Factors That Influence Quality of Life in Rural Children With Asthma and Their Parents

Walker, Jennifer; Winkelstein, Marilyn; Land, Cassia; Lewis-Boyér, LaPricia; Quartey, Ruth; Pham, Luu; Butz, Arlene

doi:10.1016/j.pedhc.2007.07.007

Cited by 33 publications

(31 citation statements)

References 24 publications

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“…Therefore, Walker et al (2008) carried out a study in Maryland to examine the effects of school-based training on the QOL of the parents of school-age asthmatic children. Their findings indicated that their intervention significantly improved parents' knowledge, self-reliance, self-efficacy, endurance, confidence in healthcare system, ability to communicate with healthcare professionals, and QOL (8). Although most of the previous studies indicated the effectiveness of family-centered interventions in improving family caregivers' QOL, some studies reported that these interventions had no significant effects on QOL.…”

Section: Discussionmentioning

confidence: 97%

“…Moreover, due to its chronic nature, asthma affects parents' mental health and reduces their QOL (7). Walker et al (2008) found that parents' low QOL was significantly correlated with their children's absence from work and school, activity limitations, inadequate sleep, frequent nighttime awakenings, and poor psychological health (8). Empirical evidence shows that giving care to the children who suffer from chronic illnesses takes too much time and energy from the parents and hence, parents are compelled to allocate inadequate time to themselves and consequently suffer from poor QOL (9).…”

Section: Introductionmentioning

confidence: 99%

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The Effect of Family-Centered Empowerment Model on Quality of Life Among Mothers of Asthmatic Children

et al. 2016

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Background: Asthma causes different physical, emotional, and social limitations for the afflicted children and their families and reduces their quality of life. Therefore, the quality of life in families, particularly in mothers, needs to be enhanced through strategies such as empowerment. Objectives: The aim of this study was to assess the effect of the Family-Centered Empowerment Model on quality of life among the mothers of asthmatic children. Methods: A convenience sample of 172 mothers was recruited for this quasi-experimental study. Mothers were alternately allocated either to a control group or an experimental group based on the day in which they referred to the study setting. Accordingly, mothers who referred to the setting in odd and even days of a weak were allocated respectively to the control and experimental groups. A demographic questionnaire and the pediatric asthma caregiver's quality of life questionnaire (PACQLQ) were used for data collection. The validity of the questionnaire was confirmed by a panel of experts (relevance: 0.98; clarity: 0.96; and simplicity: 0.94) while its reliability was confirmed by a Cronbach's alpha of 0.88. A four-step empowerment program was implemented for the mothers in the experimental group based on the Family-Centered Empowerment Model. The four steps included knowledge improvement, self-efficacy, self-esteem, and evaluation. Mothers in the control group received no intervention during the study. Before and after the intervention, the mothers in both groups were asked to complete the study questionnaires. The data were described and analyzed by using descriptive and inferential statistics. Results: There were no significant between-group differences regarding the mothers' demographic characteristics and their baseline quality of life scores. However, after the intervention, the scores of quality of life and its physical limitation and emotional function domains were significantly lower in the experimental group, denoting higher quality of life (P < 0.001). Conclusions: The Family-Centered Empowerment Model significantly improves quality of life among the mothers of children who suffer from asthma. Given the important role of mothers in giving care to their ill children, nurses are recommended to use the model to encourage mothers' active participation in care giving to their children.

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Section: Discussionmentioning

confidence: 97%

Section: Introductionmentioning

confidence: 99%

The Effect of Family-Centered Empowerment Model on Quality of Life Among Mothers of Asthmatic Children

et al. 2016

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“…This inconsistency in results may be due to the different methods used to measure both asthma severity (e.g., parent's perception, clinician's assessment, diary ratings of symptoms, and examination of pulmonary function) and parents' QoL, as well as to the heterogeneity of the samples in terms of participants' variability across the spectrum of asthma severity. With regard to asthma's specific QoL impairments, the majority of studies using the PACQLQ measure have found a link between lower parental QoL and asthma severity according to asthma symptoms diaries (e.g., Stelmach et al, 2011), parents' reports of symptoms (e.g., Everhart et al, 2008;Walker et al, 2008) and symptom changes (e.g., Juniper et al, 1996). When clinical parameters such as pulmonary function are considered, the results are less clear, with some studies reporting weak correlations and others reporting no association with parents' QoL.…”

