Families Communicating About Health

Pecchioni, Loretta L.; Overton, Barbara Cook; Thompson, Teresa L.

doi:10.4135/9781483375366.n20

Cited by 5 publications

(2 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Based on the results of this particular study, it is necessary for healthcare providers to understand the informational and medicinal needs of patients and family members in rural settings through communication and adequate dissemination of information [ 25 ]. While there are diverse contexts for EOL, it has been has considered a taboo topic, difficult for healthcare participants to bring up and engage in conversation [ 26 ]; if family members and patients know that the EOL is approaching, they have the opportunity to have meaningful conversations that promote a good death [ 27 ]. Therefore, we were interested in narrowing the focus to bereaved family member perspectives on going through the EOL process for a loved one.…”

Section: Introductionmentioning

confidence: 99%

Still Searching: A Meta-Synthesis of a Good Death from the Bereaved Family Member Perspective

Tenzek

Depner

2017

Behavioral Sciences

View full text Add to dashboard Cite

The concept of a good death continues to receive attention in end-of-life (EOL) scholarship. We sought to continue this line of inquiry related to a good death by conducting a meta-synthesis of published qualitative research studies that examined a good death from the bereaved family member’s perspective. Results of the meta-synthesis included 14 articles with 368 participants. Based on analysis, we present a conceptual model called The Opportunity Model for Presence during the EOL Process. The model is framed in socio-cultural factors, and major themes include EOL process engagement with categories of healthcare participants, communication and practical issues. The second theme, (dis)continuity of care, includes categories of place of care, knowledge of family member dying and moment of death. Both of these themes lead to perceptions of either a good or bad death, which influences the bereavement process. We argue the main contribution of the model is the ability to identify moments throughout the interaction where family members can be present to the EOL process. Recommendations for healthcare participants, including patients, family members and clinical care providers are offered to improve the quality of experience throughout the EOL process and limitations of the study are discussed.

show abstract

Section: Introductionmentioning

confidence: 99%

Still Searching: A Meta-Synthesis of a Good Death from the Bereaved Family Member Perspective

Tenzek

Depner

2017

Behavioral Sciences

View full text Add to dashboard Cite

show abstract

“…This is often discussed in the context of doctor–patient relationships and interactions (Heritage & Maynard, 2011 ; May, 2011 ; Weiss & Lonnquist, 2015 ), thus overlooking the involvement of other key players, including companions—people who support patients and attend health‐care appointments with them. Companions’ participation is sometimes discussed as a complicating factor—‘[t]he addition of another person who has questions, needs information, and may distract from conversation with the patient’ (Pecchioni, 2014 , p. 1044). These perspectives implicitly treat companions’ participation as accessory.…”

Section: Introductionmentioning

confidence: 99%

How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations

Pino

Land

2022

Sociology Health & Illness

View full text Add to dashboard Cite

Companions are individuals who support patients and attend health-care appointments with them. Several studies characterised companions' participation in broad terms, glossing over the details of how they time and design their actions, and how patients and healthcare practitioners (HCPs) respond to them. This article aims to examine these aspects in detail by using conversation analysis, focusing on actions whereby companions speak on patients' behalf-mentioning delicate aspects of patients' experience (specifically, by alluding to patients' thoughts or feelings about dying). Some studies suggested that these actions undermine patients' autonomy. By contrast, through examination of palliative care consultations in a UK hospice, we found that these interventions are warranted by contextual circumstances: they are either invited by patients or HCPs (through questions or gaze) or volunteered to help with the progression of an activity (e.g. when a patient does not answer an HCP's question). Additionally, all parties collaborate in constructing these companion interventions as temporary departures from an otherwise prevailing normative orientation to patients' right to speak

show abstract

We-Caring: Searching for Online Health Information by Italian Families

Cioni

Lovari

Tronu

2016

Health Communication

View full text Add to dashboard Cite

Using data collected by the Italian National Institute of Statistics on 19,000 Italian adults who had accessed the Internet in 2013, our study investigates the interaction between online health information-seeking behaviors and family obligations among household members. The study presents a detailed picture of the likelihood of online health information searching according to health status and gendered family roles. Findings of binomial logistic regression models highlight that family obligations per se influence the probability of searching, regardless of the health of the seeker and that of family members. Illness, whether affecting the seeker or other individuals within the family network, proves to be another trigger for online health information seeking. Directions for future research and practical implications for public health organizations are discussed.

show abstract

Families Communicating About Health

Cited by 5 publications

References 0 publications

Still Searching: A Meta-Synthesis of a Good Death from the Bereaved Family Member Perspective

Still Searching: A Meta-Synthesis of a Good Death from the Bereaved Family Member Perspective

How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations

We-Caring: Searching for Online Health Information by Italian Families

Contact Info

Product

Resources

About