Factors Influencing Outcomes for Family Caregivers of Persons Receiving Palliative Care: Toward an Integrated Model

Kinsella, Glynda; Cooper, Brian; Picton, Cliff; Murtagh, Douglas

doi:10.1177/082585970001600308

Cited by 28 publications

(14 citation statements)

References 53 publications

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“…Nolan et al 29 developed a typology of family caregiving, but concede its limited external validity. The transactional stress and coping framework proposed in the seminal work of Lazarus and Folkman 30 has been widely used and advocated in family caregiver research, 16,[31][32][33][34][35][36][37][38][39] and has recently been promoted as a suitable model for conceptualizing and planning interventions for palliative family caregivers. 40 An advantage of the Lazarus and Folkman approach is that it acknowledges that the family caregiver experience may in fact be rewarding, and is therefore not inherently harmful.…”

Section: Incongruent Patient and Caregiver Needsmentioning

confidence: 99%

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Hudson

Aranda

Kristjanson

2004

Journal of Palliative Medicine

170

132

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Caring for a dying relative is demanding, and family caregivers have acknowledged many unmet needs associated with their caregiver role. Consistently, caregivers of dying patients with cancer have reported that they need more support and information from health care professionals. Moreover, a number of palliative care clinicians and researchers have called for interventions to enhance the support offered to family caregivers. However, before researchers can develop and test palliative care interventions directed to families, it is important to identify barriers that may confront health care professionals with regard to the provision of supportive family care. For new interventions to be feasible they must be applicable within the constraints of current palliative care service delivery environments. This paper provides an account of issues that may impinge on optimal transference of supportive strategies from health care professionals to family caregivers of patients receiving palliative care. By acknowledging these barriers to supportive care, researchers and health care professionals can begin to design and implement interventions that are clinically relevant and more likely to be effective.

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Section: Incongruent Patient and Caregiver Needsmentioning

confidence: 99%

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Hudson

Aranda

Kristjanson

2004

Journal of Palliative Medicine

170

132

View full text Add to dashboard Cite

show abstract

“…In situations where the stress outweighs personal resources and external coping, general health and well-being deteriorates, social participation is inhibited and there are inevitable psychological complications 23,25. Due to this stress response, the use of an anxiety appraisal and coping model helps to understand the process of any intervention aimed at reducing anxiety through the provision of support and information.…”

Section: Assessing Caregivers For Team Interventions and The Caregivimentioning

confidence: 99%

Assessing Caregivers for Team Interventions (ACT): A New Paradigm for Comprehensive Hospice Quality Care

Demiris

Oliver

Wittenberg-Lyles

2009

Am J Hosp Palliat Care

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This article provides a framework labeled ACT that aims to successfully integrate family caregivers and patients into one unit of care, as dictated by the hospice philosophy. ACT (assessing caregivers for team interventions) is based on the ongoing assessment of the caregiver background context, primary, secondary, and intrapsychic stressors as well as outcomes of the caregiving experience and subsequently, the design and delivery of appropriate interventions to be delivered by the hospice interdisciplinary team. Interventions have to be tailored to a caregiver's individual needs; such a comprehensive needs assessment allows teams to customize interventions recognizing that most needs and challenges cannot be met by only one health care professional or only one discipline. The proposed model ensures a holistic approach to address the multifaceted challenges of the caregiving experience.

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“…Additionally, potential decline in family members' physical functioning, as demonstrated by their loss of abilities to perform activities of daily living due to cancer and its related treatment has been suggested as a potential stressor for the caregiver (Gaugler et al, 2005;Pinquart & Sorensen, 2003). Decrements in physical functioning have been reported to increase at the end of life (Andrews, 2001;Kinsella, Cooper, Picton, & Murtagh, 2000;Lunney, Lynn, Foley, Lopson, & Guralnik, 2003;Teno, Weitzens, Fennell, & Mor, 2001). Thus, decreases in physical functioning may become a more severe stressor for caregivers toward the end of life.…”

Section: Stressorsmentioning

confidence: 99%

The influence of end‐of‐life cancer care on caregivers

Doorenbos

Given

et al. 2007

Research in Nursing & Health

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The purpose of this secondary analysis was to glean from prospective data whether those caring for elderly family members recently diagnosed with cancer who ultimately died reported different caregiver depressive symptomatology and burden than caregivers of those who survived. Findings from interviews with 618 caregivers revealed that caregiver depressive symptomatology differed based on family members' survival status, and spousal caregivers experienced greater burden when a family member was near death than did non-spousal caregivers. Family member symptoms and limitations in daily living, as well as caregiver health status, age, and employment, were associated with caregiver depressive symptomatology and burden; however, these associations had no interaction with family member survival status.

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Factors Influencing Outcomes for Family Caregivers of Persons Receiving Palliative Care: Toward an Integrated Model

Cited by 28 publications

References 53 publications

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Assessing Caregivers for Team Interventions (ACT): A New Paradigm for Comprehensive Hospice Quality Care

The influence of end‐of‐life cancer care on caregivers

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