Family Caregiving and Out-of-Pocket Costs: 2016 Report

Rainville, Chuck; Skufca, Laura; Mehegan, Laura

doi:10.26419/res.00138.001

Cited by 34 publications

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“…One national study found that 78% of family caregivers incurred expenses as a result of caregiving, spending an average of about $7000 on out‐of‐pocket costs in 2016. To cover caregiving expenses, family caregivers reported tapping into personal savings (30%), reducing retirement savings contributions (16%), or dipping into existing retirement savings (11%) …”

Section: Caregiving's Impact On Employment and Financial Well‐beingmentioning

confidence: 99%

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Paid Family Leave: An Emerging Benefit for Employed Family Caregivers of Older Adults

Feinberg

2019

J American Geriatrics Society

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As our population ages, the ability to take time off to care for an ill family member or close friend without losing income or a job is a growing social, health, and economic issue for American families. Therefore, the need for paid family leave policies for workers with caregiving responsibilities is an important topic for employers and policymakers, in the clinical care of older adults, and at kitchen tables across the United States. Despite this growing need, paid family leave is not available to most workers, and there is no national paid family leave policy. Health care and social service providers have a role in ensuring that family members of their patients with a serious health condition or disability are aware of the potential availability of paid family leave benefits in the states and businesses that provide them. Building a better system of care for older adults means changes not only in health care settings and in long‐term services and supports, but in workplaces too. This article describes the challenges faced by workers with family caregiving responsibilities, explains why paid family leave matters, indicates which states have adopted these protections, and reviews research on existing paid family leave policies. Finally, actions by clinicians and other stakeholders are offered to advance awareness about paid family leave benefits, including coverage for workers with care responsibilities for older people.

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Section: Caregiving's Impact On Employment and Financial Well‐beingmentioning

confidence: 99%

“…To cover caregiving expenses, family caregivers reported tapping into personal savings (30%), reducing retirement savings contributions (16%), or dipping into existing retirement savings (11%). 16…”

Section: Caregiving's Impact On Employment and Financial Well-beingmentioning

confidence: 99%

Paid Family Leave: An Emerging Benefit for Employed Family Caregivers of Older Adults

Feinberg

2019

J American Geriatrics Society

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“…[4][5][6][7][8] Often, family members will fill the role of caregiver to support older adults in their own homes, which results in stress, burden, and financial issues. [9][10][11] Interventions are needed to support the needs of this vulnerable population and their caregivers in their homes. Voice-controlled intelligent personal assistants (VIPAs; eg, Amazon Echo and Google Home) may be one type of artificial intelligence technology that may improve the lives of older adults in the home setting.…”

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confidence: 99%

Voice‐Controlled Intelligent Personal Assistants to Support Aging in Place

O’Brien

Liggett

Ramirez‐Zohfeld

et al. 2019

J American Geriatrics Society

100

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BACKGROUND/OBJECTIVES Many older adults wish to age in place, and voice‐controlled intelligent personal assistants (VIPAs; eg, Amazon Echo and Google Home) potentially could support unmet home needs. No prior studies have researched the real‐world use of VIPAs among older adults. We sought to explore how older adults and caregivers utilize VIPAs. DESIGN/MEASUREMENT Retrospective review of all verified purchase reviews of the Amazon Echo posted on http://amazon.com between January 2015 and January 2018, with filtering for health‐related older adult key words. Open‐ended reviews were qualitatively analyzed to identify relevant themes. RESULTS On retrieval, there were 73 549 reviews; and with subsequent key word filtering, 125 total reviews were subsequently analyzed. Five major themes were identified: (1) entertainment (“For two very senior citizens…we have really had fun with Echo. She tells us jokes, answers questions, plays music.); (2) companionship (“A senior living alone…I now have Alex to talk to.”); (3) home control; (4) reminders (“I needed something that would provide me with information I couldn't remember well, such as the date, day, or my schedule…I highly recommend for anyone with memory challenges”); and (5) emergency communication. Several felt it reduced burdening caregivers. “…You also feel guilt from fear of overburdening your caregivers. Alexa has alleviated much of this.” Specifically, caregivers found that: “By making playlists of songs from her youth whoever is providing care, family or professional caregiver, can simply request the right song for the moment in order to sooth, redirect, or distract Mom.” Alternatively, negative reviewers felt the VIPA misunderstood them or could not adequately respond to specific health questions. CONCLUSION VIPAs are a low‐cost artificial intelligence that can support older adults in the home and potentially reduce caregiver burden. This study is the first to explore VIPA use among older adults, and further studies are needed to examine the direct benefits of VIPAs in supporting aging in place. J Am Geriatr Soc 68:176–179, 2019

