Factors associated with anxiety in family caregivers of children with chronic diseases

Toledano‐Toledano, Filiberto; Rubia, José Moral de la

doi:10.1186/s13030-018-0139-7

Cited by 58 publications

(68 citation statements)

References 56 publications

(72 reference statements)

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“…We have found negative associations between QoL and caregiver's strain, such us, depression and burnout, nevertheless, resources such as engagement strategies appeared to improve QoL domains. This data can be linked to one of the most recent studies conducted on caregivers of children suffering from RDs [56]. Finally, the parents with higher levels of education seems to displayeda better QoL in some domains.…”

Section: Caregivers' Psychosocial and Clinical Statussupporting

confidence: 53%

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Berrocoso

Amayra

Lázaro

et al. 2020

Preprint

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Background: Wolf-Hirschhorn Syndrome (WHS) is a rare, congenital disease characterized by a distinctive facial phenotype, seizures, intellectual disability and developmental delay, and pre and postnatal growth requiring lifelong care. The psychosocial status of the family caregivers of children diagnosed with WHS is unknown. This study aims to characterize the sociodemographic and psychosocial profile of WHS caregivers and analyze how these variables impact their quality of life (QoL) and well-being.Results: The sociodemographic and clinical profile of 22 Spanish caregivers of children with WHS and the characteristics of those affected have been described. Significant relationships were found between sociodemographic and psychosocial characteristics among caregivers. The impact on the parents' QoL and negative relationship with the symptomatology were assessed. The use of engagement strategies such as problem focused coping was associated with improved psychological QoL and social support.Conclusions: WHS caregivers share similarities in their profile and needs with caregivers of children with other rare diseases. Pychosocial support groups involving parents caring for children with the same disease could improve caregivers’ well-being and QoL by strengthening their social support network and using positive coping styles.

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Section: Caregivers' Psychosocial and Clinical Statussupporting

confidence: 53%

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Berrocoso

Amayra

Lázaro

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…This data can be linked to one of the most recent studies conducted on caregivers of children suffering from RDs [56]. Finally, the parents with higher levels of education seems to displayeda better QoL in some domains.…”

Section: Caregivers' Psychosocial and Clinical Statussupporting

confidence: 53%

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Berrocoso

Amayra

Lázaro

et al. 2020

Preprint

View full text Add to dashboard Cite

Background : Wolf-Hirschhorn Syndrome (WHS) is a rare, congenital disease characterized by a distinctive facial phenotype, seizures, intellectual disability and developmental delay, and pre and postnatal growth requiring lifelong care. The psychosocial status of the family caregivers of children diagnosed with WHS is unknown. This study aims to characterize the sociodemographic and psychosocial profile of WHS caregivers and analyze how these variables impact their quality of life (QoL) and well-being. Results: The sociodemographic and clinical profile of 22 Spanish caregivers of children with WHS and the characteristics of those affected have been described. Significant relationships were found between sociodemographic and psychosocial characteristics among caregivers. The impact on the parents' QoL and negative relationship with the symptomatology were assessed. The use of engagement strategies such as problem focused coping was associated with improved psychological QoL and social support. Conclusions: WHS caregivers share similarities in their profile and needs with caregivers of children with other rare diseases. Pychosocial support groups involving parents caring for children with the same disease could improve caregivers’ well-being and QoL by strengthening their social support network and using positive coping styles. Keywords: Wolf-Hirschhorn syndrome; 4p deletion; caregivers; quality of life; coping; depression; social support; spirituality.

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“…However, the groups with or without depression (those above or below the cut-off for the BDI-II [2,32]) did not differ in terms of the total score or the five factors of the CHIP-16. In Mexico, factors are associated with anxiety in family caregivers of children with chronic diseases [60]. In Korean mothers, a relationship was identified between CHIP coping patterns and psychological distress and imbalance, suggesting the effect of anxiety [19].…”

Section: Discussionmentioning

confidence: 97%

Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

Toledano‐Toledano

Rubia

McCubbin

et al. 2020

Health Qual Life Outcomes

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Background: The Coping Health Inventory for Parents (CHIP) has demonstrated good psychometric properties in several language forms and has been used to assess the coping behaviors of families facing disease. However, the CHIP has not been validated in Mexico among families of children with chronic conditions, where it could be useful for research and intervention. The objectives of this instrumental study were to obtain a version of the CHIP for the Spanish language in Mexico, establish the factor structure of the Mexican version of the CHIP, probe its internal consistency reliability, and assess its concurrent construct validity. Methods: A nonprobability sample of 405 family caregivers of children with chronic diseases responded to a battery of measurement instruments that included the CHIP, the Beck Anxiety Inventory, and the Beck Depression Inventory. The sample was randomly divided into two parts. In one subsample (190 participants), an exploratory factor analysis was performed using a principal component analysis and oblique rotation. In the second subsample (215 participants), a confirmatory factor analysis was performed using maximum likelihood estimation. Results: The scale was reduced to 16 items (CHIP-16) with factorial loads greater than .50. The empirical criteria used to determine the number of factors converged on the following five factors: belief and trust (McDonald ω = .85), spouse/partner relationship (ω = .79), home care (ω = .77), family involvement (ω = .75), and security/ stability (ω = .79). The overall internal consistency was good (ω = .88). The five-factor model showed acceptable fit indices and high parsimony. The mean CHIP-16 scores and the Spouse/partner relationship scores among the caregivers with anxiety were greater than those among the caregivers without anxiety. The mean home-care scores among the women were greater than those among men. Conclusions: The 16-item version of the CHIP showed good internal consistency and construct validity; thus, the CHIP-16 is a useful instrument for measuring and assessing coping in family caregivers of children with chronic diseases.

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Factors associated with anxiety in family caregivers of children with chronic diseases

Cited by 58 publications

References 56 publications

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

Brief version of the coping health inventory for parents (CHIP) among family caregivers of children with chronic diseases

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