Families of Children with Autism: A Synthesis of Family Routines Literature

Boyd, Brian A.; McCarty, Caroline Harkins; Sethi, Chetna

doi:10.1080/14427591.2014.908816

Cited by 40 publications

(38 citation statements)

References 41 publications

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“…While the differences presented in previous literature (Fiese et al .) should be acknowledged, this study uses the term ‘family routines’ to encompass the elements of rituals (i.e., meaning derived from routines). Our decision to use this terminology is similar to a previous literature review on family routines among families of children with ASD that used ‘routines’ as the overarching term due to the conceptual relatedness between the two terminologies (Boyd et al ., ).…”

Section: Introductionmentioning

confidence: 97%

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The experiences of mothers of children with autism spectrum disorder: Managing family routines and mothers’ health and wellbeing

McAuliffe

Thomas

Vaz

et al. 2018

Aus Occup Therapy J

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Background/aim Families of children with autism spectrum disorder (ASD) use family routines to provide predictability and structure to support occupational engagement of their family members. Mothers assume the major role to orchestrate occupations in constructing family routines, which may impact their health and wellbeing. However, the experiences of mothers in managing family routines and their health and wellbeing have not been the main focus in previous research. Thus, this study explored the experiences of mothers of children with ASD in managing family routines and their perceptions of the impact of family routines on their health and wellbeing. Methods An interpretive phenomenological approach was used. Twenty mothers of children with ASD, aged between 28 and 56 years, participated in semi‐structured interviews. Data were transcribed verbatim and each transcript was analysed. Results Five themes that summarise mothers’ perceptions towards health and wellbeing when managing family routines emerged: (i) Keeping on track keeping healthy; (ii) My life is busy, because I do everything for everyone else; (iii) Keeping on track all the time is tiring or frustrating; (iv) Looking after my family by looking after myself; and (v) I am not perfect and it is OK. Conclusion This study highlighted the substantial efforts required in constructing family routines that may be at the cost of mothers’ health and wellbeing. However, mothers may be able to cope with everyday demands in managing family routines by changing their perspectives. By integrating ‘me‐time’ activities in family routines, mothers may be able to support their own health and wellbeing. Mothers’ values and needs are reflected in family routines; hence, thorough understanding of family routines may be a key to support mothers’ occupational engagement.

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Section: Introductionmentioning

confidence: 97%

“…As such, family routines serve to promote healthier coping mechanism among families of children with ASD (Kapp & Brown, ). However, appropriately designing family routines to suit the unique support requirements of the child with ASD is often challenging (Boyd, Harkins McCarty & Sethi, ).…”

Section: Introductionmentioning

confidence: 99%

The experiences of mothers of children with autism spectrum disorder: Managing family routines and mothers’ health and wellbeing

McAuliffe

Thomas

Vaz

et al. 2018

Aus Occup Therapy J

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“…However, these families also desire and work towards positive mutual engagement with their children in family routines (Boyd et al . ). A systematic review on families raising children with chronic conditions (Crespo et al .…”

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confidence: 97%

“…The unpredictability associated with ASD can therefore interfere with the regularity of family routines and it is thought that this increases stress and influences parents' coping abilities (Larson 2006). However, these families also desire and work towards positive mutual engagement with their children in family routines (Boyd et al 2014). A systematic review on families raising children with chronic conditions (Crespo et al 2013) suggested that well-functioning families appear to maintain regular family routines in the midst of difficulties to provide the family with a feeling of predictability, cohesion and comfort.…”

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confidence: 99%

South African families raising children with autism spectrum disorders: relationship between family routines, cognitive appraisal and family quality of life

Schlebusch

Samuels

Dada

2016

J intellect Disabil Res

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“…Caregivers work to support their children's engagement in activities and routines within the family (e.g., Bagatell, 2016;Boyd, McCarty, & Sethi, 2014). When sensory challenges present obstacles to the child's engagement, caregivers may respond with one or more types of strategies (Dunstan & Griffiths, 2008;Little et al, 2016;Schaaf et al, 2011).…”

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confidence: 99%

Development and Pilot of the Caregiver Strategies Inventory

Kirby

Little

Schultz

et al. 2016

The American Journal of Occupational Therapy

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MeSH TERMSadaptation, psychological autism spectrum disorder caregivers perceptionChildren with autism spectrum disorder often demonstrate unusual behavioral responses to sensory stimuli (i.e., sensory features). To manage everyday activities, caregivers may implement strategies to address these features during family routines. However, investigation of specific strategies used by caregivers is limited by the lack of empirically developed measures. In this study, we describe the development and pilot results of the Caregiver Strategies Inventory (CSI), a supplement to the Sensory Experiences Questionnaire Version 3.0 (SEQ 3.0; Baranek, 2009) that measures caregivers' strategies in response to their children's sensory features. Three conceptually derived and empirically grounded strategy types were tested: cognitive-behavioral, sensory-perceptual, and avoidance.Results indicated that the CSI demonstrated good internal consistency and that strategy use was related to child age and cognition. Moreover, parent feedback after completing the CSI supported its utility and social validity. The CSI may be used alongside the SEQ 3.0 to facilitate a family-centered approach to assessment and intervention planning.

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Families of Children with Autism: A Synthesis of Family Routines Literature

Cited by 40 publications

References 41 publications

The experiences of mothers of children with autism spectrum disorder: Managing family routines and mothers’ health and wellbeing

The experiences of mothers of children with autism spectrum disorder: Managing family routines and mothers’ health and wellbeing

South African families raising children with autism spectrum disorders: relationship between family routines, cognitive appraisal and family quality of life

Development and Pilot of the Caregiver Strategies Inventory

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