Factors affecting online health community participation behavior in patients with thyroid cancer

Park, Kyung Ah; Eum, So Yeon; Oh, Hyeonjung; Cho, Myung Hae; Chang, Hang Seok; Lee, Yong Sang; Kim, Sang Hee; Park, Cheong Soo

doi:10.1371/journal.pone.0235056

Cited by 11 publications

(9 citation statements)

References 41 publications

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“…15 A study in Korea showed that users of a single thyroid cancer OSG were more likely to have a college education and to have higher levels of depression and anxiety compared to nonusers. 16 Our study significantly expands on what is currently known about HNC OSGs by further investigating user demographics, impact on decision-making, and perceived benefits.…”

Section: Discussionmentioning

confidence: 93%

“…The anonymous survey used was modeled after a previous study that examined the impact of OSGs on those with vestibular dysfunction. 16 A literature review was performed to understand the most relevant topics and questions to include in the survey in addition to the best verbiage to use for readability and accuracy. This survey was reviewed by a team of fellowship-trained head and neck surgeons.…”

Section: Survey Development and Distributionmentioning

confidence: 99%

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Head and Neck Cancer Online Support Groups: Disparities in Participation and Impact on Patients

Tam,

Lin,

Castellanos

et al. 2023

OTO Open

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ObjectiveTo characterize the users of the head and neck cancer (HNC) online support group (OSG) and describe the perceived benefits of membership.Study DesignCross‐sectional.SettingOnline.MethodsAn administered survey with questions asking about demographics, cancer history, treatment choices, and feelings about OSGs was posted on the 5 largest HNC OSGs on Facebook.ResultsA total of 97 participants completed the survey. Mean age was 57.8 years old (standard deviation = 10.7 years). Most participants were female (50.5%) and Caucasian (92.8%). This cohort was well educated with 65.5% holding at least a college degree. Annual income was high with 41.8% reporting annual income of $100,000 or greater. The most common treatment modality was radiation (88.7%). The most common surgery was neck dissection (46.4%). Most participants preferred OSGs (70.8%) over other support group types. OSGs were heavily utilized with our cohort reporting using the OSG at least several times a week (80.0%). The top reasons for joining the OSG were sharing one's experience of HNC (76.3%) and gaining support from others with HNC (85.6%). OSGs were ranked as the #3 source of medical information for HNC behind otolaryngologists and oncologists. Membership in a HNC OSG had a minimal impact on decision‐making.ConclusionHNC OSGs appear to provide a beneficial community for HNC patients. Otolaryngologists should consider incorporating HNC OSG as a possible supplemental resource for their HNC patients.

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Section: Discussionmentioning

confidence: 93%

Section: Survey Development and Distributionmentioning

confidence: 99%

Head and Neck Cancer Online Support Groups: Disparities in Participation and Impact on Patients

Tam,

Lin,

Castellanos

et al. 2023

OTO Open

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“…Despite the potential of weight loss‐focused social media communities and self‐monitoring tools, their use is low 27–29 . Further, use of health focused apps in general is lower among individuals who have obesity and weight‐related comorbidities, and who have lower income and education 30,31 . Thus, the people who have the most potential to benefit from these tools are least likely to be using them.…”

Section: Introductionmentioning

confidence: 99%

“… 27 , 28 , 29 Further, use of health focused apps in general is lower among individuals who have obesity and weight‐related comorbidities, and who have lower income and education. 30 , 31 Thus, the people who have the most potential to benefit from these tools are least likely to be using them. Potential reasons for low use of these tools include limited awareness of and difficulty finding tools, low perceived benefits of use, lack of social support for self‐monitoring, and boredom after initial use.…”

Section: Introductionmentioning

confidence: 99%

Engaging primary care patients with existing online tools for weight loss: A pilot trial

McVay

Cooper

Donahue

et al. 2022

Obesity Science & Practice

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Objective: Free online tools show potential for promoting weight loss at a low cost, but there is limited evidence about how to effectively engage patients with them. To address this, a low-dose, flexible intervention was developed that aims to enhance weight-related discussions with primary care providers (PCPs) and engage patients with an organic (i.e., not researcher-created) weight loss-focused social media community and online self-monitoring tool. Feasibility and acceptability of the intervention was evaluated in a single-arm, 12-week pilot.Methods: PCPs were recruited at two clinics, then PCP's patients with upcoming appointments were identified and recruited. Patients received an interactive online kickoff before their scheduled primary care appointment, then 8 follow-up messages over 12 weeks via email or their electronic health record patient portal. Patients completed assessments at baseline, post-appointment, and week 12. Primary care providers and patients completed semi-structured interviews.Results: All PCPs approached enrolled (n = 6); patient recruitment was on track to meet the study goal prior to COVID-19 restrictions, and n = 27 patients enrolled.Patient satisfaction with the pre-appointment kickoff was high. Twenty-four patients reported discussing weight-related topics at their primary care appointment and all were satisfied with the discussion. Twenty-two patients completed 12-week assessments. Of these, 15 reported engaging with the self-monitoring tool and 9 with the social media community. Patient interviews revealed reasons for low social media community engagement, including perceived lack of fit. On average, patients with available data (n = 21) lost 2.4 � 4.1% of baseline weight, and 28.6% of these patients lost ≥3% of baseline weight. Primary care providers reported high intervention satisfaction. Conclusions:The intervention and trial design show potential, although additional strategies are needed to promote tool engagement.This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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“…In recent years, the smartphone has increased the way of communication as a basic device [1] . Now a days online health disciplines are allowing their clients/ patients to share their problems and issues [2] . The internet and social media are used for social interaction [3] .…”

Section: Introductionmentioning

confidence: 99%

Online social networking usage and frequency of Depression in Undergraduate University students

Balouch¹,

Kausar

Abbassi³

et al. 2022

JUMDC

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BACKGROUND & OBJECTIVE: Mental health is playing an important role in our daily life. Now a days depression is the second most common illness in the world. Online social networking is one of the risk factors to mental illness, and objective is to determine the usage of social networking sites (SNS) and level of depression among undergraduate students. METHODOLOGY: This cross-sectional study was conducted at Sindh Agriculture University Tandojam- Sindh with simple random sampling through self-administrated questionnaires. Sample size was calculated on a prevalence rate of 50%, students ranging from 17-28 years, using SNS were included while those having any chronic illness were excluded. Ethical approval was obtained from Health Services Academy Islamabad, anonymity confidentiality, and privacy was assured. SPSS version 20.0 was used, and chi-square was applied to find the association. RESULTS: Out of 212 students, the respondents consisted mainly of male students n=165 (77.8%), among them, 52 (24.5%) students were of age 19 years and 76 (35.8%) were in first-year class. Results reveal that the frequently used SNS was Facebook 169 (79.7%). The students using these sites for more than 4 years were 28 (13.2%). Among the SNS users, 142(67%) were having moderate depression, while 9 (4.2%) had severe depression. Male students have more online friends (p <0.001) and tend to login more times on SNS as compared to female students (p=0.023). CONCLUSION: The usage of social networking sites is more among undergraduate university students, especially males. Most of the students suffered from moderate depression. There may be a link between SNS usage and depression among undergraduate university students.

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Factors affecting online health community participation behavior in patients with thyroid cancer

Cited by 11 publications

References 41 publications

Head and Neck Cancer Online Support Groups: Disparities in Participation and Impact on Patients

Head and Neck Cancer Online Support Groups: Disparities in Participation and Impact on Patients

Engaging primary care patients with existing online tools for weight loss: A pilot trial

Online social networking usage and frequency of Depression in Undergraduate University students

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