F3‐02‐01: Considerations in Culturally Safe Care for Indigenous People with Dementia In Canada

Jacklin, Kristen; Warry, Wayne; Pitawanakwat, Karen; Blind, Melissa

doi:10.1016/j.jalz.2016.06.492

Cited by 2 publications

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“…The grey literature search strategy and hand search identified 10 relevant resources specific to culture and Indigenous experiences of dementia or dementia caregiving in Canada (Table 4). The resources include: one Master’s thesis (Cammer, 2006); one dissertation (Pace, 2013); and two online reports (Native Women’s Association of Canada, 2013; Sutherland, 2007); as well as five fact sheets, a corresponding model and methodology report (Jacklin, Blind, Jones, Otowadjiwan, & Warry, 2017; Jacklin, Warry, Blind, Jones, & Webkamigad, 2017a, 2017b; Jacklin et al, 2017; Jacklin, Warry, Blind, Webkamigad, & Jones, 2017a, 2017b, 2017c).…”

Section: Resultsmentioning

confidence: 99%

“…All eight of the peer-reviewed publications and all but two of the grey literature contributions were published from 2010 through 2017. Information from a multi-site study in Ontario supplemented by available literature has recently been synthesized into information fact sheets (Indigenous Cognition & Aging Awareness Research Exchange [I-CAARE], 2018; Jacklin et al, 2017), yet the diversity of Indigenous peoples in Canada has yet to be adequately represented in our knowledge base. Overall, we found studies specific to dementia, aging, and caregiving in older Indigenous people in Canada to be rare.…”

Section: Resultsmentioning

confidence: 99%

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Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis

Jacklin

Walker

2019

Can. J. Aging

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RÉSUMÉLes démences liées à l’âge constituent un problème de santé important au Canada, en particulier chez les communautés autochtones, où les taux de démences surpassent d’environ 34 % ceux retrouvés dans la population canadienne. Cette étude présente une synthèse des données qualitatives tirées des articles traitant de la compréhension culturelle des démences chez les peuples autochtones du Canada. Les résultats principaux suggèrent que peu de recherches ont été effectuées dans ce domaine, en particulier chez les Inuits et les Métis, malgré une progression de l’exploration de ce sujet au Canada. La synthèse de la littérature a révélé que la démence est perçue comme une partie naturelle du cycle de vie par de nombreux Autochtones. Bien que les modèles communautaires et informels de soins soulèvent d’importants défis pour les aidants naturels, ils sont régulièrement appliqués. Cette synthèse sera utile pour les organismes et les prestataires de soins de santé qui recherchent des approches appropriées pour répondre aux besoins des patients et des familles autochtones aux prises avec la démence.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis

Jacklin

Walker

2019

Can. J. Aging

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Experiences of Living in the Community for Older Aboriginal Persons With Dementia Symptoms in Taiwan

et al. 2019

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Background and Objectives Improving quality of life for community-dwelling older persons with dementia symptoms (PWDS) and family caregivers requires promoting dementia-friendly communities (DFC). However, little is known regarding older Taiwanese Aboriginal PWDS’ experiences of living in the community. We explored these experiences for older Atayal PWDS and their families in Taiwan. Research Design and Methods This grounded theory research used in-depth interviews to explore the perspectives of older PWDS (n = 4), their family members (n = 3), and key persons (n = 10) in an Atayal community in northern Taiwan. Data were analyzed using constant comparative analysis. Participants were interviewed between January and May 2015. Results Participants’ experiences were captured by the overarching concept of “low dementia awareness, high family-like ambience in the community.” Despite the low/absent community awareness of dementia, older Atayal PWDS functioned as freely in the community as at home due to a family-like supportive environment. Aboriginal PWDS and their families also faced environmental challenges, e.g., environmental constraints and barriers to transportation access. Discussion and Implications Our results suggest that this Aboriginal community and culture offer important DFC components, and these strengths could be further studied to enhance DFC models elsewhere. Despite these strengths in supporting PWDS, environmental challenges to transportation access still cause difficulties for PWDS and their families and need improvement. The Atayal community’s low dementia awareness suggests that services introduced must be culturally appropriate and nondisruptive to existing supportive helping systems. Our study can be a model for future studies to understand and identify PWDS’ needs in Indigenous communities.

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F3‐02‐01: Considerations in Culturally Safe Care for Indigenous People with Dementia In Canada

Cited by 2 publications

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Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis

Cultural Understandings of Dementia in Indigenous Peoples: A Qualitative Evidence Synthesis

Experiences of Living in the Community for Older Aboriginal Persons With Dementia Symptoms in Taiwan

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