Factors influencing the quality of life of people with rheumatic disease

Abstract

Aim Several factors affect everyday life of people with chronic rheumatic illness. A systematic study has been conducted to investigate the most severe problems aggravating the quality of life of these patients, and the role of support and assistance from their family members/acquaintances. An analysis of the characteristics of economic situation influencing everyday life of a risk group of the Estonian society is also presented. Methods A national sociological survey called 'Chronic Rheumatic Patients 2006' was carried out by the Rheumatic Association of Tallinn with support from the Ministry of Social Affairs of Estonia. Data were collected from 808 respondents using a questionnaire. The quality of life data was analyzed and compared to results of the population survey 'Estonia 2008'. Results The respondents indicated their state of health and shortage of money as their most severe problems, followed by dysfunctional family relations, poor living conditions, etc. The problems were more severe for those who lived alone and had been coping with illness for over 10 years. In most cases, occasional assistance was received from family members or acquaintances to cope with daily life. On an average, every tenth respondent did not have anyone to turn to for assistance. The respondents have also reported the lack of sufficient information on the nature of the illness, effect of medication, options for obtaining assistive devices and rehabilitation. Conclusion Need for attention during the initial period of the development of the illness and to increase awareness in the society to provide better conditions for the affected are highlighted based on the results.