Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder

Irazábal, Marcia; Marsà, Ferrán; García, M.a Dolores Gutiérrez; Gutiérrez-Recacha, Pedro; Martorell, Almudena; Salvador‐Carulla, Luis; Ochoa, Susana

doi:10.1016/j.ridd.2011.12.002

Cited by 52 publications

(30 citation statements)

References 49 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…To fully address the consequences of a condition, it is important to know the functional difficulties that exist, beyond receiving a clinical diagnosis (Lollar, Hartzell, & Evans, 2012). Parents caring for persons with ID consider the psychiatric or behavioral problems of their child to be an extra burden (Irazabal et al, 2012; Maes, Broekman, Dosen, & Nauts, 2003; Martorell, Gutierrez-Recacha, Irazabal, Marsa, & Garcia, 2011). The numbers of co-occurring conditions and problem behaviors such as irritability have been shown to be major contributors of family impact of FXS (Bailey et al, 2012; Ouyang et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

Ouyang

Grosse

Riley

et al. 2014

Research in Developmental Disabilities

View full text Add to dashboard Cite

This study compares the family financial and employment impacts of having a child with fragile X syndrome (FXS), autism spectrum disorder (ASD), or intellectual disabilities (ID). Data from a 2011 national survey of families of children with FXS were matched with data from the National Survey of Children with Special Health Care Needs 2009–2010 to form four analytic groups: children with FXS (n = 189), children with special health care needs with ASD only (n = 185), ID only (n = 177), or both ASD and ID (n = 178). Comparable percentages of parents of children with FXS (60%) and parents of children with both ASD and ID (52%) reported that their families experienced a financial burden as a result of the condition, both of which were higher than the percentages of parents of children with ASD only (39%) or ID only (29%). Comparable percentages of parents of children with FXS (40%) and parents of children with both ASD and ID (46%) reported quitting employment because of the condition, both of which were higher than the percentages of parents of children with ID only (25%) or ASD only (25%). In multivariate analyses controlling for cooccurring conditions and functional difficulties and stratified by age, adjusted odds ratios for the FXS group aged 12–17 years were significantly elevated for financial burden (2.73, 95% CI 1.29–5.77), quitting employment (2.58, 95% CI 1.18–5.65) and reduced hours of work (4.34, 95% CI 2.08–9.06) relative to children with ASD only. Among children aged 5–11 years, the adjusted odds ratios for the FXS group were elevated but statistically insignificant for financial burden (1.63, 95% CI 0.85–3.14) and reducing hours of work (1.34, 95% CI 0.68–2.63) relative to children with ASD only. Regardless of condition, cooccurring anxiety or seizures, limits in thinking, reasoning, or learning ability, and more irritability were significantly associated with more caregiver financial and employment impacts. Proper management of anxiety or seizures and functional difficulties of children with FXS or other developmental disabilities may be important in alleviating adverse family caregiver impacts.

show abstract

Section: Introductionmentioning

confidence: 99%

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

Ouyang

Grosse

Riley

et al. 2014

Research in Developmental Disabilities

View full text Add to dashboard Cite

show abstract

“…Case reports detailing successful group and individual interventions for people with ID and SSDs have been published (Allott et al 2013;Hurley 2012;Crowley et al 2008) but interventions have not been systematically evaluated and robust evidence of their effectiveness and acceptability is lacking Psychosis co-occurring with intellectual disability confers additional carer burden (Irazábal et al 2012) and efforts should be made to involve and support family carers (National Institute for Health and Care Excellence 2014). Research in the mainstream population has consistently demonstrated the effectiveness of family therapy in improving several aspects of the condition including frequency of relapse and number of admissions to hospital (Pharoah et al 2010).…”

Section: Non-pharmacological Treatmentmentioning

confidence: 99%

Schizophrenia spectrum disorders

Sheehan¹,

Fodor-Wynne²,

Hassiotis³

2015

Psychiatric and Behavioral Disorders in Intellectual and Developmental Disabilities

View full text Add to dashboard Cite

“…2 This shows the impact of CP on the personal, medical, and socioeconomic burden of the society. 3 The major clinical symptoms are motor and posture dysfunction, often accompanied by impairments in speech, cognition, hearing, and vision and epilepsy, secondary muscle contraction, and deformity of limbs. Comorbidities such as seizures, mental retardation, auditory visual impairments, and language and speech disorders often coexist.…”

Section: Introductionmentioning

confidence: 99%

Clinical neurorestorative progresses in cerebral palsy

Sharma¹,

Geng²,

Sane³

et al. 2017

View full text Add to dashboard Cite

Cerebral palsy (CP), group of permanent nonprogressive clinical disorders in children, is caused by damage to the immature brain. Conventionally available treatments for CP are mainly targeted toward management of its symptoms. With the upcoming field of neurorestorative strategies, we are now able to repair the core brain damage in CP. There are various drugs, stem cells, etc, which have been implicated to have neurorestorative properties. Autologous bone marrow stem cells, umbilical cord stem cells, neural stem cells, and olfactory ensheathing cells have shown the safety and efficacy in preliminary studies. Here, we review the different medicines and cell types that have shown beneficial effects in clinical studies. We propose that combination strategies may be the future of neurorestoration.

show abstract

Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder

Cited by 52 publications

References 49 publications

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

Schizophrenia spectrum disorders

Clinical neurorestorative progresses in cerebral palsy

Contact Info

Product

Resources

About