Family carers’ experiences of providing care for their adult relative with intellectual disabilities and mental health problems in Singapore

Ee, Jonathan; Lim, Jan Mei; Kroese, Biza Stenfert; Rose, John

doi:10.1016/j.ridd.2022.104241

Cited by 3 publications

(2 citation statements)

References 37 publications

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“…Multiple qualitative studies conducted across different countries, have also found that CGs experienced concerns and worries for the future of their care recipients in terms of self-sufficiency ( 62 – 64 ). CGs in our study also shared this concern as a result of the structural stigma.…”

Section: Discussionmentioning

confidence: 99%

A qualitative enquiry on the impact of mental illness stigma on caregiving role and experiences in Singapore

Ong,

Goh,

Tan

et al. 2024

Front. Psychiatry

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IntroductionGiven that mental illness stigma is a common occurrence amongst people with mental illness and caregivers (CGs) can be a potential victim of stigma themselves, there is a need to examine caregivers’ perspective on the phenomenon. This study is part of a larger study which aims to qualitatively examine the concept of mental illness stigma amongst different stakeholders in Singapore.MethodsFocus group discussions (FGDs) were conducted amongst 21 informal caregivers to explore the experience of stigma encountered by them and their care recipients, and how it may implicate their caregiving experience. Both inductive and deductive thematic analyses were employed to analyze the data.ResultsThree overarching themes of stigma encounters that may have implication on caregiving experience were identified: 1) Stigma within the family; 2) Structural stigma; and 3) Stigma by association. Experience of stigma within family (e.g., social exclusion and lack of understanding) limits the caregiving supports available to CGs. CGs also took up a mediating role between their care recipients and other family who may hold stigmatizing views. Witnessing their care recipients being subjected to structural disadvantages (e.g., employment, school, and mandatory conscription) can induce emotional stresses amongst CGs and motivate them to protest and seek redress on their behalf. Furthermore, encounters of stigma themselves (e.g., being judged or blamed for their loved one’s condition) also led to feelings of guilt and self-blame amongst the CGs.DiscussionThese findings can aid the formulation of interventions in informing CGs on what to expect on their caregiving journey and supporting them in dealing with issues relating to stigma and highlight the importance of anti-stigma efforts in organizational settings such as schools, corporations, and government agencies.

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Section: Discussionmentioning

confidence: 99%

A qualitative enquiry on the impact of mental illness stigma on caregiving role and experiences in Singapore

Ong,

Goh,

Tan

et al. 2024

Front. Psychiatry

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“…Similarly, in Singapore, most individuals with ID live with, and are supported by, their family members in community settings. However, the family caregivers reported difficulty with their caregiver roles [ 25 ].…”

Section: Individuals With Id Transitioning To Adulthoodmentioning

confidence: 99%

Family Caregiver Adaptation during the Transition to Adulthood of Individuals with Intellectual Disabilities: A Scoping Review

Kanthasamy,

Miskon,

Barlas

et al. 2024

Healthcare

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During the transition to adulthood, individuals diagnosed with intellectual disability (ID) and their family caregivers have unique experiences. This scoping review studies the sources of the family caregiver’s objective burden, support, coping mechanisms, positive caregiving, and quality of life to understand the caregiver’s adaptation process when the individual with ID transits to adulthood, according to Joanna Briggs Institute (JBI) Scoping Review methodology guidelines. The inclusion criteria included studies of family caregivers of any age who provide unpaid care and live with individuals diagnosed with ID who are transitioning to adulthood. Of 2875 articles identified, 12 published studies were included. The main themes included caregivers reporting dissatisfaction with the available adult services and exhaustion from being a caregiver. Overall, a vicious cycle of likely increased demands during the transition, with caregivers not being prepared to cope with these demands while concurrently being dissatisfied with the adult services system, leads the caregivers to develop a pervasive sense of helplessness. Future studies would benefit from recruiting caregivers from sources other than adult-only service centres and using qualitative (to identify the broad aspects of the key factors) and quantitative (to identify the significant differences between the key factors) methodologies.

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Socio-demographic and clinical profiles of adults with an intellectual disability admitted to acute general psychiatric wards in a Singapore hospital

Sajith

Wei

Tan

2023

Journal of Intellectual & Developmental Disability

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Family carers’ experiences of providing care for their adult relative with intellectual disabilities and mental health problems in Singapore

Cited by 3 publications

References 37 publications

A qualitative enquiry on the impact of mental illness stigma on caregiving role and experiences in Singapore

A qualitative enquiry on the impact of mental illness stigma on caregiving role and experiences in Singapore

Family Caregiver Adaptation during the Transition to Adulthood of Individuals with Intellectual Disabilities: A Scoping Review

Socio-demographic and clinical profiles of adults with an intellectual disability admitted to acute general psychiatric wards in a Singapore hospital

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