Family caregiving at the intersection of private care by migrant home care workers and public care by nursing staff

Ayalon, Liat; Halevy-Levin, Sara; Ben-Yizhak, Zvi; Friedman, G.

doi:10.1017/s1041610213000628

Cited by 16 publications

(15 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In five articles, caregivers view care management as their primary responsibility (Ayalon, Halevy‐Levin, Ben‐Yizhak, & Friedman, ; Kirk, ; Linderholm & Friedrichsen, ; Stephan, Möhler, Renom‐Guiteras, & Meyer, ; Toscan, Mairs, Hinton, & Stolee, ). In the study of Stephan et al.…”

Section: Resultsmentioning

confidence: 99%

“…Nurses underlined the importance of family visits and upheld the same expectations for emotional care by caregivers: families can give emotional support when they come to see the care recipient. They don't have to do anything else (Ayalon et al., ). However, the same study showed different views on caregivers’ responsibilities.…”

Section: Resultsmentioning

confidence: 99%

“…Practical barriers might be distance to a hospital or preoccupation with attending to daily routines. Past relationships might be emotional obstacles to engagement in care (Ayalon et al., ).…”

Section: Resultsmentioning

confidence: 99%

“…In five articles, caregivers view care management as their primary responsibility (Ayalon, Halevy-Levin, Ben-Yizhak, & Friedman, 2013;Kirk, 2001;Linderholm & Friedrichsen, 2010;Stephan, Möhler, Renom-Guiteras, & Meyer, 2015;Toscan, Mairs, Hinton, & Stolee, 2012). In the study of Stephan et al (2015) caregivers of people with dementia appear to be predominantly responsible for obtaining information on available services, organising professional care and transferring information among various healthcare providers.…”

Section: Division Of Responsibilitiesmentioning

confidence: 99%

“…Other responsibilities that were felt by caregivers were described as dealing with practical and emotional caregiving problems (Egdell, 2013), to advocating for their loved ones (Toscan et al, 2012), physical presence and emotional care (Ayalon et al, 2013) and keeping company (Ryan & Scullion, 2000). Linderholm and Friedrichsen (2010) described that caregivers feel the social responsibility to give the care recipient an impression of security and strength.…”

Section: Division Of Responsibilitiesmentioning

confidence: 99%

See 4 more Smart Citations

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Wittenberg

Kwekkeboom

Staaks

et al. 2017

Health Soc Care Community

View full text Add to dashboard Cite

This scoping review focuses on the views of informal caregivers regarding the division of care responsibilities between citizens, governments and professionals and the question of to what extent professionals take these views into account during collaboration with them. In Europe, the normative discourse on informal care has changed. Retreating governments and decreasing residential care increase the need to enhance the collaboration between informal caregivers and professionals. Professionals are assumed to adequately address the needs and wishes of informal caregivers, but little is known about informal caregivers' views on the division of care responsibilities. We performed a scoping review and searched for relevant studies published between 2000 and September 1, 2016 in seven databases. Thirteen papers were included, all published in Western countries. Most included papers described research with a qualitative research design. Based on the opinion of informal caregivers, we conclude that professionals do not seem to explicitly take into account the views of informal caregivers about the division of responsibilities during their collaboration with them. Roles of the informal caregivers and professionals are not always discussed and the division of responsibilities sometimes seems unclear. Acknowledging the role and expertise of informal caregivers seems to facilitate good collaboration, as well as attitudes such as professionals being open and honest, proactive and compassionate. Inflexible structures and services hinder good collaboration. Asking informal caregivers what their opinion is about the division of responsibilities could improve clarity about the care that is given by both informal caregivers and professionals and could improve their collaboration. Educational programs in social work, health and allied health professions should put more emphasis on this specific characteristic of collaboration.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Division Of Responsibilitiesmentioning

confidence: 99%

Section: Division Of Responsibilitiesmentioning

confidence: 99%

See 3 more Smart Citations

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Wittenberg

Kwekkeboom

Staaks

et al. 2017

Health Soc Care Community

View full text Add to dashboard Cite

show abstract

Sorgebeziehungen in der Betreuung pflegebedürftiger Menschen durch migrantische Live-Ins: Ein Blick durch die Brille der Care-Ethik

Seidlein,

Kuhn,

Kohlen

2024

Ethik Med

View full text Add to dashboard Cite

ZusammenfassungMigrantische Pflege- und Betreuungskräfte, die zusammen mit pflegebedürftigen Menschen in ihren Haushalten leben (sog. migrantische Live-Ins), sind eine tragende Säule der ambulanten Langzeitpflege in zahlreichen Ländern – so auch in Deutschland. Zur Arbeits- und Lebenssituation der Live-Ins liegen inzwischen zahlreiche empirische Untersuchungen vor, die damit einhergehende Problemlagen offenbaren. Ein Schlüsselelement der Live-In Arrangements, nämlich die Beziehungen zwischen den Involvierten, wurde bislang jedoch aus ethischer Perspektive noch nicht systematisch untersucht.Aufbauend auf sozio-empirischen Arbeiten, die die Bedeutung von „Care-Networks“ dargelegt haben, gehen wir von der Annahme aus, dass Live-Ins auf verschiedenen Ebenen in ein Netz von Beziehungen eingebettet sind, die für ihre Arbeits- und Lebenssituation wesentlich sind. Mit Hilfe der vier Care-Phasen Joan Trontos werden in diesem Beitrag bestehende Abhängigkeiten beschrieben und anhand der korrespondierenden vier ethischen Dimensionen reflektiert. Zentral sind die Fragen, wie sich die Abhängigkeiten im Live-In Arrangement auf der Basis des bisherigen Korpus empirischer Studien charakterisieren lassen und wie die Beziehungsstrukturen mit Fokus auf die Elemente Macht, Abhängigkeit und Vertrauen in der Care-ethischen Reflexion eingeordnet werden können.Auf der Basis dieser Analyse zeigt sich, dass die aus der Gleichzeitigkeit verschiedener Formen von Asymmetrie und gegenseitiger Abhängigkeit resultierende Ambivalenz in Live-In Arrangements allgegenwärtig ist und scheinbar widersprüchliche Beziehungsformen und Emotionen entstehen lässt. Die Verantwortlichkeiten der Beteiligten füreinander sind vage und werden auf der Grundlage impliziter Annahmen und problematischer Rollenerwartungen ständig neu ausgehandelt und auch ohne Aushandlung zugewiesen.Es gilt künftig, nicht nur auf der Mikroebene des einzelnen häuslichen Pflegearrangements Verantwortlichkeiten aus den unterschiedlichen Positionen und Rollen heraus und mit Blick auf die changierenden Prozesse der Sorgebeziehungen besser zu verstehen und zu klären, sondern sich ebenfalls auf der Meso- und Makroebene – bereichert durch Care-ethische Perspektiven – den drängenden ethischen Fragen und Problemen in Live-In Arrangements zu stellen.

show abstract