Facilitators for travelling with local public transport among people with mild cognitive limitations after stroke

Ståhl, Agneta; Lexell, Eva Månsson

doi:10.1080/11038128.2017.1280533

Cited by 10 publications

(5 citation statements)

References 31 publications

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“…To avoid long-term participation restrictions, community mobility is an important issue to address in early as well as later phases after stroke, including driving assessments and guidance to wellfunctioning alternatives to car-driving. In line with other studies (34,35), our findings highlight that public transport is associated with numerous perceived barriers related to physical as well as cognitive demands, and that available transport might not be used if not perceived as efficient.…”

Section: Discussionsupporting

confidence: 90%

Living and ageing with stroke: an exploration of conditions influencing participation in social and leisure activities over 15 years

et al. 2018

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Section: Discussionsupporting

confidence: 90%

Living and ageing with stroke: an exploration of conditions influencing participation in social and leisure activities over 15 years

et al. 2018

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“…The place of residence (city centre/suburb/rural) was as well as transportation to/from the place was significantly associated with the patterns of participation. Previous research [5,10,11,29] has emphasized the critical role of transportation for participation. Limited possibilities for transportation can decrease the right to experience enriching activities, thereby creating injustices.…”

Section: Discussionmentioning

confidence: 99%

“…Hence, accessible well-functioning transport alternatives are important and can be seen as a matter of occupational justice [30]. In case of driving cessation following stroke [10,11], it is important to support people with stroke to cope with transportation issues. The extent to which a car was used for travel to the places in relation to the fact that approximately one third of the sample did not drive implies that many of the participants were dependent on another person to travel to different places by car.…”

Section: Discussionmentioning

confidence: 99%

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Patterns of participation: Facilitating and hindering aspects related to places for activities outside the home after stroke

Malinowsky

Olofsson

Nyman

et al. 2019

Scandinavian Journal of Occupational Therapy

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Background: Being engaged in activities in places outside the home after a stroke can be challenging. Knowledge about what characterize places outside the home is important to support participation. Objectives: To explore patterns of participation in places for activities outside the home after stroke and whether these patterns were associated with personal and environmental aspects. Material and methods: Sixty-three people with stroke were interviewed using the Participation in Activities and Places Outside Home (ACT-OUT) questionnaire. A two-step cluster analysis was used to identify patterns of participation and non-parametric test was used to explore potential associations to the patterns of participation. Results: Four clusters of patterns of participation, based on frequency, familiarity of the place/ the way to the place and perceived distance, were identified. The patterns were significantly associated with type of place, activity domain, retained or abandoned participation, transportation and being accompanied by someone. The severity of disability was significantly associated with groups of individuals with different patterns of participation. Conclusions: Different combinations of aspects facilitated and hindered whether or not participation changed. To support people with stroke in their endeavour to retain or recapture participation, social support is important to consider in relation to transportation, activities and places outside the home.

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“…Previous international studies show that people after stroke are more likely to use special transport services or be passengers in cars with family members [ 15 , 26 , 78 ], but partly without their PWC because transporting it is not possible in most cars, so the PWC then remains at home. The experiences of the co-researchers in our study do not coincide with these previous findings: only one person used SFD regularly, although all were eligible.…”

Section: Discussionmentioning

confidence: 99%

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Böttger

Dennhardt

Knape³

et al. 2022

IJERPH

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Severe stroke leads to permanent changes in everyday life. Many stroke survivors depend on support in community mobility (CM). This leads to restrictions and limited social participation. A power wheelchair (PWC) can enable independent CM and reduce such restrictions. This participatory study focused on how people with severe stroke experience their CM in a PWC in Berlin/Germany and what changes they want to initiate. A research team of five severe stroke survivors and two occupational therapists examined the question using photovoice. Stroke survivors took photos of their environment, presented, discussed, and analyzed them at group meetings to identify themes, and disseminated their findings at exhibitions and congresses. The photos emphasize the significance of and unique relationship to the PWC for the self-determined expression of personal freedom. As a complex, individualized construct, CM requires an accessible environment and diverse planning strategies by PWC users to arrive at their destination and overcome suddenly occurring obstacles. Desired changes stress CM independent of external help, increased social esteem, and active involvement in the provision of assistive devices. Voices of severe stroke survivors need to be heard more in healthcare and research to ensure the possibility of equal social participation.

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Facilitators for travelling with local public transport among people with mild cognitive limitations after stroke

Cited by 10 publications

References 31 publications

Living and ageing with stroke: an exploration of conditions influencing participation in social and leisure activities over 15 years

Living and ageing with stroke: an exploration of conditions influencing participation in social and leisure activities over 15 years

Patterns of participation: Facilitating and hindering aspects related to places for activities outside the home after stroke

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

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