Facilitating Milk Donation in the Context of Perinatal Palliative Care

Cole, Joanna C.M.; Schwarz, Jessica; Farmer, Mari-Carmen; Coursey, Aimee L.; Duren, Shawnese; Rowlson, Marisa; Prince, Judy; Oser, Maren; Spatz, Diane L.

doi:10.1016/j.jogn.2017.11.002

Cited by 17 publications

(18 citation statements)

References 22 publications

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“…The most common donor experience studied was reasons/ enablers for donation (16,(18)(19)(20)(21)24,26,(30)(31)(32)35,37,39,43) . Common reasons for donation included altruism, having excess milk and avoiding waste (16,18,20,30,32,36,37,43) . Common enablers for donation were being encouraged to donate and receiving information about milk banks from healthcare providers (19)(20)(21)24,(30)(31)(32)35,36,39) .…”

Section: Donor Experiences and Beliefsmentioning

confidence: 99%

What is known about human milk bank donors around the world: a systematic scoping review

Santos

Perrin

2021

Public Health Nutr.

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Objective: The World Health Organization recommends that low birth weight infants receive donor human milk (DHM) when mother’s milk is not available. Systematic reviews have been published regarding clinical outcomes of infants receiving DHM, as well as the impact of pasteurization on the composition of DHM; however, information about milk bank donors has not been systematically assessed. Design: We conducted a systematic scoping review of original research articles about milk bank donors published before August 2020. Results: A total of 28 studies were included across a variety of geographies: United States (n=8), Brazil (n=7), Spain (n=4), India (n=2), and single studies in France, Norway, Poland, Italy, Taiwan, Korea, and China. Study variables were grouped into 6 main categories: Donor Demographics (n=19), Clinical Characteristics (n=20), Donor Experiences (n=16), Donation Patterns (n=16), Lifestyle Characteristics (n=4), and Lactation/Breastfeeding History (n=8). Some demographic characteristics were commonly reported across regions, while other, including gender and race were infrequently explored. Factors that might influence the composition of DHM, including birth timing (term or preterm), milk type (colostrum, transition or mature), and maternal diet were not regularly studied. Other gaps in the literature included: donors’ motivations and barriers to donation; lactation and breastfeeding history, including factors that influence donors to pump and amass surplus milk; and donation patterns, including whether donors are also selling milk to corporations or sharing milk with peers. Conclusion: What is known about milk bank donors in different geographies is often limited to a single study, with heterogeneity in the variables reported.

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Section: Donor Experiences and Beliefsmentioning

confidence: 99%

What is known about human milk bank donors around the world: a systematic scoping review

Santos

Perrin

2021

Public Health Nutr.

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“…30 Regarding concerns about transmission of genetic material from the donor to the infant that receives her milk, evidence has shown that these materials are removed during the process of pasteurization. 39 (1) A strong belief in the value of breastfeeding 13,27 (2) Helping and connecting 13,17,37 (3) Having excess milk 11,13,16,17,[20][21][22][23][24][25]27,28,36 (4) Knowledge of the benefits of mother milk for preterm infants 13 (5) Sense of satisfaction gained from helping a child 20,41 (6) Understanding the needs of the babies 18,41 (7) Social involvement 18 (8) Having a history of milk donations 23 (9) Knowing the needs of the milk bank 23 (10) Hoping someone else will do the same for them if needed 23,24,27,37 (11) Having a positive attitude toward milk donation 21 (12) Avoiding waste 17,36 (13) Feeling of motherhood following a perinatal loss 14,41 (14) Finding meaning in and integrating the experience of perinatal loss 14 (15) A way for bereaved mothers to grieve their loss 14 (16) Pumping milk to stimulate lactation 24 (17) Having self-confidence 17,37 (18) Financial inducement 43 Systemic facilitators…”

Section: Factors Influencing Donations To Human Milk Bankmentioning

confidence: 99%

“…(1) Verbal encouragement to donate 19 (2) Support from the milk banks for the donor 19 (3) Benefits for donors 19 (4) Provide guidance on appropriate procedures for collection and storage of milk at home 19 (5) Financial support 19 (6) Provision of information about donating during pregnancy/prenatal care 19,21 (7) Visits of donors to the HMBs to understand the process of pasteurization 17,19 (8) Health staff and professionals 15,18,21,27,28,37,41 (9) Supporting bereaved mothers in their lactation needs 14,41…”

Section: Factors Influencing Donations To Human Milk Bankmentioning

confidence: 99%

Factors Influencing Donations to Human Milk Bank: A Systematic Review of Facilitators and Barriers

Doshmangir

Naghshi

Khabiri

2019

Breastfeeding Medicine

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Introduction: Mother's own milk has long been accepted as the best source of nutrition for the newborn. In those cases where mother's milk is not available, the best choice is the human milk provided by selected donors. Human milk banks are the most institutionalized method of milk sharing and play a vital role for neonates that cannot be breastfed. This study aims at systematically reviewing factors influencing donation to human milk banks. Materials and Methods: A systematic review of the literature was performed on authentic electronic resources, including PubMed, Scopus, Embase, ScienceDirect, and Web of Science with no time limitation. To increase the sensitivity and to find additional studies for systematic review, the reference list of the published studies was examined as well. Data extraction and quality appraisal were carried out by two independent reviewers. The study was qualitatively summarized to generate descriptive and explanatory themes that emerged from the literature. Results: From a total of 1,157 articles, 31 met the inclusion criteria in which 64 factors are extracted. From these, 26 factors act as barriers and 38 factors act as facilitators of milk donation. Having excess milk, altruism, and helping other babies are found to be the most important facilitators of milk donation, while the most important barriers are religious and cultural concerns. Conclusion: Developing practical strategies to attract milk donors are crucial for successfully establishing human milk banks. These include providing reliable information regarding the milk bank goals and functions and developing breastfeeding polices with regard to differences in countries' contexts and trying to resolve any uncertainties regarding milk donation, especially those arising for religious concerns.

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“…Some mothers will want to suppress breast milk production but need education on how to avoid painful engorgement and mastitis. Others will want to continue expressing and donate breast milk as a way to help other families and find meaning in the context of their loss and grief (37). It is important to recommend grief resources and counseling for families whether they go home with hospice or stay in the hospital setting.…”

Section: Comfort Focused-carementioning

confidence: 99%

Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care

Marc-Aurele

2020

Front. Pediatr.

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When parents face a potentially life-limiting fetal diagnosis in pregnancy, they then have a series of decisions to make. These include confirmatory testing, termination, and additional choices if they choose to continue the pregnancy. A perinatal palliative team provides a safe, compassionate, and caring space for parents to process their emotions and discuss their values. In a shared decision-making model, the team explores how a family's faith, experiences, values, and perspectives shape the goals for care. For some families, terminating a pregnancy for any reason conflicts with their faith or values and pursuing life prolonging treatments in order to give their baby the best chances for survival is the most important. For others, having a postnatal confirmatory diagnosis of a life limiting or serious medical condition gives them the assurance they need to allow their child a natural death. Others want care to be comfort-focused in order to maximize the time they have to be together as a family. Through this journey, a perinatal palliative team can provide the support and encouragement for families to express their goals and wishes, as well as find meaning and hope.

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Facilitating Milk Donation in the Context of Perinatal Palliative Care

Cited by 17 publications

References 22 publications

What is known about human milk bank donors around the world: a systematic scoping review

What is known about human milk bank donors around the world: a systematic scoping review

Factors Influencing Donations to Human Milk Bank: A Systematic Review of Facilitators and Barriers

Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care

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