Section: Factors Influencing Qol Of Parents Of Children With Asthmamentioning

confidence: 99%

“…One mechanism through which uncontrolled asthma may affect parents' QoL is via its negative influence on the parental work domain, with research showing that parents with children with uncontrolled asthma missed more days at work than parents with children with controlled asthma (Dean et al, 2009). Additionally, parents' QoL scores were negatively linked to the number of missed days at work (e.g., Walker et al, 2008).…”

Section: Factors Influencing Qol Of Parents Of Children With Asthmamentioning

confidence: 99%

Parents with Asthmatic Children, Quality of Life

Crespo¹,

Silva²

2014

Encyclopedia of Quality of Life and Well-Being Research

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SynonymsCaregivers' health-related quality of life with asthmatic children; Caregivers' quality of life with asthmatic children; Parents' health-related quality of life with asthmatic children; Parental quality of life with asthmatic children. DefinitionAsthma is the most prevalent chronic health condition in childhood. The quality of life (QoL) of asthmatic children and their parents/caregivers has been increasingly acknowledged as an important outcome in pediatric asthma health care. Although children's QoL has been the main focus of research, scholars and clinicians in the field of pediatric chronic conditions have also started to take an interest in how parents perceive their own QoL. In this relatively new area of inquiry, research has conceptualized and assessed parents' QoL in diverse ways. Consequently, scientific literature on parents' QoL is heterogeneous, and a clear or consensual definition for this construct is still elusive.Two main approaches have been developed to study the QoL of parents with children who have chronic conditions, including asthma. A generic approach has examined parents' QoL according to the universal definition provided by the World Health Organization, which is that QoL is a multidimensional construct covering the physical health, level of independence, psychological state, social relationships and interactions with the environment, as subjectively perceived by the individual embedded in a cultural context (The WHOQOL Group, 1998). A specific approach, which is applied in the majority of studies, has looked at the perceived impact of a child's disease and treatments on

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“…Studies by Cerdan, Alpert, Moonie, Cyrkiel, and Rue (2012), Silva, Crespo, Carona, and Canavarro (2015), and Walker et al (2008) also demonstrated an association between caregiver burden and caregiver QOL. Cerdan et al found that higher asthma severity in children, and the resulting increased burden of this, reflect lower PACQLQ scores and thus, lower QOL in caregivers (r = -0.34; p = 0.001).…”

Section: The Caregiver Context Of Disease: Factors Influencing Qolmentioning

confidence: 86%

Primary care management of childhood asthma: addressing caregiver quality of life using asthma action plans with preschool-aged children

Ireland¹

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As the leading chronic disease in children both worldwide and in Canada, the care and management of paediatric asthma requires a significant amount of attention within health care delivery and research.While these efforts have typically been directed at the affected children themselves, or at improving the economic burden of this disease, there is substantial literature describing the effects childhood asthma can have on caregivers and their overall quality of life (QOL). Because of the high level of caregiver dependency among young children, such as preschoolers, it is clear that this effect is amplified with asthma in this age group. Current guidelines stress the use of asthma action plans (AAPs) to improve asthma outcomes in children, however there are few studies describing whether these tools may effect caregiver QOL. The purpose of this project is to evaluate whether AAPs used in the primary care setting can contribute to improved QOL in caregivers of preschool-aged children with asthma. Using an integrative literature review approach, I conducted a thorough analysis of the literature on asthma in preschoolers, the caregiver experience of childhood asthma, the primary care management of childhood asthma, and the use of AAPs in paediatric asthma. The information obtained validates the hypothesis that AAPs are valuable tools for promoting caregiver QOL in preschool-aged asthma. I close this paper by reviewing recommendations for implementing AAPs and other interventions aimed at caregiver QOL, along with suggestions for future research on this important topic.iii

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Factors That Influence Quality of Life in Rural Children With Asthma and Their Parents

Cited by 33 publications

References 24 publications

The Effect of Family-Centered Empowerment Model on Quality of Life Among Mothers of Asthmatic Children

The Effect of Family-Centered Empowerment Model on Quality of Life Among Mothers of Asthmatic Children

Parents with Asthmatic Children, Quality of Life

Primary care management of childhood asthma: addressing caregiver quality of life using asthma action plans with preschool-aged children

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