Family Caregivers: Caring for Aging End-Stage Renal Disease Partners

Campbell, Anne

doi:10.1016/s1073-4449(98)70003-2

Cited by 23 publications

(16 citation statements)

References 16 publications

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“…A previous study reported that the source of stress for the caregivers may be related to the high burden of obligations, such as managing the patients' hospital and HD appointment, dietary requirements, medical treatments, and psychosocial difficulties [36]. HD patients are usually older, less educated, and less active than CAPD patients [37].…”

Section: Discussionmentioning

confidence: 99%

Caregiver Burden, Anxiety, Depression, and Sleep Quality Differences in Caregivers of Hemodialysis Patients Compared With Renal Transplant Patients

Avşar¹,

Cansever²,

Yücel³

et al. 2015

Transplantation Proceedings

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Section: Discussionmentioning

confidence: 99%

Caregiver Burden, Anxiety, Depression, and Sleep Quality Differences in Caregivers of Hemodialysis Patients Compared With Renal Transplant Patients

Avşar¹,

Cansever²,

Yücel³

et al. 2015

Transplantation Proceedings

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“…Of note the majority (>60%) of patients in this study were referred after commencement of dialysis, whereas a substantial number of patients with adjustment issue were referred prior to RRT. Maladjustment has been associated with loss of employment, which is not uncommon among dialysis patients [10, 13]. Earlier referral to social worker may therefore provide an opportunity to more effectively address adjustment concerns.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial Factors in End-Stage Kidney Disease Patients at a Tertiary Hospital in Australia

Bale

Douglas

Jegatheesan

et al. 2016

International Journal of Nephrology

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Aim. This study seeks to review the psychosocial factors affecting patients with end-stage kidney disease (ESKD) from a tertiary hospital in Australia. Methods. We audited patients with ESKD, referred to social work services from January 2012 to December 2014. All patients underwent psychosocial assessments by one, full-time renal social worker. Patient demographics, cumulative social issues, and subsequent interventions were recorded directly into a database. Results. Of the 244 patients referred, the majority were >60 years (58.6%), male (60.7%), born in Australia (62.3%), on haemodialysis (51.6%), and reliant on government financial assistance (88%). Adjustment issues (41%), financial concerns (38.5%), domestic assistance (35.2%), and treatment nonadherence (21.3%) were the predominant reasons for social work consultation. Younger age, referral prior to start of dialysis, and unemployment were significant independent predictors of increased risk of adjustment issues (p = 0.004, <0.001, and =0.018, resp.). Independent risk factors for treatment nonadherence included age and financial and employment status (p = 0.041, 0.052, and 0.008, resp.). Conclusion. Psychosocial and demographic factors were associated with treatment nonadherence and adjustment difficulties. Additional social work support and counselling, in addition to financial assistance from government and nongovernment agencies, may help to improve adjustment to the diagnosis and treatment plans as patients approach ESKD.

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“…The impact of helping a patient maintain a restricted diet, transportation to dialysis (typically three times per week), mood and behavioural changes in the patient, and a deteriorating patient QOL take their toll on the family caregiver. Campbell (1998) suggests that the burden of caring for ageing partners with ESRD may result in feelings of guilt, hopelessness, isolation, a loss of freedom to pursue personal activities and recreation, and fatigue from the added role demands. In Campbell's study 'the most frequent complaints of ESRD caregivers are loneliness and isolation, depression, frustration anger and guilt, loss of emotional closeness with the patients, a reduction in personal free time, fatigue from added caregiver roles, burnout, reduced involvement in community and church activities, and negative effects on social involvement' (pp.…”

Section: Esrd Caregiver Fatigue Modelsmentioning

confidence: 99%

Chronic renal failure: assessing the Fatigue Severity Scale for use among caregivers

Schneider

2004

Journal of Clinical Nursing

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Physicians, nurses and allied health professionals will be called on more frequently to assess and intervene with fatigued and overburdened caregivers in addition to patients themselves. A more thorough understanding of the nature of caregiver fatigue may drive changes or innovations with caregivers who are too often overlooked in the current era of scarce resources. Accordingly results of the study suggest that the direction in intervention may focus more on rest and respite as opposed to a need for psychosocial support or counselling. While there are various modes for assessing end-stage renal disease caregivers' fatigue, a simple measure like the Fatigue Severity Scale is brief enough to be administered without undue demand on practitioners or caregivers.

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Family Caregivers: Caring for Aging End-Stage Renal Disease Partners

Cited by 23 publications

References 16 publications

Caregiver Burden, Anxiety, Depression, and Sleep Quality Differences in Caregivers of Hemodialysis Patients Compared With Renal Transplant Patients

Caregiver Burden, Anxiety, Depression, and Sleep Quality Differences in Caregivers of Hemodialysis Patients Compared With Renal Transplant Patients

Psychosocial Factors in End-Stage Kidney Disease Patients at a Tertiary Hospital in Australia

Chronic renal failure: assessing the Fatigue Severity Scale for use among caregivers

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