Family‐Centered Care

Gance‐Cleveland, Bonnie

doi:10.1111/j.1744-6155.2006.00046.x

Cited by 22 publications

(10 citation statements)

References 23 publications

(26 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Professionals responding to the problem may be hard-pressed to use the principles of family-centered care that regards families’ perspectives as central to the framing of problems and intervention planning (Gance-Cleveland, 2006; Lawlor & Mattingly, 1998, 2009, 2014). In other words, when used in clinical discourse, the terms ‘wandering’ and ‘elopement’ may obscure from professionals the critical urgency and the life-threatening nature of the problem for the families.…”

Section: ‘Wandering’ and ‘Elopement’: Conceptual Challengesmentioning

confidence: 99%

“And I look down and he is gone”: Narrating autism, elopement and wandering in Los Angeles

Solomon

Lawlor

2013

Social Science & Medicine

View full text Add to dashboard Cite

‘Wandering’ and ‘elopement’ have been identified as common in autism, affecting half of all diagnosed children ages four to ten, yet families rarely receive advice from practitioners even after the fact. Family perspectives have been missing from the literature as well as from public health and policy debates on how and when to respond to this problem. The problem of ‘wandering’ and ‘elopement’ reveals a complex intersection of larger issues encountered by families of children with autism. To consider these issues, this article examines ‘wandering’ and ‘elopement’ from the perspectives of African American mothers of children with autism, an underrepresented group in autism research. We consider how the mothers experience these behaviors and the response to these behaviors by professionals, such as service coordinators and law enforcement personnel working within various jurisdictions that become involved with the problem. We analyze the mothers’ narratives about ‘wandering’ and ‘elopement’ drawn from ethnographic interviews that were collected between October 1, 2009 and August 31, 2012. These interviews were part of a larger project on disparities in autism diagnosis and services that followed a cohort of 25 four to ten-year old children. Drawing on narrative, phenomenological and interpretive traditions, we trace the mothers’ developing understandings of ‘wandering’ and ‘elopement’ over time, and show how these understandings become elaborated and transformed. This article provides a nuanced, moment-to-moment and longitudinal picture of the mothers’ experiences of ‘wandering’ and ‘elopement’ that enriches the cross-sectional view of large-scale surveys about the problem and contributes unique insights at the family and community levels. Implications for professional awareness, clinical practice and service provision are also suggested.

show abstract

Section: ‘Wandering’ and ‘Elopement’: Conceptual Challengesmentioning

confidence: 99%

“And I look down and he is gone”: Narrating autism, elopement and wandering in Los Angeles

Solomon

Lawlor

2013

Social Science & Medicine

View full text Add to dashboard Cite

show abstract

“…In particular, relatively little is known about how African‐American youth cope with the diagnosis and treatment of breast cancer in their parents. Integrating African‐American adolescents' voices can potentially improve the quality of life for ethnic minority families coping with parental breast cancer 17, 18 by tailoring intervention programs that address their specific needs. In order to fill this gap, three focus groups were conducted with 12 African‐American adolescents coping with parental breast cancer, in order to advance a better understanding of a culturally sensitive clinical program with this vulnerable population.…”

Section: Introductionmentioning

confidence: 99%

‘We are survivors too’: African‐American youths' experiences of coping with parental breast cancer

et al. 2010

View full text Add to dashboard Cite

This study suggests that clinicians can improve the care of African-American breast cancer patients and their adolescent children by being more family-centered. Adolescents need more developmentally appropriate preparation for the family changes likely to occur when a parent is diagnosed and treated for breast cancer. Developing a support group comprised of other youth coping with parental breast cancer from diagnosis throughout treatment was described as a preferred intervention to promote a shared understanding in order to overcome feelings of isolation, worry, and fear.

show abstract

“…Family-centered care may be an effective approach to address health disparities because it involves a partnership among healthcare providers, the child, and the family; respects the diversity of the family; values the family’s strength; and plans the care in the cultural context (Gance-Cleveland, 2006). Thus, using the family-centered care approach is particularly suitable to addressing Latino youths’ substance use.…”

Section: Implications For Practicementioning

confidence: 99%

Author's Response to Letter to the Editor by Dunlei Cheng, PhD, Biostatistician Institute for Health Care Research and Improvement, Baylor Health Care System, Dallas, TX

Williams

Messmer

Hill‐Rodriguez

et al. 2010

Journal for Specialists in Pediatric Nursing

View full text Add to dashboard Cite

show abstract

Family‐Centered Care

Cited by 22 publications

References 23 publications

“And I look down and he is gone”: Narrating autism, elopement and wandering in Los Angeles

“And I look down and he is gone”: Narrating autism, elopement and wandering in Los Angeles

‘We are survivors too’: African‐American youths' experiences of coping with parental breast cancer

Author's Response to Letter to the Editor by Dunlei Cheng, PhD, Biostatistician Institute for Health Care Research and Improvement, Baylor Health Care System, Dallas, TX

Contact Info

Product

Resources

About