures is beneficial to identify individuals needing ongoing psychological support. Understanding relationship difficulties that arise from family members holding divergent views can offer insight into future research inquiry and areas of further training and clinical support.

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Section: Questionnairementioning

confidence: 99%

Talking across generations: Family communication aboutBRCA1andBRCA2genetic cancer risk

Young

Butow

Rhodes

et al. 2019

Journal of Genetic Counseling

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“…One descriptive study of family therapy during palliation focused on many existential themes that are prominent at that time in the illness trajectory (Kissane et al, 1998). These themes included facing death, saying goodbye, providing care, dealing with emotional pain and suffering, showing intimacy, cultural and religious practices, needs of younger children, historical issues unique to each family, striving toward a good death versus disappointment, and, finally, dealing with grief.…”

Section: Family Counselingmentioning

confidence: 99%

“…The case may be that some of the themes discussed by Kissane et al (1998) in their study involving terminally ill patients and their partners (e.g., facing fears of death, fostering intimacy, dealing with emotional pain) should be included in the focus of interventions for partners of cancer patients regardless of the stage of the patient's illness because partners have identified fears of dying and other existential issues as significant factors at different phases of the illness (Blanchard, Albrecht, & Ruckdeschel, 1997). In addi-tion, the partner's gender and the stage of illness also must be considered because the needs of partners often differ over time.…”

Section: Recommendationsmentioning

confidence: 99%

Partners of Cancer Patients

Carlson

Bultz

Speca

et al. 2000

Journal of Psychosocial Oncology

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Although the adjustment of cancer patients' partners has been studied more extensively in recent years than previously, three areas of research have not been integrated into the literature: (1) the impact of cancer on the partner across different stages of the illness trajectory, (2) gender differences in partner's reactions and adjustment, and (3) psychosocial interventions for partners. In Part I of their review, the authors discussed the partners' experiences, how the illness affected partners, and how partners adjusted to and coped with the patient's illness. Part II reviews the interventions that have been developed to help patients' partners and concludes with suggestions for providing interventions tailored specifically for different populations of partners.

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“…Alguns estudos (Edwards & Clarke, 2005;Kieffer-Kristensen & Teasdale, 2011;Kissane et al, 2003) têm demonstrado que famílias disfuncionais apresentam altas taxas de morbidade psicossocial, incluindo depressão e ansiedade. Outros trabalhos relatam que altos níveis de morbidade psicossocial estão associados positivamente com um pior funcionamento familiar (Delalibera, Presa, Coelho, Barbosa, & Franco, 2015;Kissane et al, 2006), o que sugere que o bom funcionamento familiar é um dos principais componentes do bem-estar psicológico dos seus membros (Kissane, Bloch, McKenzie, Mcdowall, & Nitzan, 1998).…”

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“…As características pessoais de cada familiar e a sua capacidade para lidar com situações inesperadas, geradoras de distress e/ ou ameaçadoras do seu bem-estar podem afetar a qualidade das relações familiares (Moos & Moos, 1981). Moos e Moos (1981) Kissane e outros investigadores Kissane, Bloch, McKenzie, Mcdowall, & Nitzan, 1998;Kissane & Bloch, 2002) sugerem que o FRI pode ser um bom instrumento para identificar famílias disfuncionais e pessoas em risco de desenvolver problemas de adaptação. Esses autores desenvolveram uma versão reduzida do FRI e propõem assim a sua utilização como um instrumento de rastreio de comorbilidade individual e do funcionamento familiar.…”

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Contributos para a validação portuguesa do Family Relationship Index (FRI) reduzido

Delalibera¹,

Coelho²,

Barbosa³

et al. 2018

Psychol. Community Health

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ResumoObjetivo: Considerando a importância das relações e do funcionamento familiar para o bem-estar psicológico dos seus membros e o desenvolvimento de psicopatologias, este estudo teve como principal objetivo contribuir para a validação portuguesa da versão reduzida do Family Relationship Index (FRI). Método: A amostra foi constituída por 193 participantes portugueses que responderam ao questionário online. Dos participantes, 65.3% eram do sexo feminino, com idade média de 44.65 anos e 63.2% eram casados. Resultados: Através da análise fatorial confirmatória da escala, foram encontrados dois fatores (conflito e coesão/expressividade), ao invés de três como na escala original e o modelo fatorial final apresentou bons índices de qualidade de ajustamento. A consistência interna para o fator coesão/expressividade foi de 0.902 e 0.741 para o fator conflito. À exceção do item seis, os demais itens do FRI apresentaram pesos fatoriais superiores a 0.5 e todos os itens eram estatisticamente significativos. Relativamente às tipologias familiares, os resultados revelam que a maioria das famílias pertencia à tipologia solucionadora de conflitos (34.7%). Conclusão: Daqui se conclui que o instrumento apresenta boa consistência interna e fiabilidade de constructo, assumindo-se como um instrumento útil para a identificação de famílias disfuncionais. Palavras-Chave: funcionamento familiar, FRI, validação, escalasAbstract Aim: Considering the importance of relationships and family functioning in the psychological well-being of its members and in the development of psychopathology, this study aimed to contribute to the Portuguese validation of the reduced version of the Family Relationship Index (FRI). Methods: The sample was composed of 193 Portuguese participants who responded to an online questionnaire. Participants were mostly female (65.3%), with an average age of 44.65 years, and 63.2% were married. Results: Confirmatory factor analysis of the scale resulted in two factors (conflict and cohesion/expressiveness), instead of three, as in the original scale, and the final factor model showed good levels of adjustment quality. The internal consistency for the cohesion/ expressiveness factor was 0.902 and 0.741 for the conflict factor. With the exception of item six, the other items of FRI presented factor weights greater than 0.5, and all items were statistically significant. Concerning family types, results reveal that most families belonged to conflict resolving type (34.7%). Conclusion: In conclusion, this instrument has good internal consistency and construct reliability, so it can be useful for the identification of dysfunctional families.

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Family grief therapy: a preliminary account of a new model to promote healthy family functioning during palliative care and bereavement

Cited by 81 publications

References 17 publications

Talking across generations: Family communication aboutBRCA1andBRCA2genetic cancer risk

Talking across generations: Family communication aboutBRCA1andBRCA2genetic cancer risk

Partners of Cancer Patients

Contributos para a validação portuguesa do Family Relationship Index (FRI) reduzido

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