Family-centred care for hospitalised children aged 0-12 years

Abstract

This update of a review has found limited, moderate-quality evidence that suggests some benefit of a family-centred care intervention for children's clinical care, parental satisfaction, and costs, but this is based on a small dataset and needs confirmation in larger RCTs. There is no evidence of harms. Overall, there continues to be little high-quality quantitative research available about the effects of family-centred care. Further rigorous research on the use of family-centred care as a model for care delivery to children and families in hospitals is needed. This research should implement well-developed family-centred care interventions, ideally in randomised trials. It should investigate diverse participant groups and clinical settings, and should assess a wide range of outcomes for children, parents, staff and health services.

Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

“…The familycentred care philosophy is consistent with the prevailing ideals of empowerment, respecting personal autonomy and recognition of human rights (Domenighetti, 1994). Therefore, family-centred care is currently seen as the ideal system of care to structure the involvement of parents and families in children's health care globally (Shields, Pratt & Hunter, 2006;Shields, Zhou, Pratt, Taylor, Hunter, et al, 2012). Despite considerable research, patientcentred care and related terms such as family-centred care and partnership-in care remain poorly defined, and have different meaning across professional and patients groups (Franck & Callery 2004;Power & Franck, 2008;Mead & Bower, 2000;Petersen, Cohen & Parsons, 2004).…”

“…Despite considerable research, patientcentred care and related terms such as family-centred care and partnership-in care remain poorly defined, and have different meaning across professional and patients groups (Franck & Callery 2004;Power & Franck, 2008;Mead & Bower, 2000;Petersen, Cohen & Parsons, 2004). In addition, the evidence-base relating to the impact of family-centred care and partnership-in care models on care delivery and parental satisfaction is weak, and outcomes are difficult to measure (Mead & Bower 2000;Power & Franck, 2008;Shields, et al, 2012, Harrison, 2010.…”

“…Family-centred care has been described as both a method of care delivery and a philosophy that values the vital role of the family in ensuring the health and wellbeing of the child, planning and delivering care around the whole family, working in partnerships with the family and across service provision (Shields et al, 2012). The Institute for Patient and FamilyCentered Care (2010, p1) defines family-centered care as, 'an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families'.…”

“…The Institute for Patient and FamilyCentered Care (2010, p1) defines family-centered care as, 'an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families'. Although some view partnership-incare as a philosophy (Casey, 1988;Casey, 1995), there is increasing consensus that partnership is an attribute or central tenet of family-centred care (Coyne, 1996;Shields et al 2012). The seminal work by Shelton and colleagues culminated in the development, of a framework for embedding family-centred care into practice (Shelton, Jepson, & Johnson, 1987;Johnson, 1990;Shelton, & Stepanel, 1995;Harrison, 2010:336).…”

Family-centred care in cystic fibrosis: a pilot study in North Queensland, Australia

“…These principles aim to improve quality and safety of paediatric health care through enhanced patient/family experience and communication and translation into improved health outcomes for children. Evidence for better health outcomes through FCC is relatively limited (Shields et al., 2012), although studies demonstrate improved child psychological health, satisfaction, family functioning, improved access to healthcare, reduced emergency presentations and better health service efficiency (Mikkelsen & Frederiksen, 2011; Smith, Swallow, & Coyne, 2015). Family‐centred care can improve information gathering and clinical acuity for healthcare professionals (Kuhlthau, Bloom, & Van Celave, 2011).…”