Family burden following traumatic brain injury.

Allen, Karen N.; Linn, Richard T.; Gutiérrez, Horacio; Willer, Barry

doi:10.1037/0090-5550.39.1.29

Cited by 29 publications

(47 citation statements)

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“…However, some caregivers report positive effects including personal reward from the caregiving experience, although greater personal reward is reported by parents of TBI patients than spouses (Allen et al, 1994). Similarly, partners experience more stress than parents of brain-injured individuals (Verhaeghe et al, 2005) and this may be owing to the greater role changes adapted by spouses since parents naturally accept a 'caring' role (Lezak, 1988).…”

Section: Positive Effects and Relationship To Patientmentioning

confidence: 99%

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Caregiver stress in traumatic brain injury

Blake

2008

International Journal of Therapy and Rehabilitation

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Aims: Many patients experience physical, behavioural, cognitive and emotional problems following traumatic brain injury (TBI). They may require continuing care for many years, most of which is provided by informal caregivers, such as spouses, parents, or other family members. The caregiving role is associated with a range of adverse effects including anxiety, depression, poor physical health and lowered quality of life. This article explores issues around caregiver stress; highlighting interventions for this group and areas for further research. Methods:Literature exploring the impact of caregiving, its influencing and alleviating factors and interventions for caregivers of people with TBI is discussed, with brief critical analysis of key studies. Findings:Research suggests that caregiver characteristics, coping strategies, their appraisal of the situation and social networks may be associated with the amount of distress experienced. Many caregivers have unmet needs such as respite care and information provision on TBI. Providing information may help to alleviate strain.Community-based family therapies providing education, support and counselling can help to decrease distress and improve aspects of family functioning, although evidence for these is lacking. Conclusions:There is a need for more well-designed, controlled studies evaluating the impact of interventions to alleviate caregiver strain.

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Section: Positive Effects and Relationship To Patientmentioning

confidence: 99%

“…In the long-term, cognitive and behavioural problems in the brain-injured person are more likely to be associated with high levels of strain for the family than problems with physical function (Thomsen, 1984;Allen et al, 1994;Watanabe et al, 2000).…”

Section: Level Of Behavioural and Cognitive Changementioning

confidence: 99%

Caregiver stress in traumatic brain injury

Blake

2008

International Journal of Therapy and Rehabilitation

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“…For the purposes of this study, the term communication-debilitating illness or injury, or CDI, is used to broadly identify a chronic condition yielding an incapacity to use language in a standard manner, and almost exclusively 1 describes the loss of an ability that existed prior to the onset of the illness or condition, or prior to the occurrence of the injury. A variety of illnesses and injuries can result in impaired communication, including, but certainly not limited to, stroke (Sundin, Jansson, & Norberg, 2000;, multiple sclerosis (Pring, 1999), Alzheimer's disease (Williamson & Schulz, 1990), and traumatic brain injury (Allen, Linn, Gutierrez, & Willer, 1994). …”

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confidence: 99%

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Bute

Donovan-Kicken

Martins

2007

Health Communication

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A communication-debilitating illness or injury (CDI) presents significant challenges for patients as well as for friends and family. In a qualitative study of the effects of a CDI on close relationships, twenty-eight individuals with loved ones who had experienced a CDI were It's cruel that this was a person who was a great communicator. This was her forte and to watch that being robbed…it would have been better if she would have died or been blinded or deafened because this seems to be the cruelest hit. -Rachel, whose mother had a stroke.This comment from Rachel is indicative of the impact that serious health conditions can have on people's interpersonal relationships. More specifically, it provides a glimpse of what it is like to know and care about someone who has lost certain fundamental communication abilities.The theories and definitions that guide our understanding of interpersonal communication and interpersonal relationships assume that when people interact, they are capable of exchanging messages. Although communication skills may vary from person to person, the basic ability to express, receive, and process information is taken for granted as fundamental to relationships, especially close ones. Communication is what helps people to perform relationships (Burleson, Metts, & Kirch, 2000). But how are relationships maintained when communication abilities are lacking? Sometimes a person's ability to communicate is damaged or destroyed, such as in the case of certain injuries and chronic illnesses that involve physical or cognitive disabilities. With a few notable exceptions (Baxter, Braithwaite, Golish & Olson, 2002;Kemper, Lyons & Anagnopoulos, 1995;Orange, Ven Gennep, Miller, & Johnson, 1998) CDI: Communication-Debilitating Illness or InjuryThe sometimes sudden onset of a chronic condition can be a great disruption to everyday life, and a tremendous source of anxiety for the patient as well as his or her friends and family (Bury, 1982). The disruption of chronic illness can be further exacerbated when the condition involves a communication disability. The focus of this investigation is on relationships in the context of communication impairment, so our interest is in conditions that, regardless of other symptoms or trajectories, are characterized by a patient's altered ability to communicate. For the purposes of this study, the term communication-debilitating illness or injury, or CDI, is used to broadly identify a chronic condition yielding an incapacity to use language in a standard manner, and almost exclusively 1 describes the loss of an ability that existed prior to the onset of the illness or condition, or prior to the occurrence of the injury. A variety of illnesses and injuries can result in impaired communication, including, but certainly not limited to, stroke (Sundin, Jansson, & Norberg, 2000;, multiple sclerosis (Pring, 1999), Alzheimer's disease (Williamson & Schulz, 1990), and traumatic brain injury (Allen, Linn, Gutierrez, & Willer, 1994). Relationships and Chronic IllnessIn gene...

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“…By language, we mean a system of symbols that is governed by syntax, phonology, semantics, and pragmatics, and by communication, we mean the verbal and nonverbal exchange of symbols in order to create meaning and achieve goals (Bradac & Giles, 2005;Canary, Cody, & Manusov, 2000). A person's communication could be affected by a variety of conditions, for example, stroke (Sundin, Jansson, & Norberg, 2000), multiple sclerosis (Pring, 1999), Alzheimer's disease (Williamson & Schulz, 1990), and traumatic brain injury (Allen, Linn, Gutierrez, & Willer, 1994). Communication impairments and language disorders can range from slightly slurred words and occasional memory lapses to being "locked in" (i.e., able to construct lucid thoughts but unable to communicate them by mouth) to suddenly being incapable of reading simple sentences.…”

Section: Communication-debilitating Illness or Injurymentioning

confidence: 99%

Uncertainty of Social Network Members in the Case of Communication-Debilitating Illness or Injury

Donovan-Kicken

Bute

2008

Qual Health Res

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Uncertainty is a consequential aspect of chronic illness for patients as well as their family and friends, yet little research has focused on how non-ill individuals experience uncertainty about the condition of someone in their social network. Thirty-one individuals with loved ones who had a communication-debilitating illness or injury (CDI) participated in one-on-one interviews about their experiences. We analyzed transcripts for participants' sources of uncertainty and for ways that they managed the uncertainty. Participants' experiences with uncertainty included questions about the condition itself and involved the impaired communication resulting from the CDI. Participants described managing uncertainty through information seeking, changing the ways they communicated with the person with the CDI, and creating schemata to help reduce uncertainty. We discuss the findings in terms of predominant conceptualizations of uncertainty in illness and address the prevalence of communication as both a significant source of uncertainty and an important means of managing uncertainty.

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Family burden following traumatic brain injury.

Cited by 29 publications

References 0 publications

Caregiver stress in traumatic brain injury

Caregiver stress in traumatic brain injury

Effects of Communication-Debilitating Illnesses and Injuries on Close Relationships: A Relational Maintenance Perspective

Uncertainty of Social Network Members in the Case of Communication-Debilitating Illness or Injury

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