Families’ perspectives of participation in patient care in an adult intensive care unit: A qualitative study

Wong, Pauline; Redley, Bernice; Digby, Robin; Correya, Anu; Bucknall, Tracey

doi:10.1016/j.aucc.2019.06.002

Cited by 50 publications

(50 citation statements)

References 31 publications

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“…Furthermore, the literature review is restricted to quantitative studies. Yet, several recent qualitative and mixed methods studies have been conducted that contribute substantially to a deeper understanding of how patients, their relatives, and HCPs experience treatment in an ICU, including ICU stressors (e.g., [9,[27][28][29][84][85][86][87][88][89][90][91][92][93]). These studies address to a greater extent patient preferences, the stressful experiences of relatives, as well as innovative concepts to reduce ICU stress.…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

Perceived Severity of Stressors in the Intensive Care Unit: A Systematic Review and Semi-Quantitative Analysis of the Literature on the Perspectives of Patients, Health Care Providers and Relatives

Krampe

Denke

Gülden

et al. 2021

JCM

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The aim of this study was to synthesize quantitative research that identified ranking lists of the most severe stressors of patients in the intensive care unit, as perceived by patients, relatives, and health care professionals (HCP). We conducted a systematic literature search in PubMed, MEDLINE, EMBASE, PsycInfo, CINAHL, and Cochrane Library from 1989 to 15 May 2020. Data were analyzed with descriptive and semi-quantitative methods to yield summarizing ranking lists of the most severe stressors. We synthesized the results of 42 prospective cross-sectional observational studies from different international regions. All investigations had assessed patient ratings. Thirteen studies also measured HCP ratings, and four studies included ratings of relatives. Data indicated that patients rate the severity of stressors lower than HCPs and relatives do. Out of all ranking lists, we extracted 137 stressor items that were most frequently ranked among the most severe stressors. After allocation to four domains, a group of clinical ICU experts sorted these stressors with good to excellent agreement according to their stress levels. Our results may contribute to improve HCPs’ and relatives’ understanding of patients’ perceptions of stressors in the ICU. The synthesized stressor rankings can be used for the development of new assessment instruments of stressors.

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Section: Limitations and Future Directionsmentioning

confidence: 99%

Perceived Severity of Stressors in the Intensive Care Unit: A Systematic Review and Semi-Quantitative Analysis of the Literature on the Perspectives of Patients, Health Care Providers and Relatives

Krampe

Denke

Gülden

et al. 2021

JCM

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show abstract

“…Researchers have found significant benefits when implementing PFCC in hospital settings such as increased family satisfaction in adult intensive care units (Wong et al, 2019 ). Furthermore, the Agency for Healthcare Research and Quality (AHRQ, 2011 ) encourages family engagement to improve patient care quality across settings, including primary care.…”

Section: Patient- and Family-centered Care (Pfcc): A Visionmentioning

confidence: 99%

Family-Centered Primary Care for Older Adults with Cognitive Impairment

et al. 2021

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“…[6][7][8] Previous studies report that family participation in patient care is acceptable to patients and their family members, and that families report fewer symptoms of anxiety and depression and increased satisfaction with care following participation. [9][10][11] Published guidelines for family-centred care include the provision of family support through family education programs, which show beneficial effects for ICU family members by reducing anxiety, depression, and post-traumatic stress disorder. 12 Herein lies an opportunity for families to participate in delirium prevention, detection, and management.…”

Section: Résumémentioning

confidence: 99%

“…33,34 Measures Caregiver ICU Delirium knowledge questionnaire (CIDKQ) A 21-item multiple choice (yes/no/don't know) questionnaire was used to measure family members' knowledge about ICU delirium and to assess the effect of the education provided. The CIDKQ addressed the three dimensions of delirium knowledge: risk factors (items 1-10), actions (items [11][12][13][14][15][16] and symptoms (items 17-21). The CIDKQ score ranges from 0 to 21, with a higher score indicating more ICU delirium knowledge.…”

Section: Interventionmentioning

confidence: 99%

Effectiveness of an intensive care unit family education intervention on delirium knowledge: a pre-test post-test quasi-experimental study

Krewulak

Bull

Ely

et al. 2020

Can J Anesth/J Can Anesth

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Purpose To create, validate, and refine an intensive care unit (ICU) delirium education intervention to prepare family members to partner with the ICU care team to detect delirium symptoms and prevent and manage delirium using nonpharmacological strategies. Methods In this pre-test post-test quasi-experimental study, consecutive eligible family members of critically ill patients admitted to an ICU completed an ICU Family Education Delirium intervention in two parts: 1) six-minute video on ICU delirium (risk factors, prevention/management, symptoms, communication with the ICU care team), and 2) two case vignettes to practice detecting delirium using family-administered delirium detection questionnaires (Family Confusion Assessment Method [FAM-CAM] and Sour Seven). Family members' delirium knowledge was measured before, immediately after, and two weeks following the intervention using the Caregiver ICU Delirium Knowledge Questionnaire (CIDKQ). Results Of 99 family members recruited over eight months, 81 (82%) completed the intervention and 63 (63/ 81, 78%) completed all follow-up questionnaires. Family members' delirium knowledge improved significantly following the intervention (pre-CIDKQ, 14; 95% confidence interval [CI], 13 to 15; post-CIDKQ, 17; 95% CI, 16 to 17; P \ 0.001) and was retained two weeks after the intervention (CIDKQ 16; 95% CI, 16 to 17; P\0.001).

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Families’ perspectives of participation in patient care in an adult intensive care unit: A qualitative study

Cited by 50 publications

References 31 publications

Perceived Severity of Stressors in the Intensive Care Unit: A Systematic Review and Semi-Quantitative Analysis of the Literature on the Perspectives of Patients, Health Care Providers and Relatives

Perceived Severity of Stressors in the Intensive Care Unit: A Systematic Review and Semi-Quantitative Analysis of the Literature on the Perspectives of Patients, Health Care Providers and Relatives

Family-Centered Primary Care for Older Adults with Cognitive Impairment

Effectiveness of an intensive care unit family education intervention on delirium knowledge: a pre-test post-test quasi-experimental study

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