Family-centered rounds in Pakistani pediatric intensive care settings: Non-randomized pre- and post-study design

Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

“…Figure 3 illustrates that the key antecedents of family-centred care and partnership-in-care identified through in our concept synthesis are: a theory-practice gap, unclear roles and boundaries, entrenched professional practices and attitudes towards working with families, and lack of organisational or managerial guidelines or policies specifically aimed at supporting the implementation of patient-centred care.  Gap exist between theory and practice (Coyne, 2011;Coyne et al 2013b;Hughes, 2007;Murphy & Fealy, 2007)  Operationalising family-centred care is hindered by individual health professions attitudes towards, values and perception of and family-centred care (Ladak et al 2013;Maccdonald et al 2012)  Unclear roles and boundaries between parents and health professionals, entrenched professional practices with health professionals retaining role of decision maker, care prescriber and care giver (Bridgeman, 1999;Bruce et al 2002;Coyne, 2013a;Hughes, 2007;Murphy & Fealy, 2007;Paliadelis, et al 2005)  Inadequate nursing assessment and documentation relating to role negotiate; lack of knowledge and skills in relation to implementing family-centred care; operates without effective sharing of information, and collaboration or negotiation with families (Bruce et al 2002;Coyne 2013a;Holm, et al 2003;MacKay & Gregory, 2011)  Lack of organisational, managerial support, guidelines or policies hinders the implementation and consistency of embedding family centred care in practice of familycentred care (Coyne, 2011;Davies 2013, Coyne 2013bMacKay & Gregory, 2011MacKean et al 2005)  The design and organisation of the care environment can be facilitator or a barriers to embedding family to care into practice (Beck, 2009;Coyne et al 2013b;Coyne, 2011;Koller et al 2006;Bruce et al 2002)  Model outdated and does not reflect current practice' partnership professional rather tha...…”

“…Similarly parents' expectations of being involved in decisions about their child's care will be realised. However, Darbyshire's (1993) description of partnership-in care as 'one of paediatric nursing's most amorphous and ill-described concepts' (page 1672), remains relevant because recent evidence suggests that implementing family-centred care and partnership-in care remains challenging (Ladak, Premji, Amanullah, Haque, Ajani, et al, 2013;Macdonald, Liben, Carnevale & Cohen, 2012;Uhl, Fisher, Docherty & Brandon, 2012).…”

Family-Centered Care for Hospitalized Children: Concept Analysis

“…장애물: 가족중심 순회 중 언어장벽이 있는 외국인이나 어려운 전문 용어에 직면하는 가족들이 있고 [5,16,18], 이들 중에는 부끄러움을 피 하기 위해 이해하는 척 고개를 끄덕이기도 하였다 [5]. 가족의 이해도가 감소하면 아동의 치료계획을 위해 논의 할 때 오해를 야기할 수 있으 며 [11,17], 가족에게 나쁜 소식 등을 전하기는 더욱 어렵다 [19].…”

“…Empowerment and reinforcement 4,5,15,17,21,22 Obstacle High expectation of family 9,10,13 Negative opinion of medical staff 9,10,13,20 Strategy Leadership 14 Participation of family 17,19 Continuing support from staff 14,17,19,22 Communication Description Improving communication 3,10,15,18 Consideration for family 10,18,21 Sharing care plan 3,15,21 Obstacle Language barrier 4,7,11,15,19 Poor understanding 10,11,15,17 Handing out bad news 9,12 Strategy Using easy words 4,6,15,22 Interpreter training 19 Mediative participation of nurse 1,16,25 Understanding of culture …”

Implementing bedside rounds to improve patient-centred outcomes: a systematic review

“…Other results in this domain included a statistically significant reduction in ICU LOS (31.58 hours vs 44.59 hours, p=0.01),41 but no clear difference in the number of medications used (2.36 vs 2.68, p=0.53) or hospital charges ($6683 vs $9529, p=0.26) 26…”