Family experiences of caregiving to patients with Alzheimer

Al-Zyoud, Eman; Maharmeh, Mahmoud; Ahmad, Muayyad

doi:10.1108/wwop-02-2020-0006

Cited by 2 publications

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“…The perceived obligation to care has been documented across many cultures. See, for example,Lindeza et al (2020), Al-Zyoud, Maharmeh, andAhmad (2021),Narayan et al (2015), andCheung et al (2020) for representative cases.10 Archer and Ridge (2015) also address the phenomenon of heroic testimony, arguing that people who give it lack moral wisdom about their actions but also possess more moral depth. This perspective is more amenable to my view, since it casts caregivers in a better light.…”

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confidence: 99%

Supererogatory Duties and Caregiver Heroic Testimony

Weigel

2023

FPQ

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The sacrifices of nurses in hard-hit cities during the early stages of the COVID-19 pandemic and of family caregivers for people with late-stage Alzheimer’s disease present two puzzles. First, traditional accounts of supererogation cannot allow for the possibility of making enormous sacrifices that make one’s actions supererogatory simply to do what morality requires. These caregivers, however, are doing their moral duty, yet their actions also seem to be paradigmatic cases of supererogation. I argue that Dale Dorsey’s new account of supererogation can solve this puzzle. Second, these caregivers often deny that they are heroic, but standard explanations of these assertions either diminish their sacrifice, say they are confused, or attribute to them a vice. If we want to understand them without diminishing them, we should instead see their denials as a response to what Beth DeVolder calls compulsory heroism. Compulsory heroism occurs when someone is foisted into the role of hero for doing their moral duty as a distraction from the social realities that make doing their duty involve inordinate sacrifice.

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Supererogatory Duties and Caregiver Heroic Testimony

Weigel

2023

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“…The caregivers experience psychological challenges associated with their caregiving role. They report high levels of anxiety and depressive symptoms (Ahmad et al, 2021). Also, adequate support is largely unavailable to them and often, support interventions are only made when problems accumulate (Gratton & Yamin, 2019).…”

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confidence: 99%

The experiences of caregiving and the coping strategies of informal caregivers of people with major neurocognitive disorders.

Manyathi

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Caregivers of people with major neurocognitive disorders (MNCD) experience considerable burden, which might lead to psychological difficulties. As a result of their caregiving experiences, it is important for caregivers to develop positive coping skills. This study aimed to explore the experiences and coping strategies of informal caregivers of people living with major neurocognitive disorders. Further, this study was conducted to establish if there are any support programmes available for informal caregivers of individuals with severe neurocognitive impairments. A mixed methods research approach was adopted. Nine informal caregivers were sampled through a non-probability purposive technique. Data were collected through semi-structured interviews and psychometric scales on caregiver depression, burden, and coping. Further, data were analysed using reflexive thematic analysis. Psychometric scales were scored and interpreted based on their interpretive manual. The findings suggest that informal caregivers of persons with major neurocognitive disorders endorsed more negative than positive experiences. However, they seemed to cope with the caregiving situation. More active coping strategies, such as acceptance and building resilience, mediate the negative experiences. Informal caregivers reported the availability of respite and psychosocial interventions such as those offered by the Bessie Makatini Foundation. In conclusion, it was recommended that while addressing caregiver needs and creating support interventions, support programs like those conducted by the Bessie Makatini Foundation should consider the various family dynamics.

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Family experiences of caregiving to patients with Alzheimer

Cited by 2 publications

References 16 publications

Supererogatory Duties and Caregiver Heroic Testimony

Supererogatory Duties and Caregiver Heroic Testimony

The experiences of caregiving and the coping strategies of informal caregivers of people with major neurocognitive disorders.

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