Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Kim, Sun Kyung; Ward, Elisabeth; Dicianno, Brad E.; Clayton, Gerald H.; Sawin, Kathleen J.; Beierwaltes, Patricia; Thibadeau, Judy; Walker, William O.; Smith, Kathryn A.; Freeman, Kurt A.; Wilson, Pamela E.; Thomson, Jeffrey D.; Castillo, Heidi; Brei, Timothy J.; Joseph, David B.; Pico, Elaine L.; Kapadia, Mitul; Bowman, Robin; Wiener, John S.; Peterson, Paula; Dias, Mark S.; Ratliff-Schaub, Karen; Chinarian, James

doi:10.1016/j.apmr.2015.02.029

Cited by 48 publications

(53 citation statements)

References 21 publications

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“…Kim et al () documented that 19% of individuals reported a pressure ulcer at their most recent annual clinic visit. Adjusting for type of SB, SB clinic, and age group, the authors found that the level of the lesion, male sex, use of a wheelchair, urinary incontinence, presence of a shunt for hydrocephalus, above the knee orthopedic surgery, and recent surgery were associated with skin injury (Kim et al, ).…”

Section: Resultsmentioning

confidence: 99%

The National Spina Bifida Patient Registry: A Decade's journey

Castillo

Lupo

et al. 2018

Birth Defects Research

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Background: The National Spina Bifida Patient Registry (NSBPR) was established in 2008, as a partnership between the CDC and spina bifida (SB) clinics throughout the United States. The purpose of this study is to explore the initial work of this project through a literature review of published studies from the NSBPR and provide a description of how this body of literature has developed overtime. Methods: We included studies indexed in MEDLINE by means of PubMed from January 2009 through April 2018. Included articles were appraised to identify key themes relevant to SB demographics, interventions, and outcomes. Additionally, information regarding objectives, hypotheses, and results of each study was summarized. Results: We identified 13 articles meeting inclusion criteria. These publications described findings or explored associations using NSBPR variables. They were grouped into four categories: general characteristics (4 studies), mobility and skin injury (2 studies), bowel continence (3 studies), and bladder continence (5 studies). Conclusions: The NSBPR represents one of the largest described clinical samples of individuals living with SB. The first decade of studies have focused primarily on descriptive analyses and on identifying predictors of clinical outcomes. These initial results may help develop interventions (including culturally appropriate initiatives), be a resource for developing international evidence-based standards of care and best-practices, and lead to improved outcomes for individuals living with SB globally. Additionally, the results underscore the strengths of the NSBPR's design and highlight the potential breadth of research topics that could be addressed in the future.

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Section: Resultsmentioning

confidence: 99%

The National Spina Bifida Patient Registry: A Decade's journey

Castillo

Lupo

et al. 2018

Birth Defects Research

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“…A description of the methods for developing and refining a urologic protocol for newborns and young children with spina bifida has also been published [6]. A paper titled, “Factors Associated with Pressure Ulcers in Individuals with Spina Bifida” [7] provides an example of how Registry data have been used to identify and promote improved care, and will be described in more detail below.…”

Section: Methodsmentioning

confidence: 99%

The National Spina Bifida Patient Registry: Past, present, and future

Thibadeau¹

2017

PRM

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“The National Spina Bifida Patient Registry: Past, Present, and Future” was presented at the Spina Bifida World Congress, March 17, 2017, San Diego, California. This commentary provides a summary of registry activities including the reason for development, a description of the clinic participants and their patients who are participating, analytic works and publications. Two specific efforts that are related to the work of the registry, a urologic protocol to preserve renal function for newborns and young children, and a skin breakdown prevention bundle developed and implemented in registry clinics, are highlighted.

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“…Urinary incontinence has a devastating impact on QoL as it demonstrates loss of bodily control in its most inconvenient and unpleasant way, make LUT care the most challenging issue in the patient's daily life, and can itself drive patients into depression [198][199][200]. Furthermore, urinary incontinence can negatively affect the skin due to frequent contact with urine and/or the necessity to wear pads or diapers which facilitates the development of wounds/ulcerations and dermal infections [201][202][203]. Despite the frequent association of NDO with urinary incontinence [204], adequate treatment of NDO alone may be either insufficient to prevent urinary incontinence or even evoke urinary incontinence.…”

Section: Restoration Of Urethral Urine Storage Functionmentioning

confidence: 99%

The Management of Urine Storage Dysfunction in the Neurological Patient

Mehnert

2018

SN Compr. Clin. Med.

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To highlight the current aspects and developments in the management of neurogenic urine storage dysfunction and to sensitize urologists for this interdisciplinary and important topic. Neurogenic lower urinary tract dysfunction affects a large proportion of patients with chronic neurological diseases or lesions such as multiple sclerosis, Parkinson's disease, stroke, spina bifida, and spinal cord injury. Such a dysfunction is not only highly bothersome and devastating for the quality of life but also poses a significant risk for health. Particularly, detrusor overactivity and detrusor-sphincterdyssynergia are frequent pathological patterns in neurogenic lower urinary tract dysfunction that are associated with sequelae such as recurrent urinary tract infections and renal impairment. The current cornerstones of treatment for urine storage dysfunction in neurological patients such as intermittent self-catheterization, antimuscarinic drugs, botulinum neurotoxin A intradetrusor injections, augmentation cystoplasty, urinary diversion, and artificial urinary sphincter have significantly contributed to improvements in QoL, health, and survival of neurological patients affected by neurogenic lower urinary tract dysfunction. However, these treatments have not advanced much recently. Moreover, the level of evidence of many therapy options specifically regarding their application in neurological patients is quite low and the main and auxiliary mechanisms of action are often only poorly understood. Despite former accomplishments in Neuro-Urology, more specific evidence for treatments of lower urinary tract dysfunction in neurological patients as well as better knowledge on their mechanisms of action is needed to advance the field and exploit the full treatment potential of available therapies.

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Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Cited by 48 publications

References 21 publications

The National Spina Bifida Patient Registry: A Decade's journey

The National Spina Bifida Patient Registry: A Decade's journey

The National Spina Bifida Patient Registry: Past, present, and future

The Management of Urine Storage Dysfunction in the Neurological Patient

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