Factors influencing self-management in Parkinson's disease: A cross-sectional study

Lim, Kyeung Eun; Kim, Sung Reul; Sung, Young Hee; Oh, Sun Young; Kim, Mi Sun; Chung, Sun Ju

doi:10.1016/j.gerinurse.2019.10.005

Cited by 21 publications

(19 citation statements)

References 57 publications

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“…Indeed, being active has been reported as crucial for LS among people with PD [ 29 ], and low self-efficacy is a barrier for being physically active and exercise among people with PD [ 30 , 31 ]. Self-efficacy is affected by support from family, friends, and the health care system [ 32 ], and high self-efficacy is positively correlated with self-management [ 33 ]. Thus, self-management programs might be useful to increase self-efficacy and thereby potentially enhance or maintain LS.…”

Section: Discussionmentioning

confidence: 99%

Prediction of Life Satisfaction in People with Parkinson’s Disease

Jonasson

Rantakokko

Franzén

et al. 2020

Parkinson's Disease

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Introduction. People with Parkinson’s disease (PD) have lower life satisfaction (LS) than healthy peers. No study has yet identified predictors of LS in people with PD. Such information would be valuable for health care and future interventions that aim to maintain or increase LS. Aim. To examine how LS evolved in people with PD over a 3-year period, as well as to identify predictive factors of LS. Methods. We used data from baseline assessments and a 3-year follow-up of 163 people with PD (baseline, mean age 68 years; median PD duration 8 years, 35% women). LS was assessed with item 1 of the Life Satisfaction Questionnaire (LiSat-11). Dichotomized LS data from the 3-year follow-up were used as the dependent variable in multivariable logistic regression analyses. In the first step, independent variables included baseline information on sex, education, general self-efficacy, motor symptoms, perceived walking difficulties, fall-related activity avoidance, and difficulties with/need help in activities of daily living. At the second step, depressive symptoms were added as an independent variable. Results. The proportion of those who reported being satisfied with their lives reduced from 63.2% at baseline to 49.7% 3 years later (p=0.003). When depressive symptoms were not included in the analysis, general self-efficacy (odds ratio, OR = 1.081; 95% CI = 1.019–1.147) and perceived walking difficulties (OR = 0.962; 95% CI = 0.929–0.997) were significant (p<0.05) predictors of LS 3 years later. With depressive symptoms included, the influence of walking difficulties diminished, and depressive symptoms (OR = 0.730; 95% CI = 0.607–0.877) and general self-efficacy (OR = 1.074; 95% CI = 1.010–1.142) were the only significant predictors of LS 3 years later. Conclusions. LS is reduced over a 3-year period. The study suggests that perceived walking difficulties, general self-efficacy, and depressive symptoms are important predictors of LS in people with PD.

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Section: Discussionmentioning

confidence: 99%

Prediction of Life Satisfaction in People with Parkinson’s Disease

Jonasson

Rantakokko

Franzén

et al. 2020

Parkinson's Disease

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“…The GSE Scale has demonstrated satisfactory internal consistency, test-retest reliability and construct validity in people with PD in Sweden [33]. For the current study, the total score was dichotomised at a 50% cut-off into low [10][11][12][13][14][15][16][17][18][19][20][21][22][23][24][25] and high [26][27][28][29][30][31][32][33][34][35][36][37][38][39][40] GSE.…”

Section: Moderators: External Hcb and Gse At T1mentioning

confidence: 99%

“…in order to manage their housing situation [11]. General self-efficacy (GSE; i.e., beliefs in one's abilities to achieve a goal) [12] was shown to play a role in health-related outcomes; it affected physical activity and self-management in people with PD [13,14]. More specifically, lower self-efficacy was found to be a barrier for exercising [15], while higher general and balance self-efficacy were associated with more life satisfaction [16] and better walking capacity [17].…”

Section: Introductionmentioning

confidence: 99%

Longitudinal association between housing accessibility and activities of daily living: the role of self-efficacy and control in people ageing with Parkinson’s disease

et al. 2020

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Background: External housing-related control beliefs (HCB) and general self-efficacy (GSE) influence different health outcomes in the general ageing population, but there is no information of their role in people ageing with Parkinson's disease (PD). This study aimed to longitudinally assess the role of external HCB and GSE on the association between housing accessibility and activities of daily living (ADL) among people ageing with PD. Methods: Baseline and 3-year follow-up data on 130 community-living participants from the Swedish project 'Home and Health in People Ageing with PD' were collected. Assessments addressed housing accessibility, external HCB, GSE, generic ADL and ADL specific to PD. The moderating effects of external HCB and GSE were assessed by including an interaction term in multivariable logistic regression. Results: There were statistically significant interactions between housing accessibility and GSE on ADL (p = 0.03), and housing accessibility and external HCB on PD specific ADL (p = 0.03). After stratifying the analyses by GSE, housing accessibility problems led to more dependence and difficulty in ADL in participants with low GSE (OR 1.14; 95% CI 1.02-1.28). After stratifying by external HCB, housing accessibility increased dependence and difficulty in PD specific ADL in participants with low external HCB (OR 1.35; 95% CI 1.03-1.76). Discussion: The results suggest that housing accessibility predicts ADL in people with PD with GSE and external HCB playing a moderating role for generic ADL and ADL specific to PD, respectively. Further longitudinal studies should validate these findings and explore their potential application in PD-related care and rehabilitation.

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“…Most research on self-management has focused on chronic conditions such as arthritis and diabetes [10]; however, there is a growing focus on Parkinson's [11,12]. Parkinson's self-management includes adherence to medication regimes, exercising, diet management, the monitoring of various symptoms, and management of environmental factors [13]. A systematic review exploring the effectiveness of self-management interventions found mixed results due to small and poor-quality studies [11].…”

Section: Introductionmentioning

confidence: 99%

People with Parkinson’s perspectives and experiences of self-management: Qualitative findings from a UK study

et al. 2022

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Introduction Parkinson’s prevalence is growing, and more people are being impacted by the condition than ever before. Self-management has been proposed as one way to enable people living with the condition to improve or maintain their quality of life and wellbeing whilst living at home. Aim To explore the views and experiences of how people living with Parkinson’s self-manage their condition and identify areas needed to be incorporated into self-management resources or interventions. Method Twenty people with Parkinson’s from across London and Hertfordshire, UK took part in semi-structured interviews on self-management. Interviews were transcribed and analysed using thematic analysis to identify themes. Results Three main themes were identified: (1) Management of physical symptoms, which included engaging in physical activities, adapting their lifestyles, managing medication and using e-health resources; (2) Management of emotional impact, which involved using a range of cognitive and practical strategies, and seeking talking therapies and medication; and (3) barriers to self-management such as accessing accurate information, experiencing stigma towards their condition which impacted their self-esteem and identity, in turn impacting on their ability to self-manage. Conclusion Holistic and person-centred self-management programmes or interventions should be developed incorporating components such as medication and emotional support, individualised planning of exercise regimes, and accessible, timely and accurate information. Furthermore, more public health knowledge on Parkinson’s is needed to help reduce stigma.

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Factors influencing self-management in Parkinson's disease: A cross-sectional study

Cited by 21 publications

References 57 publications

Prediction of Life Satisfaction in People with Parkinson’s Disease

Prediction of Life Satisfaction in People with Parkinson’s Disease

Longitudinal association between housing accessibility and activities of daily living: the role of self-efficacy and control in people ageing with Parkinson’s disease

People with Parkinson’s perspectives and experiences of self-management: Qualitative findings from a UK study

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