Family-centred services in the Netherlands: validating a self-report measure for paediatric service providers

Siebes, R. C.; Wijnroks, Lex; Schie, Petra E. M. van; Nijhuis, B. J. G.; Vermeer, A.; Gorter, Jan Willem

doi:10.1191/0269215506cr979oa

Cited by 34 publications

(39 citation statements)

References 27 publications

(13 reference statements)

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“…These ICC 2,1 values are similar to those previously described in a rehabilitation setting for the Dutch version of the MPOC-SP. 20 These results indicated that the MPOC-SP scale scores, except that for the 'providing general information' scale, are consistent over time, 19 and thus have good test-retest reliability. The responses to the items in the 'providing general information' scale may be influenced by recent events.…”

Section: Discussionmentioning

confidence: 80%

Measurement of family-centered care in the neonatal intensive care unit and professional background

et al. 2014

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Section: Discussionmentioning

confidence: 80%

Measurement of family-centered care in the neonatal intensive care unit and professional background

et al. 2014

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“…The MPOC-SP is an equivalent questionnaire to measure the perception of service providers of the family-centeredness of care. The MPOC and MPOC-SP have sufficient reliability and validity [51,52]. It takes about 10-15 minutes to complete the MPOC-questionnaires.…”

Section: Methodsmentioning

confidence: 99%

LEARN 2 MOVE 0-2 years: effects of a new intervention program in infants at very high risk for cerebral palsy; a randomized controlled trial

et al. 2010

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BackgroundIt is widely accepted that infants at risk for cerebral palsy need paediatric physiotherapy. However, there is little evidence for the efficacy of physiotherapeutic intervention. Recently, a new intervention program, COPCA (Coping with and Caring for infants with special needs - a family centered program), was developed. COPCA has educational and motor goals. A previous study indicated that the COPCA-approach is associated with better developmental outcomes for infants at high risk for developmental disorders. LEARN 2 MOVE 0-2 years evaluates the efficacy and the working mechanisms of the COPCA program in infants at very high risk for cerebral palsy in comparison to the efficacy of traditional infant physiotherapy in a randomized controlled trial. The objective is to evaluate the effects of both intervention programs on motor, cognitive and daily functioning of the child and the family and to get insight in the working elements of early intervention methods.Methods/designInfants are included at the corrected age of 1 to 9 months and randomized into a group receiving COPCA and a group receiving traditional infant physiotherapy. Both interventions are given once a week during one year. Measurements are performed at baseline, during and after the intervention period and at the corrected age of 21 months. Primary outcome of the study is the Infant Motor Profile, a qualitative evaluation instrument of motor behaviour in infancy. Secondary measurements focus on activities and participation, body functions and structures, family functioning, quality of life and working mechanisms. To cope with the heterogeneity in physiotherapy, physiotherapeutic sessions are video-recorded three times (baseline, after 6 months and at the end of the intervention period). Physiotherapeutic actions will be quantified and related to outcome.DiscussionLEARN 2 MOVE 0-2 years evaluates and explores the effects of COPCA and TIP. Whatever the outcome of the project, it will improve our understanding of early intervention in children with cerebral palsy. Such knowledge is a prerequisite for tailor-made guidance of children with CP and their families.Trial registrationThe trial is registered under NTR1428.

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“…Therefore two future adjustments of the questionnaire are suggested here, which were addressed in related studies [18,22,40]. Firstly, a GYV-20 scale score does not correct for the value adolescents and young adults attribute to certain acts.…”

Section: Discussionmentioning

confidence: 99%

“…In The Netherlands, the MPOC [22] and the MPOC-SP [18] were made available recently, but a valid measure to ask for the adolescent's or young adult's view on the process of care was not available yet. Since one of the official aims for future paediatric rehabilitation in The Netherlands is to pay more attention to youth [23], such a measure has a high clinical relevance.…”

Section: Introductionmentioning

confidence: 99%

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Validation of the Dutch Giving Youth a Voice Questionnaire (GYV-20): A measure of the client-centredness of rehabilitation services from an adolescent perspective

Siebes

Wijnroks

Schie

et al. 2007

Disability and Rehabilitation

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Family-centred services in the Netherlands: validating a self-report measure for paediatric service providers

Abstract: The Dutch MPOC-SP is a reliable and valid instrument to measure the family-centredness of service delivery.

Cited by 34 publications

References 27 publications

Measurement of family-centered care in the neonatal intensive care unit and professional background

Measurement of family-centered care in the neonatal intensive care unit and professional background

LEARN 2 MOVE 0-2 years: effects of a new intervention program in infants at very high risk for cerebral palsy; a randomized controlled trial

Validation of the Dutch Giving Youth a Voice Questionnaire (GYV-20): A measure of the client-centredness of rehabilitation services from an adolescent perspective

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