Family caregivers in palliative care

Hauser, Joshua; Kramer, Betty J.

doi:10.1016/j.cger.2004.07.003

Cited by 84 publications

(83 citation statements)

References 61 publications

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“…Palyatif bakım gerektiren hasta yakınlarında depresyon oranlarının %12 ile %59 arasında, anksiyete oranlarının ise %30 ile %50 arasında olduğu bildirilmiştir. [13][14][15][16] Vodermaier ve ark. [17] ise bu popülasyonda hasta yakını olan aile üyelerinde depresyon ve anksiyete düzeyini değerlendirmek için Hastane Anksiyete ve Depresyon Skalası'nın (HADS) yapısından dolayı uygun bir tarama testi olduğunu belirtmişlerdir.…”

Section: Discussionunclassified

Evaluation of Psychosocial Characteristics of pain patients and their relatives which admitted to Algology Policlinic

Hancı

Günenç

et al. 2015

Agri

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SummaryObjectives: This study tested the hypothesis that as pain brings about psychosocial changes in the pain patient, it also does in those relatives dealing with and supporting the patient. In order to test the hypothesis, comparisons of psychosocial status were made among patients with chronic pain, their relatives, and a control group (individuals having no pain and no relative with a pain disorder). Methods: The study included 270 individuals separated into 3 groups: Patients admitted to the Pain Polyclinic at Dokuz Eylül University Faculty of Medicine with chronic pain (Group CP; n=77), relatives of these patients (Group R; n=98), and individuals age-and sex-matched to the relatives as a control group (Group C; n=95). The demographic values of all individuals were recorded, and psychological evaluations performed on all participants using the SCL 90 test. Results: Somatization, anxiety, depression, interindividual sensibility, psychosis, paranoia, anger and general symptom index average scores were found to be high in Group R compared to Group C. Conclusion: Changes in psychosocial status were observed in pain patients and their relatives when compared to the control group. The study recommends that in addition to evaluating the psychological status of pain patients in order to provide them with psychological and medical support, relatives of these patients should also be evaluated carefully and given psychological and medical support to enable necessary diagnosis and treatment.Key words: Patient relatives; chronic pain; psychological evaluation. ÖzetAmaç: Ağrı bireyin kendisinden sonra, ona destek olan yakınında bazı psikososyal değişiklikler meydana getirir. Kronik ağrısı olan hasta yakınları da stresli koşullar altında bulunmaktadır. Bu değişiklikler, hasta yakınının psikolojik durumu, baktıkları hastada kronik ağrıya neden olan hastalığın tipi ve bu hasta bakım yönetimine olan çevre desteği gibi çeşitli faktörlere bağlı olarak da değişmektedir. Çalışmamızın hipotezi ağrının hastalarda olduğu gibi, hasta yakınlarında da psikososyal değişikliklere neden olduğudur. Çalışmamızda bu hipotezin test edilmesi amacıyla kontrol grubu (ağrısı olmayan ve ağrısı olan yakını olmayan kişiler) ile kronik ağrı şikayeti olan hastaların ve bu hastaların yakınlarının psikososyal durumları araştırıldı. Gereç ve Yöntem: Dokuz Eylül Üniversitesi Tıp Fakültesi Algoloji Bilim Dalı Ağrı Polikliniği'ne başvuran ve kronik ağrısı olan ağrı hastaları (Grup KA, n=77) ve bu hastaların yakınları (Grup HY, n=98) ile kronik ağrı hastası yakınına cinsiyet ve yaş olarak eş kontrol grubu olguları (Grup K, n=95) dahil edildi. Tüm gruplara alınan olguların demografik bilgileri alındı. Tüm olgularda psikolojik değerlendirme SCL 90 tarama testi ile yapıldı. Bulgular: Çalışmamızda, Grup K ile karşılaştırıldığında, Grup HY'de, somatizasyon, anksiyete, depresyon, kişilerarası duyarlılık, psikotik, paranoid, öfke ve genel semptom indeksi ortalama skorlarının yüksek olduğu bulunmuştur (p<0.05). Sonuç: Ağrısı olmayan ve ağrısı olan yakını olmayan k...

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Section: Discussionunclassified

Evaluation of Psychosocial Characteristics of pain patients and their relatives which admitted to Algology Policlinic

Hancı

Günenç

et al. 2015

Agri

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“…The community and clinicians rely simply on the expectation that family and friends will provide care when required. 1 There is a tacit assumption that relatives will be there to fill the role. The likelihood of being expected to take on such a role is increasing as more people experience chronic progressive illnesses.…”

Section: Introductionmentioning

confidence: 99%

“…2,3 In the United States, caregiver contributions to the economy were estimated at US $196 billion annually. 1 Substituting paid care aides at the end of life alone was estimated to be worth $1.4 billion in 2002. 2 In Australia, the contribution of caregivers to the costs of health and social care was estimated annually to be equal to approximately 50% of the total national government's expenditure on health.…”

Section: Introductionmentioning

confidence: 99%

Palliative Caregivers Who Would Not Take on the Caring Role Again

Currow

Burns

Agar

et al. 2011

Journal of Pain and Symptom Management

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Context. Health and social services rely heavily on family and friends for caregiving at the end of life.Objectives. This study sought to determine the prevalence and factors associated with an unwillingness to take on the caregiving role again by interviewing former caregivers of palliative care patients.Methods. The setting for this study was South Australia, with a population of 1.6 million people (7% of the Australian population) and used the South Australian Health Omnibus, an annual, face-to-face, cross-sectional, whole-of-population, multistage, systematic area sampling survey, which seeks a minimum of 3000 respondents each year statewide. One interview was conducted per household with the person over the age of 15 who most recently had a birthday. Using two years of data (n ¼ 8377; 65.4% participation rate), comparisons between those who definitely would care again and those who would not was undertaken.Results. One in 10 people across the community provided hands-on care for someone close to them dying an expected death in the five years before being interviewed. One in 13 (7.4%) former caregivers indicated that they would not provide such care again irrespective of time since the person's death and despite no reported differences identified in unmet needs between those who would and would not care again. A further one in six (16.5%) would only ''probably care again.'' The regression model identified that increasing age lessens the willingness to care again (odds ratio [OR] 3.94; 95% confidence interval [CI] 1.56, 9.95) and so does lower levels of education (OR 0.413; 95% CI 0.18, 0.96) controlling for spousal relationship.

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“…Both anxiety and depression are prevalent in one third to one half of carers of people with advanced illness. 1,17,22 In the current study, 57.8% of participants who completed a baseline interview had clinical anxiety, and 30.1% were clinically depressed.…”

Section: Comparison With Existing Literaturementioning

confidence: 99%