Families Child Downs Syndrome

Byrne, Elizabeth; Cunningham, Cliff

doi:10.4324/9780203206041

Cited by 81 publications

(43 citation statements)

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“…Parents' descriptions of these experiences suggest that they were invaluable in terms of offering support, advice and a chance to meet with others who really understand. These findings are consistent with studies that have examined the benefits of mutual support groups for parents of children with disabilities (Byrne, Cunningham, & Sloper, 1988;Solomon, Pistrang, & Barker, 2001). Facilitating opportunities for mutual support amongst parents of children with eating disorders, whether through organizing a parent support group, providing a telephone list of parents willing to exchange numbers, or linking people into already existing support systems, could be a simple but vital adjunct to treatment.…”

Section: Discussionsupporting

confidence: 75%

Childhood onset anorexia nervosa: the experience of parents

Cottee-Lane¹,

Pistrang

Bryant‐Waugh

2004

Euro Eating Disorders Rev

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This qualitative study examined the experience of parents who had a child with early onset anorexia nervosa. Semi-structured interviews were conducted with 11 parents (seven mothers and four fathers). Qualitative data analysis yielded eight core themes structured around three broad domains: understanding the eating disorder, the impact of the eating disorder, and managing the eating disorder and its impact. The themes revealed that the experience of having a child with anorexia nervosa is extremely demanding and personally challenging for parents. Despite this, parents remained determined to help their child in the face of this debilitating condition. The implications for the delivery of services for children and adolescents with eating disorders and their families are discussed.

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Section: Discussionsupporting

confidence: 75%

Childhood onset anorexia nervosa: the experience of parents

Cottee-Lane¹,

Pistrang

Bryant‐Waugh

2004

Euro Eating Disorders Rev

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“…Siblings can be an important source of support to each other throughout life. Numerous researchers have found that the relationship between children with disabilities and their siblings is usually very positive [Graliker et al, 1962;Carr, 1973Carr, , 1985Gath, 1973;McHale et al, 1986;Abramovitch et al, 1987;Stoneman et al, 1987Stoneman et al, , 1989Byrne et al, 1988;McHale and Gamble, 1989;Bägenholm and Gillberg, 1991;Brody et al, 1991;Roeyers and Mycke, 1995;Fisman et al, 1996]. This has been found from early childhood through adolescence.…”

Section: Development Of Warm Positive Sibling Relationshipsmentioning

confidence: 70%

“…Siblings of children with severe disabilities have reported that they have fun playing with their siblings, feel strong loyalty, interact with their siblings on a daily basis, and are aware of the children's activities and developmental gains [Wilson et al, 1989]. Carr [1995] and Byrne et al [1988] found that the quality of relationships between children with Down syndrome and their siblings grew more positive over the period of childhood.…”

Section: Development Of Warm Positive Sibling Relationshipsmentioning

confidence: 99%

Supporting positive sibling relationships during childhood

Stoneman

2001

Ment. Retard. Dev. Disabil. Res. Rev.

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This paper reviews the research literature focusing on the interpersonal relationships between siblings when one child has a disability. Descriptive findings are presented that compare and contrast sibling warmth and positivity, engagement, and conflict in sibling pairs with and without a child with a disability. The social roles assumed by siblings are examined, as are developmental changes in role relationships. Research on the development of the sibling relationship in the family context is reviewed, as are findings concerning the effects of parent differential attention on the quality of the sibling relationship. MRDD Research Reviews 7:134-142, 2001.

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“…To a lesser degree, support was also provided by speech-language therapists, pediatricians, family members, another mother with an infant with Down syndrome, and an occupational therapist. The participants in general received support from a combination of professionals and non-professionals which is regarded as a positive intervention option by Byrne, Cunningham and Sloper (1988). Mothers with infants with Down syndrome have a unique advantage over professionals since they have firsthand experience of feeding problems, and are able to share concerns, advice and emotional support with another mother in a similar situation.…”

Section: Support Received During the Infants' Feeding Problemsmentioning

confidence: 99%

Parental experiences of feeding problems in their infants with Down syndrome

Lewis¹,

Kritzinger²

2004

Downs Syndr. Res. Pract.

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-Although feeding difficulties in infants with Down syndrome are described in the literature, the experiences of parents regarding the feeding problems of their infants are largely omitted. In order to promote closer collaboration with families and speech-language therapists in early communication intervention, the study investigated some experiences of a group of parents concerning the feeding problems of their infants with Down syndrome. A descriptive survey approach was implemented to collect quantitative data. The results revealed the type of feeding problems and associated conditions occurring in the infants of the twenty participants; the type of feeding methods used; the assistance received during the feeding problems; the emotions experienced in relation to the feeding problems in their infants as well as suggestions made by the participants regarding the management of early feeding problems. Numerous feeding problems occurred in the infants and the variety of emotions experienced by the participants indicated that feeding therapy and counseling were required. As a result of the different conditions underlying the feeding problems of the participants' infants, a comprehensive approach, which included therapeutic and medical intervention, was necessary. In order to provide effective early communication intervention services from birth, the results indicated that the knowledge, skills and sensitivity of speech language therapists to identify caregiver needs, to provide appropriate family-focused intervention and to make recommendations regarding the management of feeding problems in infants with Down syndrome is of great importance.

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Families Child Downs Syndrome

Cited by 81 publications

References 0 publications

Childhood onset anorexia nervosa: the experience of parents

Childhood onset anorexia nervosa: the experience of parents

Supporting positive sibling relationships during childhood

Parental experiences of feeding problems in their infants with Down syndrome

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