Factors related to self‐efficacy in persons with scleroderma

Buck, Una; Poole, Janet L.; Mendelson, Cindy

doi:10.1002/msc.181

Cited by 20 publications

(19 citation statements)

References 38 publications

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“…The results from other studies on the relationship between marital status and self-management or self-efficacy are mixed. Some studies have outlined associations between being married and better self-management of various chronic diseases [32,33], whereas other studies have found higher self-efficacy among patients who were unmarried [34] or divorced [35]. Still other studies have found no association between marital status and the self-management of chronic illnesses [36,37].…”

Section: Discussionmentioning

confidence: 99%

Changing factors associated with parent activation after pediatric hematopoietic stem cell transplant

Pennarola

Rodday

Bingen

et al. 2014

Support Care Cancer

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Purpose To identify factors associated with parent activation in parents of children undergoing pediatric hematopoietic stem cell transplant (HSCT) in the 6 months following HSCT, and to address if their association with parent activation changes over time. Methods Measures for this analysis, including the Parent Patient Activation Measure (Parent-PAM), were completed by parents (N=198) prior to their child’s HSCT preparative regimen and again at 6 months post-HSCT. Clinical data were also collected. A repeated measures model was built to estimate the association between clinical and demographic factors and parent well-being on Parent-PAM scores. Interactions with time were considered to test for changing effects over time. Results Throughout the HSCT course, older parent age was associated with lower Parent-PAM scores (β=−0.29, p=0.02) and never being married was associated with higher scores (versus married, β=12.27, p=0.03). While higher parent emotional functioning scores were not associated with activation at baseline, they were important at 6 months (baseline: β=−0.002, p=0.96; interaction: β=0.14, p=0.03). At baseline longer duration of illness was associated with increased activation, but this effect diminished with time (baseline: β=3.29, p=0.0002; interaction: β=−2.40, p=0.02). Activation levels dropped for parents of children who went from private to public insurance (baseline: β=2.95, p=0.53; interaction: β=−13.82, p=0.004). Clinical events did not affect Parent-PAM scores. Conclusions Our findings reveal important changes in the factors associated with parent activation in the first 6 months after pediatric HSCT. These findings may reflect the emotional and financial toll of pediatric HSCT on parent activation.

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Section: Discussionmentioning

confidence: 99%

Changing factors associated with parent activation after pediatric hematopoietic stem cell transplant

Pennarola

Rodday

Bingen

et al. 2014

Support Care Cancer

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“…To examine convergent validity, hypotheses on the direction and magnitude of Pearson's correlations with other psychological and physical outcome measures were formulated a priori, based on existing evidence from convergent validity comparisons for the SEMCD scale in rheumatic diseases (2), and for self-efficacy, measured with a different scale, in SSc (12). Magnitude of correlations was interpreted as small (|r| #0.3), moderate (0.3 ,|r| ,0.5), or large (|r| $0.5) (13).…”

Section: Significance and Innovationsmentioning

confidence: 99%

Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Riehm

Kwakkenbos

Carrier

et al. 2016

Arthritis Care & Research

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Objective. Self-management programs for patients with chronic illnesses, including rheumatic diseases, seek to enhance self-efficacy for performing health management behaviors. No measure of self-efficacy has been validated for patients with systemic sclerosis (SSc; scleroderma). The objective of this study was to assess the validity and internal consistency reliability of the Self-Efficacy for Managing Chronic Disease (SEMCD) scale in SSc. Methods. English-speaking SSc patients enrolled in the Scleroderma Patient-centered Intervention Network Cohort who completed the SEMCD scale at their baseline assessment between March 2014 and June 2015 were included. Patients were enrolled from 21 sites in Canada, the US, and the UK. Confirmatory factor analysis (CFA) was used to evaluate the factor structure of the SEMCD scale. Cronbach's alpha was calculated to assess internal consistency reliability. Hypotheses on the direction and magnitude of Pearson's correlations with psychological and physical outcome measures were formulated and tested to examine convergent validity. Results. A total of 553 patients were included. CFA supported the single-factor structure of the SEMCD scale (Tucker Lewis Index 5 0.99, comparative fit index 5 0.99, root mean square error of approximation 5 0.10). Internal consistency was high (a 5 0.93), and correlations with measures of psychological and physical functioning were moderate to large (|r| 5 0.48-0.67, P < 0.001), confirming study hypotheses. Conclusion. Scores from the SEMCD scale are valid for measuring self-efficacy in patients with SSc, and results support using the scale as an outcome measure to evaluate the effectiveness of self-management programs in SSc.

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“…Much more than the other dimensions, personal control can be altered by patient education sessions and self-management programs. [35][36][37] Dedicated educational programs with an emphasis on the perceptions of patients, initiated by physicians, could reduce the knowledge deficit in the patients. Also, as the GP often remains the primary caregiver, it is crucial that the illness perceptions of both GP and rheumatologists are aligned.…”

Section: Discussionmentioning

confidence: 99%

Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general practitioners

et al. 2017

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ObjectiveDiscrepancies in illness representations between patients and physicians result in treatment difficulties, decreased well-being of patients and misunderstandings and disrupted communication. Hence, the objective of this study was to compare illness perceptions of individual patients with systemic lupus erythematosus (SLE) and systemic sclerosis (SSc), their rheumatologists and their general practitioners (GPs) and explore potential differences.MethodsThis study has a cross-sectional design. Patients with SLE and SSc, who were followed at the rheumatology department of the University Hospitals Leuven (Belgium), completed the revised Illness Perception Questionnaire which measures patients’ perceptions of their condition and captures nine dimensions. Physicians completed the Revised Illness Perception Questionnaire for Healthcare Professionals which consists of seven dimensions and measures perceptions of the healthcare professional regarding the disease of their patients. Intraclass correlation was performed to examine relationships between pairs of respondents; Cohen’s d was used for estimating the magnitude of the difference.ResultsQuestionnaires were sent to 284 patients of whom 241 (113 SSc and 128 SLE patients) were included. Five rheumatologists and 160 GPs participated. For both diseases, positive correlations were found for ‘consequences’, ‘illness coherence’ and ‘emotional representations’ among patients, rheumatologists and GPs. GPs scored higher on the ‘consequences’ of these diseases for the patient (d=0.71 for SLE; d=0.80 for SSc). Differences between rheumatologists and GPs were small for SSc and moderate to large for ‘consequences’ (d=0.56) and ‘timeline acute/chronic’ (d=0.95) in SLE with higher scores for GPs.ConclusionsFor both diseases and among the three groups, significant correlations are detected for the dimensions ‘consequences’, ‘illness coherence’ and ‘emotional representations’. Differences between rheumatologists and GPs were mainly detected in the case of SLE patients. This can have implications for the collaboration between these two groups of physicians in daily clinical practice.Clinical trial registrationNCT02655640; Pre-results.

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Factors related to self‐efficacy in persons with scleroderma

Cited by 20 publications

References 38 publications

Changing factors associated with parent activation after pediatric hematopoietic stem cell transplant

Changing factors associated with parent activation after pediatric hematopoietic stem cell transplant

Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general practitioners

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