Facilitators and barriers to family engagement and retention of young children in mental health care: A qualitative study of caregivers’ perspectives

Walter, Angela Wangari; Yuan, Yasheng; Morocho, Cesar; Thekkedath, Resmi

doi:10.1080/15332985.2018.1517402

Cited by 9 publications

(13 citation statements)

References 48 publications

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“…Similar to our findings, studies also highlighted parents having to deal with stigma, the lack of integrated healthcare services and a shortage of providers with the expertise in early childhood mental healthcare ( Walter et al, 2019 ). The literature on stigma and mental illness is large; often, stigma experienced by children and their families lead to shame and low expectations, which cause further distress ( Heflinger and Hinshaw, 2010 ).…”

Section: Discussionsupporting

confidence: 89%

Working with parents of children with complex mental health issues to improve care: A qualitative inquiry

Leung

Wandler²,

Pringsheim

et al. 2021

J Child Health Care

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The study objective was to explore the experiences of parents of children (6–17 years) with complex mental healthcare needs in accessing healthcare services in Alberta, Canada. Parents were interviewed using a semi-structured guide with open-ended and probing questions. Interviews were audio recorded and transcribed verbatim. Thematic analysis revealed three main themes: (1) Fragmented healthcare services profoundly impacted participants’ experience of mental health care due to (a) a lack of a collaborative approach across disciplines in the healthcare system; (b) unavailability of information related to mental health care and (c) a lack of patient-centred care. (2) Navigating the complex healthcare system was difficult due to fragmented services and was hindered by gaps in accessing and receiving care, lack of continuity of care and lack of resources. (3) Distressed parents discussed the emotional challenges, financial burdens, self-advocacy and stigma they experienced in navigating the system. Parents offered insights into potential solutions to these gaps. Parents recommended the creation of a one-stop shop service with a team approach led by a navigator to facilitate and support navigations across healthcare services that work collaboratively across disciplines among healthcare services and across sectors inclusive of social services, education, policing and community programmes.

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Section: Discussionsupporting

confidence: 89%

Working with parents of children with complex mental health issues to improve care: A qualitative inquiry

Leung

Wandler²,

Pringsheim

et al. 2021

J Child Health Care

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“…One of the major barriers these caregivers found was the lack of available providers and therapists as well as a lack of communication via call backs. This finding is similar to that of Walter et al (2019) who also found that a shortage of people able to provide care especially for mental health challenges in children/adolescents.…”

Section: Discussionsupporting

confidence: 88%

Predictors and barriers to engagement in caring for children with a mental health diagnosis: A qualitative study of caregivers perception of power

Seney

2024

Child Adoles Psych Nursing

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BackgroundEvidence‐based treatments used in managing behaviors of children require caregiver engagement. However, there is a gap in understanding a caregiver's level of comprehension of how they can advocate for their children's mental health needs and how to help their children in the home once outpatient treatment is initiated.MethodsThis was a qualitative study using interviews with semi‐structured research questions. Recruitment was through convenience sampling at a private practice mental health agency. Nine participants were interviewed. A thematic analysis was completed posttranscription and coding.ResultsFour themes emerged that captured the lived experience of the caregivers as they sought to facilitate care for the child/adolescent: Feeling lost (powerless navigating the mental health care system); Feeling a loss of control (Lack of Return Communication and Lack of Available Providers); Feeling frustrated (insurance and/or cost barriers); and Feeling powerless to help (their child at home and not included in treatment).RelevanceThis study addresses the gaps in the current health care system. Through examining the caregiver's sense of power in their role in mental health care for their children, interventions may be developed to encourage more active involvement in treatment outcomes and more involvement in interventions for the home setting. Moreover, this study highlights the importance of giving insight to providers on how to help families navigate mental health care, communicate more, and include the patient and caregiver in the development of comprehensive treatment plans.

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“…This suggests that there may be missed opportunities to further help children within early childhood education settings (Triggs & Keyes, 2019). In addition, while outside mental health services are an important part of offering a continuum of support for young children, there is a shortage of providers doing this work (Walter et al, 2018), meaning that not all children are able to access the support that they need.…”

Section: Discussionmentioning

confidence: 99%

Educator Perspectives of Early Childhood Mental Health: A Qualitative Study in Colorado

Stein

Russell

2021

School Mental Health

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Mental health problems in early childhood (e.g., depression, anxiety) have a similar prevalence as for older individuals, with 10-15% of preschoolers meeting criteria for clinical diagnosis. Research has shown that intervention to support mental health in early childhood is important to mitigate later problems. However, early intervention is predicated on early identification; by the time young children encounter specialists (e.g., psychologists), problems are often severe. Early childhood educators have the potential to identify mental health concerns in young children. Yet, little is known about early childhood educators' understanding of early childhood mental health, necessitating pilot research. The present study used focus groups to better understand early educator's perceptions of young children's mental health. Participants identified four primary themes that guide their understanding: causes of mental health problems, observable signs of mental health problems, knowledge of mental health supports, and barriers to mental health supports. Implications and suggested future directions are also explored.

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Facilitators and barriers to family engagement and retention of young children in mental health care: A qualitative study of caregivers’ perspectives

Cited by 9 publications

References 48 publications

Working with parents of children with complex mental health issues to improve care: A qualitative inquiry

Working with parents of children with complex mental health issues to improve care: A qualitative inquiry

Predictors and barriers to engagement in caring for children with a mental health diagnosis: A qualitative study of caregivers perception of power

Educator Perspectives of Early Childhood Mental Health: A Qualitative Study in Colorado

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