Family Burden, Participation in Care and Mental Health - an 11-Year Comparison of the Situation of Relatives To Compulsorily and Voluntarily Admitted Patients

Östman, Margareta; Hansson, Lars; Andersson, Kristina

doi:10.1177/002076400004600305

Cited by 51 publications

(39 citation statements)

References 16 publications

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“…This places more responsibility on families for whom support is detrimental [1], possibly leading to added burden [2]. Caregivers' Quality of Life (QoL) is strongly affected by physical, emotional and economic distress due to unfulfilled needs related to being a caregiver of patients with schizophrenia [3].…”

Section: Introductionmentioning

confidence: 99%

Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

Stjernswärd¹,

Hansson²

2013

OJMP

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Background: Web based modalities should be explored to support families living with mental illness. A web based tool including a psychoeducative module, a diary and a password protected forum was developed aimed at relatives' of a person with schizophrenia to alleviate daily life. Aim: The aim of the present study was to explore participants' use of the web based tool with focus on the forum and its potential health and psychosocial benefits. Methods: Nineteen persons participated in this explorative open trial. The forum posts were analyzed using content analysis. Self-rating instruments assessing caregiver burden, stigma and the tool's usability were analyzed with descriptive statistics. Results: The qualitative analysis resulted in four main categories and subcategories describing relatives' situation and interaction in the forum: Caring for a Person with Schizophrenia, Crisis and Care, Secrecy vs Openness, and Interaction and Social Support. Experiences of caregiver burden, but also fulfillment with caregiving tasks were reported. Concealing or hiding the family's mental illness was common, but also the ability to use inner strength to cope with stigma and discrimination. The mean usability score was 59 (70 = good). Conclusion: Web based support can help address some of the families' needs of support, although it encompasses certain limitations. Patient rights and the availability of resources, especially in cases of emergency, need to be made easily visible and accessible to alleviate families' burden.

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Section: Introductionmentioning

confidence: 99%

Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

Stjernswärd¹,

Hansson²

2013

OJMP

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“…In mental health care informal care is also very important. Because of the policy of deinstitutionalization in this sector family members have to take on more caring tasks than before [3][4][5][6][7][8][9]. They can assist in the diagnostic process and take on several caring tasks [5,[10][11][12][13][14].…”

Section: Introductionmentioning

confidence: 99%

The relationship between mental health workers and family members

Bovenkamp

Trappenburg

2010

Patient Education and Counseling

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“…Studies demonstrate that families' daily structure is significantly disorganized because they have to face mental patients' constant mood swings and behavior (11)(12) . Family members often face difficulties to understand a different behavior and try to normalize the strange as closely as possible to common sense, which can often hamper care maintenance.…”

Section: Discussionmentioning

confidence: 99%

O cuidado em saúde mental na atualidade

Cardoso

Galera

2011

Rev. esc. enferm. USP

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Portuguese / English: www.scielo.br/reeusp RESUMO O objetivo desse trabalho foi identificar as características sócio-demográficas dos cuidadores de pessoas que tiveram alta hospitalar de internação psiquiátrica. Foi realizado um estudo quantitativo exploratório em um serviço ambulatorial de saúde mental. A amostra foi composta por pacientes egressos de internação e seus cuidadores. Foi utilizado um questionário e a pesquisa foi aprovada pelo CEP. De 48 pacientes egressos 21 possuíam um cuidador. Todos os cuidadores identificados eram familiares dos pacientes e a idade média foi de 46,6 anos. As mães eram as principais cuidadoras em 38% dos casos. Casados ou amasiados representaram 61,9% dos cuidadores e apenas um cuidador não tinha filhos. A principal fonte de renda foi trabalho eventual para 28,6%. Conhecer quem são os cuidadores dos pacientes egressos de internação psiquiátrica, hoje, possibilita identificar características que podem fomentar a determinação do melhor tratamento e suporte profissional ao cuidado dessa clientela. DESCRITORES ABSTRACTThe objective of this study was to identify the sociodemographic characteristics of caregivers to people who have been discharged from psychiatric hospitalization. A quantitative exploratory study was performed at an outpatient clinic of a mental health service. The sample consisted of patients who had been discharged and their caregivers. A questionnaire was used, and the study was approved by the local research ethics committee. Of the 48 discharged patients, 21 had a caregiver. All the identified caregivers were relatives of the patients, and their average age was 46.6 years. In 38% of cases, the patient's mother was the caregiver. In terms of marital status, 61.9% of the caregivers were married or living in common-law relationships, and only one caregiver did not have children. The main source of income for 28.6% of the participants was temporary keeping eventual jobs. By knowing who is the caregiver of a patient discharged from psychiatric hospitalization it is possible to identify the characteristics that may help to determine the best treatment and professional support for that population. DESCRIPTORS

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Family Burden, Participation in Care and Mental Health - an 11-Year Comparison of the Situation of Relatives To Compulsorily and Voluntarily Admitted Patients

Cited by 51 publications

References 16 publications

Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

The relationship between mental health workers and family members

O cuidado em saúde mental na atualidade

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