Family‐centred care

Isaacs, David

doi:10.1111/jpc.14664

Cited by 10 publications

(11 citation statements)

References 5 publications

(5 reference statements)

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“…True patient-centred care has patients involved in healthcare systems, designing those systems to the benefit of the patient. 3…”

Section: Crueltymentioning

confidence: 99%

“…But before we get too smug, let me remind you of common cruelties in hospitals, such as patient rubbish bins being emptied by the night cleaners which wakes the patients and ridiculously early starts to the day so the night staff can go home, or so the medical students can round before the residents, before the registrar and before the consultant. True patient‐centred care has patients involved in health‐care systems, designing those systems to the benefit of the patient 3 …”

Section: Crueltymentioning

confidence: 99%

See 1 more Smart Citation

Seven Sins of Medicine: Reconsideration 70 years on

Massie

2020

J Paediatrics Child Health

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“…True patient-centred care has patients involved in healthcare systems, designing those systems to the benefit of the patient. 3…”

Section: Crueltymentioning

confidence: 99%

Section: Crueltymentioning

confidence: 99%

Seven Sins of Medicine: Reconsideration 70 years on

Massie

2020

J Paediatrics Child Health

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“…Medical practice has traditionally treated and assessed patients on an individual basis, when in fact, health and illness affect not just the patient but also those around them. While the concept of family‐centered care considers the impact of an individual's illness on other members of their family unit, application of this concept may be limited by clinical resources, time, or gaps between the perspectives of family members and healthcare providers (Isaacs, 2020; Shields et al, 2006). In the context of genetic conditions in particular, it is clear that diagnoses have ramifications not only for a single patient but also for their biological relatives.…”

Section: Introductionmentioning

confidence: 99%

The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”

Heaton

Wainstein

Elliott

et al. 2022

Journal of Genetic Counseling

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Childhood genetic conditions impact not only the child who is diagnosed but also the day-to-day lives of all members of a family. However, our understanding of the perspectives and needs of unaffected adolescents in families affected by rare genetic conditions is limited. To address this gap, we conducted semi-structured interviews with 10 participants aged 14-20 years, all of whom had a sibling with a rare genetic condition. An interpretive description approach was used to develop a framework that described how participants' experiences of having a sibling with a rare genetic condition shaped the formation of their identity. This experience influenced identity formation both directly, and indirectly through four other phenomena: (1) normalization, of both their own experiences and their siblings' differences; (2) knowledge seeking, regarding their sibling's condition and what uncertainties remained; (3) caretaking, which limited some opportunities and was associated with uncertainty around the future; and (4) social experience, including their relationship with their affected sibling, with their peers, and with the rest of their family participants felt that they were isolated and lacked appropriate supports. The results of this study can help to inform a family-centered approach to genetic counseling and highlight the importance of tailored supports for this population.

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“…Family‐centred care (FCC) is a non‐pharmacological intervention emphasizing partnership between family members and medical staff (Isaacs, 2020 ; O'Connor et al., 2019 ), in which medical staff needs to establish a cooperative relationship with family members, share information and support them to participate in patient's care activities (Park et al., 2018 ). It acknowledges the essential contribution that family members often make by acting as patients’ representatives.…”

Section: Introductionmentioning

confidence: 99%

Family‐centred care interventions to reduce the delirium prevalence in critically ill patients: A systematic review and meta‐analysis

et al. 2022

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Aim This study aimed to determine whether family‐centred care (FCC) intervention reduces the ICU delirium prevalence. Design A systematic review and meta‐analysis. Methods The databases, including PubMed, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL Complete, China National Knowledge Infrastructure (CNKI), China Biology Medicine disc (CBMdisc), WANFANG Data and VIP Information, were systematically searched up to 30 November 2021. The search term includes keywords related to intensive care units, delirium and family‐centred care. Meta‐analyses were performed and presented by risk ratio (RR), mean difference (MD) and corresponding 95% confidence intervals (CIs). Results The meta‐analysis results showed that compared with the usual care, FCC intervention has positive effects on reducing ICU delirium prevalence [RR = 0.54, 95% CIs (0.36, 0.81), p < .05]. However, no effect was observed on ICU stays, mechanical ventilation duration and ICU‐acquired infection between the two groups. Conclusions Family‐centred care is an effective intervention to reduce the ICU delirium prevalence. But the result should be treated cautiously as the high levels of heterogeneity, further high‐quality studies are required to determine the effectiveness of FCC intervention in the ICU setting.

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Family‐centred care

Cited by 10 publications

References 5 publications

Seven Sins of Medicine: Reconsideration 70 years on

Seven Sins of Medicine: Reconsideration 70 years on

The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”

Family‐centred care interventions to reduce the delirium prevalence in critically ill patients: A systematic review and meta‐analysis

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