Family caregiver use and value of support services in the VA Program of
                        Comprehensive Assistance for Family Caregivers

Sperber, Nina; Houtven, Courtney Harold Van; Andrews, Sara; Miller, Katherine; Wieland, G. Darryl; Smith, Valerie A.; Lindquist, Jennifer H.; Shepherd‐Banigan, Megan; Campbell-Kotler, Margaret; Henius, Jennifer; Kabat, Margaret

doi:10.31389/jltc.4

Cited by 22 publications

(20 citation statements)

References 12 publications

(18 reference statements)

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“…Previous studies have evaluated the utilization of and effect of specific services within CSP, including the Building Better Caregivers™ program and the caregiver support line, on caregiver well-being and veteran health care utilization (Griffin et al, 2017; Lorig et al, 2017; Wright, Malcolm, Hicken, & Rupper, 2015). The goal of this study—part of a larger partnered evaluation of the VA CSP called the VA Caregiver Evaluation Center (VA CARES)—was to identify how PGCSS caregivers value and use the array of program services offered (see Supplementary Material); an evaluation of the PCAFC is described in a separate paper (Sperber et al, 2018). Information from this evaluation about use and value of program services from the caregiver’s perspective can help identify how this and other programs can best support caregivers, both within the VA and in civilian contexts.…”

Section: Introductionmentioning

confidence: 99%

Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

et al. 2019

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Development and evaluation of supportive caregiver interventions has become a national priority. This study’s aim was to evaluate how caregivers participating in the Department of Veterans Affairs (VA) Caregiver Support Program (CSP) use and value supportive services. Qualitative semi-structured interviews ( N = 50 caregivers) were the core of a mixed-methods design, and surveys ( N = 160) were supplemental. Caregivers who had used CSP services valued emotional, functional, and health care navigational support, calling support groups and the program coordinator their “lifeline.” However, many described a lack of connection with the program—not knowing about or successfully engaging in program services—and needed more information about available resources. Caregivers in rural areas or caring for individuals with specific diseases reported needing tailored services to meet their unique needs. Policy makers and practitioners should proactively promote supportive services for caregivers. Future research should explore strategies for reducing barriers to accessing tailored support to meet the needs of a diverse caregiver population.

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Section: Introductionmentioning

confidence: 99%

Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

et al. 2019

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“…5 Without formal recognition, patients' caregivers will continue to be inconsistently identified by health care systems, engendering communication gaps between caregivers and providers and difficulty connecting patients with supportive services. [6][7][8][9][10][11][12][13][14][15][16] Over the past twenty years in the US, states and health systems have implemented policies to support caregivers. [17][18][19] The Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act of 2018, which requires the Department of Health and Human Services (HHS) to delineate a national strategy for recognizing and supporting family caregivers, has potential to effect widespread change.…”

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confidence: 99%

Including Family Caregivers In Seriously Ill Veterans’ Care: A Mixed-Methods Study

Sperber

Boucher

Delgado³

et al. 2019

Health Affairs

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Family caregivers often serve as unpaid members of the home and community-based care workforce for people with serious illness; as key partners in the home-clinic continuum, they should be included in health care teams. The Campaign for Inclusive Care is an initiative within the Veterans Affairs health care system to improve provider practices for including caregivers of military members in treatment planning and decisions. We defined inclusive care using a literature review, provider interviews, and a caregiver survey. We found that inclusive care involves clear definition of the caregiver role, system policies for inclusion, assessment of caregivers' capacity, explicit involvement of caregivers, and mutuality in caregiver-provider communication. We recommend solutions based on this definition that can inform development of a national caregiver strategy, required of the Department of Health and Human Services by the Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2018.

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“…Previous study mentioned that home care is also strengthened by caregiver empowerment 20 as well as family as internal caregivers. 21 , 22 …”

Section: Discussionmentioning

confidence: 99%

Effectiveness of home care intervention on family ability to do caregiving at home and increase the independence among elderly with dementia

Sya’diyah

Nursalam

Mahmudah

et al. 2022

Journal of Public Health Research

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Background: Dementia had effect on the dependence status of the elderly. Living in family can increase independence among elderly. The purpose of the study was to determine the effectiveness of home care intervention on the family’s ability to conduct caregiving at home as well as the independence of the elderly with dementia. Also, to determine the effect of family ability to conduct caregiving at home on the independence of the elderly with dementia. Design and Methods: This study used quasi-experimental with cross-sectional design. The sample size was 40 respondents into two groups and it was selected using simple random technique. Data were collected from January to June 2021. The intervention group received home care intervention, and the control group did not receive any treatment. The outcome was measured using questionnaire and analyzed using paired t-test and linear regression test. Results: This study showed that home care intervention is effective in improving the family’s ability to do home care ( p value <0.05) as well as the independence of the elderly with dementia ( p value <0.05). In addition, the ability of family to conduct caregiving at home had effect on the independence of the elderly with dementia ( p value <0.05). Conclusion: The home care intervention was effective in improving family ability and independence of elderly with dementia. This intervention was developed based on caregiver empowerment. It can be the guideline of family to conduct home care.

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Family caregiver use and value of support services in the VA Program of Comprehensive Assistance for Family Caregivers

Cited by 22 publications

References 12 publications

Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

Including Family Caregivers In Seriously Ill Veterans’ Care: A Mixed-Methods Study

Effectiveness of home care intervention on family ability to do caregiving at home and increase the independence among elderly with dementia

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