Family functioning in the caregivers of patients with dementia

Heru, Alison M.; Ryan, Christine E.; Iqbal, Asma

doi:10.1002/gps.1119

Cited by 71 publications

(60 citation statements)

References 29 publications

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“…Our findings are consistent with those of Heru et al [8] as well as other studies showing a relationship between family characteristics and dementia caregiver burden. We add to results of previous studies by controlling for moderating variables (e.g., depression, anxiety, patient behavior problems), including measures of clinically-rated dementia severity, and including a more homogenous group of caregivers (i.e., those residing with the patient).…”

Section: Discussionsupporting

confidence: 94%

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Unique Contribution of Family Functioning in Caregivers of Patients with Mild to Moderate Dementia

Tremont

Davis

Bishop³

2006

Dement Geriatr Cogn Disord

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The relationship between family functioning and dementia caregiving is complex. The present study examined the interrelationships between family functioning, caregiver burden, and patient characteristics. Participants were 72 live-in, family caregivers of patients with mild (n = 47) or moderate dementia (n = 25). Caregivers completed measures of burden, family functioning, depression, and anxiety. Ratings of patients’ memory/behavior problems and patients’ activities of daily living were also collected. Results indicated that higher levels of caregiver burden were significantly associated with increased caregiver depression and anxiety, greater frequency of memory and behavior problems in the dementia patient, worse activities of daily living, and poorer family functioning. Even after controlling for caregiver depression, caregiver anxiety, and frequency of memory/behavior problems in dementia patients, poorer family functioning continued to be associated with higher levels of caregiver burden. Caregivers with high levels of burden reported greater family dysfunction in communication and roles, regardless of their relationship to the patient (i.e., spouse or child). These findings suggest that including a family systems component in caregiver interventions may be beneficial in reducing burden in these very distressed individuals.

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Section: Discussionsupporting

confidence: 94%

“…Recently, Heru, Ryan, and Iqbal [8] found that perceived family dysfunction was associated with increases in self-reported caregiver strain and burden in 38 dementia caregivers. This was the first study to use the Family Assessment Device, a psychometrically sound measure of family functioning based on the McMaster model of family functioning [9].…”

mentioning

confidence: 99%

Unique Contribution of Family Functioning in Caregivers of Patients with Mild to Moderate Dementia

Tremont

Davis

Bishop³

2006

Dement Geriatr Cogn Disord

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“…The literature on caregiver burden in Alzheimer's disease reports stable levels of psychological well-being and quality of life over time [13][14][15][16] . However, given the more 'frontal' clinical features of FTD and our clinical impressions, we did not assume that this would be similar in FTD.…”

Section: Discussionmentioning

confidence: 99%

“…In longitudinal and prospective studies on caregiver burden in other types of dementia (mostly Alzheimer's disease), it has been reported that caregivers generally show stable levels of depression and burden over time [13][14][15][16] . Also, despite increasing severity of dementia and other functional impairment of the patient, a reduction of depression is sometimes seen [14] .…”

Section: Introductionmentioning

confidence: 99%

Frontotemporal Dementia: Change of Familial Caregiver Burden and Partner Relation in a Dutch Cohort of 63 Patients

Riedijk¹,

Duivenvoorden²,

Rosso

et al. 2008

Dement Geriatr Cogn Disord

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Background/Aims: The current study examined the change of caregiver burden and the development of the quality of the partner relation in frontotemporal dementia (FTD). Methods: During a 2-year period, deterioration, behavioural problems, caregiver burden, general psychopathology, quality of life, social support, coping strategies and relationship quality were inspected in 63 FTD caregiver-care recipient dyads. Results: After 2 years patients reached maximum dementia severity with stable Neuropsychiatric Inventory levels. Contrary to expectations, caregiver burden decreased and psychological well-being remained stable. Coping style and social support changed unfavourably. Relationship closeness and getting along were preserved, whereas communication and sharing viewpoint on life were dramatically reduced. Conclusions: FTD caregivers need support in coping with the increasingly hopeless situation of their patients. Future research methods into caregiver burden should address response shift as a means for psychological adjustment.

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“…Adult children, especially daughters and daughters-in-law, are the main caregivers for elderly with dementia in about 30% of families (and up to 70% in Asian cultures) [6,11,12]. Adult child caregivers may experience a higher burden and worse mental health due to juggling work, child rearing, and caregiving responsibilities, with the inverse correlation between burden and mental health being strongest in daughters [13].…”

Section: Caregiving In the Context Of Dementiamentioning

confidence: 99%

Caregiver Burden in Fragile X Families

Iosif¹,

Sciolla²,

Brahmbhatt³

et al. 2013

CPSR

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Complex caregiving issues occur in multigenerational families carrying the fragile X mutation and premutation. The same family members may care for children or siblings with fragile X syndrome (FXS) and for elderly parents with fragile X-associated tremor/ataxia syndrome (FXTAS). Family caregivers experience anxiety, depression, neglect of personal health care needs, employment difficulties, and loss of social support, leading to isolation and further psychiatric consequences. There is growing awareness of caregiver burden with regard to parents of children with FXS, but much less is known about the needs of informal caregivers of patients with FXTAS. In this paper, we review the available literature to date and provide suggestions for further exploration of caregivers' needs. Evidence-based strategies to address these needs are included. Many more research studies exploring caregiver burden in multigenerational fragile X families are needed, as well as studies aimed at investigating interventions and their impact on reduction.

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Family functioning in the caregivers of patients with dementia

Abstract: Assessing a family's functioning may be an important factor in the care of the dementia patient and his/her family.

Cited by 71 publications

References 29 publications

Unique Contribution of Family Functioning in Caregivers of Patients with Mild to Moderate Dementia

Unique Contribution of Family Functioning in Caregivers of Patients with Mild to Moderate Dementia

Frontotemporal Dementia: Change of Familial Caregiver Burden and Partner Relation in a Dutch Cohort of 63 Patients

Caregiver Burden in Fragile X Families

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