Family-centred practices in the provision of interventions and services in primary health care

Abstract

The aims of this study were to explore how parents of preschoolers with cerebral palsy (CP) experienced the level of family-centred services using the Measure of Processes of Care (MPOC-20) within primary health care in Norway and to examine the relationships between these experiences and the provided everyday skills interventions and services. A survey was sent to 360 parents of preschool children with CP. The response rate was 34%. Of the MPOC scales respectful and supportive care and coordinated and comprehensive care received the highest ratings, and providing general information received the lowest. Our findings indicate lower levels of family centredness in primary health-care contexts than that reported in specialist health care. Significant positive associations were found between all the five MPOC-20 scales and the parents' satisfaction with the amount of service coordination (p = .000-.004). The high scores for respectful and supportive care and the low scores for general information indicate that the families experienced relational help giving practices to a larger extent and participatory practices to a lesser extent. To increase the participatory aspects of family-centred practice, further research needs to address facilitators and barriers of information sharing and ways of giving this information both in specialist and primary health care.

Family‐centred care for children and young people with cerebral palsy: results from an Italian multicenter observational study

“…In our survey, parents experienced FCC as being ‘fair’ to ‘moderate’, with some areas for improvement. Similar to other national studies (King et al , b; Dyke et al ; Raghavendra et al ; Jeglinsky et al ; Myrhaug et al ; McDowell et al ; Wang et al ), the domain ‘respectful and supportive care’ was ranked highest by parents, and the behaviour of professionals was perceived, to a fairly large extent, in terms of ‘co‐ordinated and comprehensive care’. Our results confirm the findings that parents rate the provision of information as an area needing further improvement with, specifically, the domain ‘providing general information’ achieving the lowest rating (Raghavendra et al ; Jeglinsky et al ).…”

Caregiver satisfaction with a multidisciplinary community-based rehabilitation programme for children with cerebral palsy in South Africa

“…They adopt the dominant role of executing the necessary intervention and are responsible for the continuity of such programmes, as in the intervention programme used in this study. 6 Assessing caregivers' satisfaction with any rehabilitation intervention serves as an imperative for the sustainability of such practice. Patient satisfaction studies provide knowledge about means to improve practice 4,6,13 and also provide relevant information on the marketability of health services and quality of care.…”

“…6 Myrhaug et al, 6 in their work on family-centred services, believed that parental involvement is essential to rehabilitation, as well as adequate information and the sharing of in-service delivery. The lack of information as perceived in this study could be due to the lack of staff and high patient volume.…”

“…16 Moreover, it is evident that focusing on the family improves rehabilitation outcomes and family support for a child living with a disability. 6 However, researchers believe that added social support improves psychosocial well-being. 22 .…”

“…4,5 Children with CP require a comprehensive multidisciplinary rehabilitation approach to maintain and improve function and prevent secondary complications. 4,6 The multidisciplinary team (MDT) managing children with CP comprises various health professionals, including doctors (neurologists and paediatricians), nurses, physiotherapists, occupational therapists, speech and language therapists, psychologists, and social workers. 7 Each professional has a varied role in the team but need to collaborate in order to achieve optimal care.…”