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“…Caregiving also has significant financial impact on the caregiver. In the United States, 78% of caregivers incur out‐of‐pocket expenses averaging US$6954 annually . This burden falls disproportionately on the poor, people in rural areas, and ethnic minorities.…”

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confidence: 99%

“…This burden falls disproportionately on the poor, people in rural areas, and ethnic minorities. Work‐related stress is also common for employed caregivers …”

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confidence: 99%

Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

et al. 2019

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The authors compared quality of life (QOL) of caregivers of dialysis patients versus that of the patients themselves and found that the former had higher physical and equivalent mental QOL but poorer personal well-being than the Chinese population norm. ABSTRACT:Aim: To compare quality of life (QOL) of caregivers of dialysis patients with the cared for patients and population norms.Methods: The ACTIVE Dialysis study randomized participants to extended (median 24 h/week) or standard (median 12 h/week) haemodialysis hours for 12 months. A subgroup of participants and their nominated caregivers completed QOL questionnaires including the EuroQOL-5 Dimension-3 Level (EQ5D-3 L), short form-36 (SF-36, also allowing estimation of the SF-6D), as well as a bespoke questionnaire and the personal wellbeing index (PWI). Caregiver QOL was compared with dialysis patient QOL and predictors of caregiver QOL were determined using multivariable regression.Results: There were 54 patients and caregiver pairs, predominantly from China. Caregivers mean (SD) age was 53.4 (11.3) years, 60% were female, 71% cared for their spouse/partner, and 36% were educated to university level. Caregivers had better physical but similar mental QOL compared with dialysis patients (mean SF-36 physical component summary: 46.9 AE 8.7 vs 40.4 AE 10.2, P < 0.001; mental component summary: 47.8 AE 9.7 vs 49.6 AE 12.0, P = 0.84). Health utility measured with EQ5D-3 L was not significantly different between caregivers and dialysis patients (mean 0.869 AE 0.185 vs 0.798 AE 0.227, P = 0.083). Caregiver PWI was 43.7 AE 15.5, significantly lower than the Chinese population norm (68.2 AE 14.2, P < 0.001). Higher physical and mental QOL among caregivers was predicted by university education but not age, gender or daily hours caring.Conclusion: Caregivers have higher physical and equivalent mental QOL to dialysis patients but poorer personal well-being than the Chinese population. University education predicts better QOL and may be a surrogate for socioeconomic or other factors. (NCT00649298).In the United States, there are an estimated 14.7 million family and unpaid caregivers assisting 7.7 million communitydwelling people with disabilities. 1 In Australia, an estimated 1 in 8 of the population (2.86 million people) provide informal care for an average of 13 h each week, and if replaced with formal caregivers would cost the equivalent of 3.8% of gross domestic product. 2 Caregiving also has significant financial impact on the caregiver. In the United States, 78% of caregivers incur out-of-pocket expenses averaging US$6954 annually. 3 This burden falls disproportionately on the poor,

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Family Caregiving and Out-of-Pocket Costs: 2016 Report

Cited by 34 publications

References 0 publications

Paid Family Leave: An Emerging Benefit for Employed Family Caregivers of Older Adults

Paid Family Leave: An Emerging Benefit for Employed Family Caregivers of Older Adults

Voice‐Controlled Intelligent Personal Assistants to Support Aging in Place

Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

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