Family burden and functional assessment in the Swedish CLIPS-study: do staff and relatives agree on individuals with psychotic disorders’ functional status?

Hjärthag, Fredrik; Helldin, Lars; Olsson, Anna-Karin; Norlander, Torsten

doi:10.1007/s00127-011-0358-8

Cited by 7 publications

(2 citation statements)

References 37 publications

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“…Such an interpretation is supported by previous research showing that increased burden is specifically related to caring for a relative who has a limited ability to participate in everyday life (Hjärthag et al . ).…”

Section: Discussionmentioning

confidence: 97%

Mental health professionals’ views of the parents of patients with psychotic disorders: a participant observation study

Strand

Olin

Tidefors

2014

Health Soc Care Community

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As a consequence of the deinstitutionalisation of mental health services, family members have become an important part of the care system. However, little is known about mental health professionals' perceptions of these family members. The aim of this study was to explore professionals' views of one particular group, the parents of patients with psychotic disorders. Because sensitive issues such as professionals' perceptions of parents can be difficult to capture via interviews or self-report instruments, we conducted participant observation of 20 multi-professional team meetings. The observations were carried out during 2011 at a psychiatric care unit specialised in working with patients with psychosis. Approximately 10 inpatients and outpatients were discussed in each team meeting. All conversations about the patients' parents were documented with field notes that were later analysed using inductive thematic analysis. Through the analysis, a complex and multi-faceted image emerged of parents as seen by mental health professionals. Some parents were described as a helpful resource, but others were thought to hinder treatment. Conflicts between staff members and parents were commonly due to their differing views on the treatment, particularly the medical treatment, of the patient. Other parents were described as causing the patient emotional pain and some parents were perceived as neglectful or abusive. These findings highlight the crucial role mental health professionals play in identifying families' particular needs and capacities to provide interventions that effectively address each specific situation. Professionals should also recognise families with adverse experiences and help parents fulfil their potential to become resources for their children with psychosis.

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Section: Discussionmentioning

confidence: 97%

Mental health professionals’ views of the parents of patients with psychotic disorders: a participant observation study

Strand

Olin

Tidefors

2014

Health Soc Care Community

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“…attenuated positive symptoms and/or negative symptoms) might persist and prevent the individual's functional recovery. This situation might cause stress to caregivers as they worry about their ill relative and his future, wondering about his ability to establish interpersonal relationships and function independently in everyday life [67][68][69]. Patient residual symptoms might hinder his/her total reintegration to daily tasks and responsibilities (e.g.…”

Section: Discussionmentioning

confidence: 99%

Differences by Retrospective Illness Course on Burden,Expressed Emotion, Psychological Distress and Quality of Life in Relatives of Mexican Outpatients with Psychosis: A Cross-Sectional Study

GÃÂÃÂ3mez-de-Regil¹

2017

Neuropsychiatry

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Patients' illness might also affect their relatives' psychological state. The present crosssectional study aimed at assessing the levels of burden, expressed emotion, psychological distress and quality of life in a sample of relatives of Mexican outpatients with psychosis and the possible effect of illness course assessed retrospectively. Sample included 65 participants: 73.8% female; mean age of 48.7 years. Relatives self-responded the following scales: the Caregiver Burden Interview, the Family Questionnaire, the WHOQOL-BREF and the GHQ-28. Mean scores were compared by groups according to the retrospective illness course of patients (diagnosis, residual symptoms, relapses) with one tailed Mann-Whitney tests. Levels of burden, expressed emotion, psychological distress, and poor quality of life were low, significantly related and particularly influenced by patient residual symptoms. It is important to involve relatives not only as care providers but also as individuals whose psychological well-being is at risk, particularly when their ill relative present residual symptoms.

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Psychometric properties of a performance-based measurement of functional capacity, the UCSD Performance-based Skills Assessment - Brief version

Olsson

Helldin

Hjärthag

et al. 2012

Psychiatry Research

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Family burden and functional assessment in the Swedish CLIPS-study: do staff and relatives agree on individuals with psychotic disorders’ functional status?

Cited by 7 publications

References 37 publications

Mental health professionals’ views of the parents of patients with psychotic disorders: a participant observation study

Mental health professionals’ views of the parents of patients with psychotic disorders: a participant observation study

Differences by Retrospective Illness Course on Burden,Expressed Emotion, Psychological Distress and Quality of Life in Relatives of Mexican Outpatients with Psychosis: A Cross-Sectional Study

Psychometric properties of a performance-based measurement of functional capacity, the UCSD Performance-based Skills Assessment - Brief version

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