Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia

Hsiao, Chiu‐Yueh; Tsai, Yun‐Fang

doi:10.1111/jocn.12745

Cited by 84 publications

(82 citation statements)

References 25 publications

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“…The study shows that families with younger patients and additional dependents experienced higher burden than their counterparts, which is consistent with most findings [29, 74, 75]. Younger patient means more demands for attention and care, as well as more life-lost productivity to the family, while additional dependents requires more investment of time and energy from caregivers on caring for multiple dependents, both will result in higher family burden.…”

Section: Discussionsupporting

confidence: 88%

“…Female caregivers were more likely to have family burden than males, which is also in accordance with the literature [74, 76, 77]. According to the World Federation of Mental Health [78], the majority of caregiving task are shouldered by women, with an estimated proportion up to 80%.…”

Section: Discussionsupporting

confidence: 85%

“…A well-functional family often means more strength and resources within family, making it less vulnerable and more resistant to the excessive stress and strains confronted by the family [74]. This result suggests that future research and programs aimed at alleviating family burden may benefit most from targeting at improving family function.…”

Section: Discussionmentioning

confidence: 99%

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Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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We aim to assess the level of family burden of schizophrenia patients and identify its predicting factors in a rural community sample of China. A sample of 327 primary caregivers was recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. Family burden was assessed using the Family Burden Interview Schedule (FBIS) of Pai and Kapur. Our results showed that the mean score of FBIS was 23.62±9.76 (range, 0–48), with over half (52%) caregivers reported their family burden being moderate and severe. Among the six domains of family burden, financial burden (76%) was the commonest burden, while disruption of family interactions (37%) was the least mentioned. A multivariate analysis of family burden revealed that patient being admitted for over 3 times, caregiver being female, having a middle school education, and with additional dependents, as well as higher care network function were positive predictors of family burden, while higher patient function and family function, and increasing patient age were negative predictors of family burden.Intervention to decrease family burden may be best served by improving family function and exploring alternative care model instead of hospitalization.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionsupporting

confidence: 85%

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Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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“…In line with expectations, greater levels of caregiver burden were In line with diathesis-stress model, our results indicate that personality traits and coping style (diathesis) influenced the relationship between caregiver burden (stress) and mental health in this sample. Regardless of extraversion/introversion personality traits, primary caregivers may feel trapped and embarrassed and avoid disclosing their concerns or seeking help (Hanzawa et al, 2010;Hsiao & Tsai, 2015). This study shows that extraversion/introversion and psychoticism personality traits have no direct effect on caregiver burden, but have a direct effect on family functioning, perhaps because psychoticism personality traits render a person self-centered, indifferent, and lacking interpersonal empathy (Eysenck, 1992).…”

Section: Discussionmentioning

confidence: 81%

“…Relatives caring for psychiatric patients revealed less satisfaction with the level of family functioning than individuals in normative families (Forozandeh & Parvin, 2013;Trangkasombat, 2006). Given the nature of family caregiving for adults in outpatient care with schizophrenia, understanding correlates of caregiver burden and family functioning may provide a direction for delivering therapeutic family-centered nursing care to meet individual and family needs in the care of adults in outpatient care with schizophrenia (Hsiao & Tsai, 2015). In China, the family members of patients with schizophrenia who perceived a higher level of caregiver burden had poorer family functioning (Chien, Chan, & Morrissey, 2007).…”

Section: Influencing Factorsmentioning

confidence: 99%

Relationship between Mental Health and Burden among Primary Caregivers of Outpatients with Schizophrenia

Chen

Ji-ze

et al. 2018

Family Process

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There is growing recognition that caring for a patient with schizophrenia often results in high levels of perceived burden and poorer overall mental health for caregivers. A quantitative cross-sectional design and standardized instruments were used to collect data from 355 primary caregivers of adults in outpatient care with schizophrenia in China. Structural equation modeling was used to examine the association between caregiver burden and mental health among primary caregivers and whether this association is influenced by personality, coping style, and family functioning, based on a diathesis-stress perspective. Goodness-of-fit indices (χ /df = 1.406, GFI = 0.919, CFI = 0.957, etc.) confirmed that the modified model fit the data well. In line with the diathesis-stress model, and with this study's hypotheses, we found that caregiver burden was significantly related to mental health outcomes directly. The final model showed that personality traits, coping style, and family function influenced the relationship between caregiver burden and mental health. The neuroticism personality traits have a direct effect on caregiver burden and family functioning in this sample. Coping style had a direct effect on the caregiver burden, and family functioning had a direct effect on the caregiver burden. Our final model about primary caregivers can be applied clinically to predict mental health outcomes from caregiver burden.

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Preliminary investigation of objective and subjective experiences of relatives of individuals with hoarding behaviors

Mayes,

Dozier,

Davidson

et al. 2024

J Clin Psychol

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ObjectiveFamilies of individuals with hoarding symptoms report substantial burden; however, there has been no investigation of potential positive experiences. The objective of this study was to examine the experiences reported by individuals with a relative with elevated hoarding symptoms using a cross‐sectional design. The current investigation expands on the literature in this area by incorporating a detailed interview of experiences in conjunction with validated measures of hoarding symptomology.MethodsTwenty‐nine adults with relatives with elevated hoarding symptoms completed self‐report measures of hoarding severity for themselves and their relative and a clinician‐administered assessment of their experiences with their family member with hoarding symptoms.ResultsParticipants endorsed significant burden across a range of areas, including permanent changes in their daily routine. The majority (93%) of participants reported at least one positive experience, with 69% endorsing companionship as a benefit of the relationship. Greater symptom severity of the relative with hoarding symptoms was associated with greater subjective burden and decreased positive experiences.ConclusionOur results add further evidence to the potential for interpersonal psychotherapy to lead to a reduction in hoarding symptomology.

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Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia

Abstract: Given the nature of family caregiving in schizophrenia, understanding of correlates of caregiver burden and family functioning would help provide useful avenues for the development of family-focused intervention in psychiatric mental health nursing practice.

Cited by 84 publications

References 25 publications

Reported family burden of schizophrenia patients in rural China

Reported family burden of schizophrenia patients in rural China

Relationship between Mental Health and Burden among Primary Caregivers of Outpatients with Schizophrenia

Preliminary investigation of objective and subjective experiences of relatives of individuals with hoarding behaviors

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