Family Attitudes toward Deinstitutionalization

Latib, Aysha; Conroy, James W.; Hess, Carla M.

doi:10.1016/s0074-7750(08)60250-5

Cited by 8 publications

(4 citation statements)

References 10 publications

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“…Nonetheless, while the welfare of people with intellectual disability remains paramount, their rights must be protected. The opinions and feelings of relatives whose lives are ‘intimately intertwined’ with those of service users also deserve consideration (Latib et al. 1984) and must not be overlooked.…”

Section: Discussionmentioning

confidence: 85%

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Families’ views on their relatives with intellectual disability moving from a long‐stay psychiatric institution to a community‐based intellectual disability service: an Irish context

Doody¹

2011

Brit J Learn Disabil

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Accessible summary• This research explores families' perceptions of resettlement.• Clients were moved from a long-stay psychiatric institution.• To a campus-based residential setting within an intellectual disability service. SummaryThe pattern of residential services for people with intellectual disability in Ireland has seen many positive developments in recent years, with more places made available in residential homes within both community-and campus-based accommodation. This paper reports on the findings of a study which explored families' views regarding the movement of people with intellectual disability from a long-stay psychiatric institution to campus-based accommodation within a local intellectual disability service. A Husserlian phenomenology was chosen, ethical approval was granted, eleven participants were interviewed and data transcribed. Through Colaizzi's (1978) procedural framework for data analysis two key themes were identified. The positive transition resulting from the move and the enlightened thinking that has developed as a consequence of the move. Overall, the study indicates the importance of; care and care delivery from the family's perspective, the interaction of staff with families and families knowing the staff.

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Section: Discussionmentioning

confidence: 85%

“…This concept is important as we move to a broader definition of care and accept a holistic view (O’Brien et al. 2001) acknowledging that beside every client is their family and that their lives are intertwined (Latib et al. 1984).…”

Section: Discussionmentioning

confidence: 99%

Families’ views on their relatives with intellectual disability moving from a long‐stay psychiatric institution to a community‐based intellectual disability service: an Irish context

Doody¹

2011

Brit J Learn Disabil

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“…Humour can be a source of intuitive understanding and, by ensuring the children enjoy themselves, staff can help them to manage their anxieties. Staff always bear in mind that the lives of the children are intertwined with those of their families (Latib et al 1984, Doody 2012, and involve and consult with them as much as possible. The results of the sleepover club project have exceeded all expectations.…”

Section: Practicementioning

confidence: 99%

Helping young people with asperger syndrome

O’Halloran

Doody

2013

Learning Disability Practice

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In Ireland, services for people with intellectual disabilities are increasingly being provided in community-based settings. This article discusses a project in which the social needs of children with Asperger syndrome are addressed by the formation of a local sleepover club that is regulated mainly by the children themselves. Run by a community based learning disability nursing service in County Clare, Ireland, this family-and person-centred form of care is yet to be evaluated fully, but interim outcomes indicate that it has been a success and the initiative is being extended to cover more people with intellectual disabilities in County Clare.

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“…Yet the matter of cost-quality tradeoffs is so important at the national level, particularly at a time when the pat terns of use of Title XIX funds may be altered (i.e., through some variant of a community living amend ments bill), that it demands immediate attention. Latib, Conroy, and Hess (1984) reported that the majority of families of people in institutions believe their relatives are receiving the highest quality services possible. On the other hand, the weight of empirical studies on individual growth and development supports the notion of superiority of smaller, less segregated set tings (see, for example, the review of such studies by Heal, Sigelman, & Switzky, 1980).…”

mentioning

confidence: 99%

A Matched Comparison Study of Cost-Effectiveness: Institutionalized and Deinstitutionalized People

Jones¹,

Conroy

Feinstein

et al. 1984

Journal of the Association for Persons with Severe Handicaps

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Article Descriptorsdeinstitutionalization; cost-effectiveness; community residen tial services; matched comparison; Pennhurst.Seventy people with mental retardation who had moved from a large state institution to small community living arrangements were matched with 70 people who remained at the same institution. They were matched by sex, level of retardation, years institutionalized, selfcare skills, age, and IQ. Developmental growth, opera tionally defined as adaptive behavior change using a research version of the AAMD Adaptive Behavior Scale, was measured for all people; only those people who had been deinstitutionalized demonstrated signifi cant growth. They also received more services. Subse quently, telephone surveys and other procedures were used to identify the inclusive public costs associated with the two groups. Upon comparison, the deinstitu tionalized group required less public money than the institutionalized group, although the financial burden shifted substantially from federal sources to state (and local) funding sources when people moved from the in stitution to community-based facilities. Correlates of costs in the community were explored in a preliminary way.

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Family Attitudes toward Deinstitutionalization

Cited by 8 publications

References 10 publications

Families’ views on their relatives with intellectual disability moving from a long‐stay psychiatric institution to a community‐based intellectual disability service: an Irish context

Families’ views on their relatives with intellectual disability moving from a long‐stay psychiatric institution to a community‐based intellectual disability service: an Irish context

Helping young people with asperger syndrome

A Matched Comparison Study of Cost-Effectiveness: Institutionalized and Deinstitutionalized People

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