Extension of community healthcare outcomes in Parkinson disease (Parkinson ECHO): A feasibility study

Neilson, Lee E.; Wilhelm, Jennifer; McDonnell, Margaret McLain; Mann, Lisa; Kraakevik, Jeff

doi:10.1016/j.prdoa.2022.100167

Cited by 1 publication

(1 citation statement)

References 26 publications

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“…Formal support for exercise is key to helping PwP start and adhere to suitable exercise programmes [69]. There was also agreement across both focus groups that more could be done to promote exercise for PwP and to explore a range of complementary non-pharmacological treatments, something that is being considered by various lines of research [70,71]. Overall, class participants expressed a willingness to devote time and effort to health research activities but would like to see more evidence that the findings will be used to benefit others, including the local PD community and HCPs.…”

Section: Discussionmentioning

confidence: 99%

Group-based exercise for Parkinson’s: a qualitative study of participants and partners’ perceptions of an exercise class delivered through a community-university collaboration

Ferrusola-Pastrana,

Fullerton,

Meadows

2024

BMC Geriatr

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Background Community-based exercise programmes (CBEPs) offer a practical and viable approach to providing people with Parkinson’s disease (PwP) the opportunity to exercise as an ancillary therapeutic benefit to pharmacological management. This study explores the perceptions of exercising participants (PwP) and non-participating partners involved in an exercise class delivered through a community-university partnership. Methods Two separate focus group discussions were conducted: one with class participants (PwP: n = 7, H&Y scale I to III), and the other with non-participating partners of PwP (n = 4). Results Thematic analysis of the data identified that a range of physical, psychological and social factors were perceived to influence engagement: (1) actively taking control, (2) exercise is medicine for the mind and body, and (3) a community working together to promote exercise for parkinson’s. Participants and partners felt that the support from the group, including the instructors and student volunteers, empowered and supported PwP to proactively self-manage their health, enjoy exercise in an inclusive group setting, and develop strong social connections with others in the local Parkinson’s community. Support to exercise from healthcare professionals was identified as both an enabler and barrier to participation. Conclusions This study underscores the significance of a community-university partnership as a complementary therapeutic approach for PwP. It also provides critical reflections on its sustainability, including implications for how exercise is considered as medicine for PwP. Additionally, it offers practical recommendations to galvanise community participation and provide inclusive and viable exercise opportunities for PwP.

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Section: Discussionmentioning

confidence: 99%