Fair shares? Supporting families caring for adult persons with intellectual disabilities

McConkey, Roy

doi:10.1111/j.1365-2788.2005.00697.x

Cited by 59 publications

(58 citation statements)

References 20 publications

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“…This equated to 2% per annum of those living with family caregivers, which is similar to the 2.5% figure reported by McConkey (2005) for those requiring an imminent move in Northern Ireland. Based on these data, we can predict that 1 in 50 persons living with family caregivers will present each year as urgently needing alternative placement.…”

Section: Discussionsupporting

confidence: 73%

Moving From Family Care to Residential and Supported Accommodation: National, Longitudinal Study of People With Intellectual Disabilities

McConkey

Kelly

Mannan

et al. 2011

American Journal on Intellectual and Developmental Disabilities

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A cohort of nearly 11,000 persons was traced over 8 years to determine those who had moved from family care and those who had remained. The majority (85%) continued to live with families, and, for two thirds (67%), no future move was deemed necessary. The 2 main predictors of moving were as follows: A need had been previously recorded and the family had used out-of-home respite services during the 8 years. However, just one quarter of those identified as needing to move had done so in the 8 years. Conversely, no prior indication of need had been recorded for two thirds of people who had moved in this period. The complexities of assessing need and equitably meeting demands are discussed.

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Section: Discussionsupporting

confidence: 73%

Moving From Family Care to Residential and Supported Accommodation: National, Longitudinal Study of People With Intellectual Disabilities

McConkey

Kelly

Mannan

et al. 2011

American Journal on Intellectual and Developmental Disabilities

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“…For the lives of people with intellectual disabilities, family members often continue to provide invaluable support throughout their lifespan (Chou, Lin, Chang, & Schalock 2007; Hill & Rose 2009; McConkey 2005). When attempting to understand the construct of intellectual disability in various different contexts, speaking to family members, in addition to the individual with a disability, may provide different insight about understandings of and responses to intellectual disability in society.…”

Section: Introductionmentioning

confidence: 99%

Family perceptions of intellectual disability: Understanding and support in Dar es Salaam

Aldersey

2012

Afr. j. disabil.

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When attempting to understand the construct of intellectual disability in different contexts, speaking to family members in addition to the individual with the disability may provide new insight about understandings of and responses to intellectual disability in society and may help to identify the forms of support that are available or needed to ensure the quality of life of people with disabilities. This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam. Understanding family experiences will help researchers, policy makers, non-governmental organisations, and others to identify family strengths and family support needs which can ultimately improve family quality of life and the quality of life of the member with a disability.

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“…Primarily research has focused on family characteristics related to the use of respite care (Chan & Sigafoos, 2000;Chan et al, 2001;Hoare et al,1998;McConkey, 2005;Venet & Dery, 2004). In particular it has established that the level of parental stress is a predictor in the use of respite care (Grant & Ramcharan, 2001;McGrother et al,1996).…”

Section: Overview Of Research On Respite Carementioning

confidence: 99%

Complexities in the Provision of Respite Care to Family Carers of Persons with Intellectual Disabilities

Mannan

O’Brien

McConkey³

et al. 2011

DCID

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Fair shares? Supporting families caring for adult persons with intellectual disabilities

Abstract: Services need to pay greater attention to the characteristics of family carers so as to overcome some of the present inequities in supports offered to them. Further areas for future research are identified.

Cited by 59 publications

References 20 publications

Moving From Family Care to Residential and Supported Accommodation: National, Longitudinal Study of People With Intellectual Disabilities

Moving From Family Care to Residential and Supported Accommodation: National, Longitudinal Study of People With Intellectual Disabilities

Family perceptions of intellectual disability: Understanding and support in Dar es Salaam

Complexities in the Provision of Respite Care to Family Carers of Persons with Intellectual Disabilities

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