Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review

Hill, Carrie L.; Knafl, Kathleen A.; Santacroce, Sheila Judge

doi:10.1016/j.pedn.2017.11.007

Cited by 106 publications

(100 citation statements)

References 62 publications

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“…In the study by Bailey et al (30), families who received more support, particularly information support, had more satisfaction than others and there was a significant relationship between the understanding of information support and meeting the needs, followed by satisfaction with care. In fact, one of the main goals of pediatric nursing is to provide comprehen-sive care and facilitate the best possible outcomes and to reach this goal, the understanding of mothers' concerns is of particular importance (31). The results of this study showed that with increasing nursing support, the level of mother's concern decreases.…”

Section: Discussionmentioning

confidence: 70%

Relationship Between Mothers’ Concerns and Nursing Support of Children Admitted to Baqiyatallah Al-Azam Hospital of Ali Abad Katoul, Golestan Province, Iran, in 2018

2019

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Background: Hospitalization of children is one of the main causes of anxiety and concern for families. Mothers of sick children need emotional support to provide effective care and adequate support for their children. Objectives: Thus, the present study was conducted to investigate the relationship between parental concerns and nursing support of hospitalized children. Methods: This descriptive cross-sectional study was conducted on 150 mothers of children admitted to the Pediatric Ward of Baqiyatallah Al-Azam Hospital in Ali Abad Katoul, Golestan province, Iran, in 2018. The children were hospitalized for at least 24 h, and were selected by the convenience sampling method. Concerns of mothers were measured by the Parental Concerns Questionnaire and nursing support was assessed by the Nursing Support of Parents Questionnaire through individual interviews. Data were analyzed by SPSS version 21 software at a significance level of 5%. Results: The mean scores of mothers' concerns and nursing support were 16.6 ± 5.6 and 72.01 ± 16.52, respectively. Pearson correlation coefficient showed a significant relationship between nursing support and mothers' concerns (r =-0.22, P = 0.004). Conclusions: Mothers' concerns are decreased by increasing nursing support. By identifying factors effective in decreasing mothers' concerns, the treatment team members, especially nurses, can play an important role in providing nursing care and support for mothers of hospitalized children. Therefore, increasing self-confidence of mothers and providing nursing support for them will increase the quality of care and satisfaction of patients and their caregivers, especially the mothers.

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Section: Discussionmentioning

confidence: 70%

Relationship Between Mothers’ Concerns and Nursing Support of Children Admitted to Baqiyatallah Al-Azam Hospital of Ali Abad Katoul, Golestan Province, Iran, in 2018

2019

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“…The parents in this review described their own knowledge-seeking as guiding them into managing their child's life with a food allergy. Hill, Knafl, and Santacroce (2018) state that the key issue in information sharing is the health professional's use of "normal people language" making it easier for the parents to understand. Parents may misunderstand the severity of their child's illness when health professionals use terminology parents are not familiar with.…”

Section: Discussionmentioning

confidence: 99%

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

Moen

Opheim

Trollvik

2019

Journal of Pediatric Nursing

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Problem: Food allergies are one of the fastest growing public health concerns without a cure, affecting approximately 8% of the world's child population. Being the parent of a child with allergies may lead to concerns, and affect everyday life in the family. The aim was to synthesize and describe parents' experiences of living with food allergies in families when one of the children has a food allergy. Eligibility criteria: A systematic search using subject terms and text words was performed in Cinahl (Ebsco), Swemed+, Medline (OVID) and Scopus in October 2017. The search was limited to parents with children and adolescents, for the years from 2006 to October 2017. Sample: One hundred and forty articles were screened and 24 were included. Results: A meta-summery of the results from the included studies were conducted. The parents lived in fear, after their child had their first reaction and had become allergic, a life threatening experience. They tried to live an ordinary family life and parents had to learn how to be one-step ahead and understand early signs. The family's social life was also influenced. Parents asked for support and information from health professionals and more knowledge and skills increased parents' manageability. Conclusion: Parents need support and a seamless encounter with health professionals, with multidisciplinary collaboration and knowledge sharing to develop the parents' self-efficacy. Implications: Health professionals must provide information and support parents on their path through the health-care system in having a child with a food allergy.

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“…The results of this study are useful for health care professionals working with parents of special needs children receiving care in a PICU to best target parental support based on family‐centred care (Hill et al ., ), especially when parents are unemployed and when children have multiple airway anomalies requiring long‐term oxygen therapy. Appropriate home care support, such as trained home care workers and respite care, are an opportunity to support parents of children with airway anomalies, as are employment assistance and opportunities for social connection.…”

Section: Discussionmentioning

confidence: 99%

Stress and uncertainty in parents of children with tracheobronchial malacia and stenosis

Soong

Wang

2019

Nursing in Critical Care

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Background: An increasing number of children are undergoing flexible bronchoscopy because of tracheobronchial malacia and stenosis, but there is little research related to their parents' stress and uncertainty. Aim: To explore and identify risk factors associated with stress and uncertainty among Taiwanese parents of children with tracheobronchial malacia and tracheabronchostenosis in a paediatric intensive care unit. Methods: A cross-sectional study design was implemented using two psychometric scales: Parenting Stress Index and Parents' Perception of Uncertainty Scale. Parents of Taiwanese children (0-18 years/o) with a diagnosis of tracheobronchial malacia or/and tracheabronchostenosis who underwent bronchoscopy in a paediatric intensive care unit were recruited. The analysis used descriptive statistics and multivariable linear regression. Results: Ninety parents who were caring for a total of 51 children were recruited. Stress and uncertainty both scored high and were positively correlated with each other. Four risk factors arising from parental stress were unemployment, parental uncertainty, the child's tracheobronchial malacia and tracheabronchostenosis and use of oxygen. Conclusions: Identifying likely causes of stress and uncertainty is essential for this parental group, particularly for parents facing unemployment, feelings of uncertainty and caring for children with both tracheobronchial malacia and tracheabronchostenosis and requiring oxygen. Relevance to clinical practice: Nursing practice can focus on better parental support for those parents who are unemployed, show feeling of uncertainty and care for children with combined tracheobronchial malacia and tracheabronchostenosis and other medical care, such as breathing symptom management, nasogastric feeding and oxygen therapy.

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Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review

Abstract: There is a need for better understanding of how parents perceive their involvement in the care of their critically ill child, additionally; the IPFCC core concepts should be refined to explicitly include the importance of the environment of care.

Cited by 106 publications

References 62 publications

Relationship Between Mothers’ Concerns and Nursing Support of Children Admitted to Baqiyatallah Al-Azam Hospital of Ali Abad Katoul, Golestan Province, Iran, in 2018

Relationship Between Mothers’ Concerns and Nursing Support of Children Admitted to Baqiyatallah Al-Azam Hospital of Ali Abad Katoul, Golestan Province, Iran, in 2018

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review

Stress and uncertainty in parents of children with tracheobronchial malacia and stenosis

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