Facilitating Dietary Change in Renal Disease: Investigating Patients’ Perspectives

Abstract

Early dietetic intervention would be welcomed by patients, with group work and 'expert patient' assistance offering one means of delivering this service in a patient-centred way.

Dietary and Fluid Restrictions in CKD: A Thematic Synthesis of Patient Views From Qualitative Studies

“…20 This review suggests that caregivers might be involved routinely in dietary education because involvement of caregivers in nutrition counseling improves recall on messages about foods and food preparation information. 38 Advice about reading nutritional labels and building a personal library of foods to minimize or avoid relevant to cultural practices are helpful for patients in this review.…”

“…28 Comorbid conditions (diabetes and heart disease) led to conflicting advice. 20 Patients reported not understanding the advice, when they were still in "emotional turmoil" after learning about their CKD diagnosis or just having had a dialysis catheter implanted. 5 Patients "preferred to receive advice from a renal dietician who could support the rules with a clear rationale and practical advice to help them implement any changes."…”

“…They expressed a preference for a repeated problem-solving approach rather than didactic teaching methods when learning how to manage their food and fluid intake. 20 Mastering change and demands (25 studies). Gaining and keeping control of diet and fluid was one way of finding meaningful ways to stay alive and feel good and that surviving their chronic disease was worth the effort.…”

“…31 Some accepted that food and fluid changes were "part of the deal," 14 and having taken charge, no longer allowed diet to be a dominating concern in their lives. 20 Valuing self-management (31 studies). For some patients, diet and fluid advice was part of the suite of specific actions they could do to care for themselves 12 to feel better.…”

A qualitative examination of patients experiences of dietitians ' consultation engagement styles within nephrology

“…The renal diet could be considered as one of the most difficult therapeutic diets to live with (33) , an issue which arose in the present study. For example, in response to severe dietary restrictions, Paul said: 'I began wondering whether it was worth bothering to live!'…”