Factors That Influence Adolescent Adaptation to Sickle Cell Disease

Burlew, Kathy

doi:10.1093/jpepsy/25.5.287

Cited by 65 publications

(66 citation statements)

References 41 publications

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“…Parents' knowledge and perceptions of SCD affect their use of emergency and routine health care 11,12 and serve as a model for self-care behaviors in youth and young adults. Therefore, family-focused programming throughout childhood is a key factor in successful youth transition.…”

Section: Emphasis On Family-centered Carementioning

confidence: 99%

Transition Planning for Youth With Sickle Cell Disease: Embedding Neuropsychological Assessment Into Comprehensive Care

et al. 2010

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OBJECTIVE: Sickle cell disease (SCD) conveys a high risk of neuropsychological impairment due to chronic anemia, hypoxemia, cerebrovascular ischemia and stroke, in addition to causing pain and other biomedical complications. Few families accessed neuropsychological testing via the traditional referral system. In this paper, we describe a successful alternative strategy for addressing cognitive and behavioral needs of youth with SCD.

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Section: Emphasis On Family-centered Carementioning

confidence: 99%

Transition Planning for Youth With Sickle Cell Disease: Embedding Neuropsychological Assessment Into Comprehensive Care

et al. 2010

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“…Psychosocial factors, rather than biomedical factors, have been shown to play a major role in adolescents' adaptability to sickle cell disorders [14]. That is, well-adapted teens have less depression and anxiety.…”

Section: Discussionmentioning

confidence: 99%

Identifying Risk for Social/Emotional Difficulty in Adolescents with Sickle Cell Disease Using the Pediatric-Symptom-Checklists

Inoue¹,

D²,

Rn³

et al. 2017

J Blood Disord Transfus

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The Pediatric Symptom Checklist (PSC) is used to screen for social/emotional difficulty in youth. It is completed by either a parent (PSC) or patient (Y-PSC). The Achenbach Child Behavior Checklist (CBCL) and Youth Self-Report (YSR) are parent-and self-completed social/emotional assessment tools that are well validated, but the less validated PSC and Y-PSC's availability, convenience, and cost are advantageous for busy clinics. Objective: We examined the appropriateness of using the PSC and Y-PSC to screen adolescents with sickle cell disease for social/ emotional difficulty. Method: Patients with sickle cell disease (n=14; 7 female; mean age ± SD= 4.1 ± 1.8) completed the Y-PSC and YSR, while their parents completed the PSC and CBCL. Rates of risk for social/emotional difficulty were compared between parent-completed forms (PSC versus CBCL), and between patient-completed forms (Y-PSC and YSR). Agreement in the presence or absence of risk was explored as well. Results: Six youth had total scores exceed cutoffs for a positive screen. Parent-completed questionnaires each identified 4 youth; the YSR and Y-PSC identified 4 and 2 respectively. However, no 2 tools identified the exact same combination of youth and no single informant or tool captured all youth with risk for social/emotional difficulty. Conclusion: Our results, though preliminary, indicate that no single informant or screening tool sufficiently captures risk for social/emotional difficulty in the adolescent sickle cell population. Instead, a multi-informant, multi-method approach to screening for social/ emotional difficulty in adolescents with sickle cell disease is encouraged until additional research can illuminate an alternative.

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“…It is widely used and has extensive psychometric data [23,32,35] . Including acceptable psychometric properties for African Americans [23,33] and youth with Sickle Cell Diseases (SCD) [34] This measure yields a total score that was used as a self-report indicator of emotional wellbeing. BDI-II [26] , broadly assesses the symptoms of depression including the affective, cognitive, behavioral, somatic and motivational components as well as suicidal wishes [27,36] reported a high internal consistency in a university population (α = 0.93).…”

Section: Beck Depression Inventory (Bdi)mentioning

confidence: 99%

The Effects of Open Heart Surgery (Coronary Bypass) on Depression and Social Adjustment of Hospitalized Heart Patients

Naderi¹,

Heideri²,

Kargarzadeh³

et al. 2009

J. of Social Sciences

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Problem statement: Post treatment preparation is critical period, as patients may have difficulties with psychosocial adjustment, especially related to dissatisfaction with side effects of medicine taking therapy and a lack of socialization skills/social competence. Different psychological issues arise for patients depending upon where they are in the medical treatment process. Approach: The current research was processed with the intention of examining and presenting the effects of open heart surgery (coronary bypass) on male and female hospitalized heart patients' depression and social adjustment in Tehran Shahid Modarress Hospital; regarding age, sex, employment and marital status The research sample particularized 118 patients (42 female and 76 male) whom were selected by simple random sampling procedure. To obtain data, Beck Depression Inventory (BDI) and Social Adjustment Scale Self-Report (SAS-SR) were implemented a couple weeks before and after surgery procedure as pretest and post test with one group. The research design was quasi-experimental. Results: Results were considered significant at p value less than to equal to 0.0001 (p≤0.0001) and revealed that: Heart surgery decreased social adjustment but had no significant impact on heart inpatients' depression. Conclusion: After treatment, it was common for patients to exhibit behavior problems, depression, poor social adaptation and/or noncompliance with the medical regimen. The psychosocial adaptation of surgery procedure can be promoted through support and counseling by one or all members of the surgery team caring for the patients and their families. This process must start during the first visit to the treatment center.

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Factors That Influence Adolescent Adaptation to Sickle Cell Disease

Abstract: Psychosocial factors proved to be better predictors of adaptation than biomedical risk factors. Additional research is needed to better understand the nature of the interrelationships among biomedical risk factors, psychosocial factors, and adaptation.

Cited by 65 publications

References 41 publications

Transition Planning for Youth With Sickle Cell Disease: Embedding Neuropsychological Assessment Into Comprehensive Care

Transition Planning for Youth With Sickle Cell Disease: Embedding Neuropsychological Assessment Into Comprehensive Care

Identifying Risk for Social/Emotional Difficulty in Adolescents with Sickle Cell Disease Using the Pediatric-Symptom-Checklists

The Effects of Open Heart Surgery (Coronary Bypass) on Depression and Social Adjustment of Hospitalized Heart Patients

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