Family burden of schizophrenia and bipolar disorder: perceptions of relatives and professionals

Kt, Mueser; Webb, Christopher A.; Pfeiffer, Mary M.; Gladis, Michael; Df, Levinson

doi:10.1176/ps.47.5.507

Cited by 69 publications

(8 citation statements)

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“…Higher levels of caregiving burden for caregivers of those with bipolar disorder were considered with respect to acuity of symptoms [ 73 ] and limited clinician knowledge regarding caregiver burden in bipolar disorder [ 60 ]. However, few studies supported differentiation in caregiver burden based on diagnosis, contrasting previous literature emphasizing the association between burden, clinical, individual and caregiver characteristics [ 55 , 107 , 108 ].…”

Section: Discussionmentioning

confidence: 85%

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

et al. 2022

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Background Informal primary caregivers provide crucial supports to loved ones experiencing serious mental illnesses with profound outcomes for the caregivers themselves. A comprehensive understanding of how different serious mental illnesses change the caregiving experience may provide important insight into the ways in which caregivers can be better supported in their role. The aim of this review was to synthesize the comparative literature examining caregiver burden and psychological functioning (anxiety, depression, distress, and psychological wellbeing) between caregivers of people with schizophrenia spectrum disorders and bipolar disorder. Methods Studies were included if they compared caregivers across both diagnostic groups and used measures assessing either caregiver burden or psychological functioning of caregivers. Databases searched up until 11th of January 2022 included: Medline COMPLETE, Embase, PsycINFO and CINAHL. Reference list scans and grey literature searches across government, organisational and dissertation databases were also conducted. Results Twenty-eight studies comprising 6166 caregivers were included. Fourteen studies suggested that caregiving burden was comparable across both groups. The effects of caring on caregiver mental health and stress were comparable across both groups. However, methodological limitations were noted, including a reliance on cross-sectional studies, multiple and sometimes competing definitions of caregiving burden, variable sample sizes, and variation in measures used. Conclusion and implications The experience of providing care is multidimensional and complex. Symptoms and functional difficulties experienced by people being cared for may affect caregivers more so than diagnosis. Caregivers play a vital role in helping people with serious mental illness. Supporting caregivers by reducing their burden and improving their psychological functioning may help them to continue to provide support, and cope with, the challenges of providing care.

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Section: Discussionmentioning

confidence: 85%

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

et al. 2022

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“…Concurrent and discriminant validity were investigated in a fairly large multicenter sample. Subcategories of non affective psychiatric disorders were not considered, however it is accepted that both family burden and relatives perceived needs are associated with specific problem behaviours regardless of the psychiatric diagnosis [10,17]. We believe that the main positive aspect was that the instrument was developed in close collaboration with relatives.…”

Section: Discussionmentioning

confidence: 99%

A new self-report questionnaire called "ABC" to evaluate in a clinical practice the aid perceived from services by relatives, needs and family burden of severe mental illness

Veltro

Morosini²,

Gigantesco³

et al. 2007

Clin Pract Epidemiol Ment Health

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ObjectiveTo describe: a) a self-report questionnaire of 34 item, developed by a Family Association of Psychiatric Patients in collaboration with two psychiatrists to evaluate by key-relative in a clinical practice the perceived quality of mental health services, the needs and family burden; b) the methodology of validation.MethodsIt has been studied (a) the Face Validity by two focus groups of 10 relatives for each group, (b) the concurrent validity of family burden items comparing the ABC with QPF, a widely used questionnaire, in 6 Italian mental health centres on a sample of key-relatives, (c) the discriminant validity comparing three different samples of key-relatives of patients with psychiatric illness, Alzheimer or cancer. The internal consistency of items for assessing relatives' opinions on the quality of care has been evaluated by Chronbach' s α. The test-retest has been evaluated on a sample of 20 key-relatives.ResultsThe results indicate a fairly good performance of the questionnaire in this preliminary but almost complete phase of validation. The time to fill in it has been estimated in a 7 minutes average.ConclusionIt is possible by this self-report questionnaire to evaluate in a clinical routine setting and in a very short time three important problems for relatives and professionals: opinions and needs of relatives, and objective and subjective family burden of severe mental illness.

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“…The patient’s sex and age do not appear to have an effect on families’ overheads, although educational level may have an influence. 12 , 13 Three studies showed that about one-fifth to one-third of the members of the family reported difficulties and distant relations with the rest of the family group because of the existence of mental illness. 14 – 16 Some studies on burden have shown that caregivers of psychiatric patients are highly burdened by the task; this burden is both objective and subjective.…”

Section: Impact On Familiesmentioning

confidence: 99%

The role of family therapy in the management of schizophrenia: challenges and solutions

Caqueo-Urízar¹,

Rus-Calafell²,

Urzúa³

et al. 2015

NDT

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Family interventions for schizophrenia have been amply demonstrated to be effective and are recommended by most of the international clinical guidelines. However, their implementation in the clinical setting as well as in treatment protocols of patients with psychosis has not been fully achieved yet. With the increasing deinstitutionalization of patients, family has begun to assume the role of care performed by psychiatric hospitals, with a high emotional cost for caregivers as well as the recognition of burden experiences. Families have been the substitute in the face of the scarcity of therapeutic, occupational, and residential resources. For this reason, the viability of patients’ care by their families has become a challenge. This article aims to discuss the most important aspects of family interventions, their impact on families, and the most important challenges that need to be overcome in order to achieve well-being and recovery in both patients and caregivers.

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Family burden of schizophrenia and bipolar disorder: perceptions of relatives and professionals

Abstract: Psychiatric diagnosis may be of limited value in understanding the burden relatives experience due to specific psychiatric symptoms. Professionals are encouraged to assess the burden that is associated with specific problem behaviors regardless of psychiatric diagnosis.

Cited by 69 publications

References 0 publications

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

A new self-report questionnaire called "ABC" to evaluate in a clinical practice the aid perceived from services by relatives, needs and family burden of severe mental illness

The role of family therapy in the management of schizophrenia: challenges and solutions

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Family burden of schizophrenia and bipolar disorder: perceptions of relatives and professionals

Abstract: Psychiatric diagnosis may be of limited value in understanding the burden relatives experience due to specific psychiatric symptoms. Professionals are encouraged to assess the burden that is associated with specific problem behaviors regardless of psychiatric diagnosis.

Cited by 69 publications

References 0 publications

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders

A new self-report questionnaire called "ABC" to evaluate in a clinical practice the aid perceived from services by relatives, needs and family burden of severe mental illness

The role of family therapy in the management of&nbsp;schizophrenia: challenges and solutions

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The role of family therapy in the management of schizophrenia: challenges and solutions