Extending our reach: telehealth delivered grief support groups for rural hospice

Supiano, Katherine; Koric, Alzina; Iacob, Eli

doi:10.1080/01609513.2020.1825153

Cited by 4 publications

(11 citation statements)

References 21 publications

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“…There is some evidence that telehealth delivered grief support groups for rural bereaved hospice families are also feasible and effective. 30 An equitable, national approach to MND telehealth services which addresses the needs of patients and caregivers, especially those living in rural areas, and their health providers is indicated.…”

Section: Discussionmentioning

confidence: 99%

Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective

et al. 2021

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Background: Studies on the experiences of consumers with Motor Neurone Disease Associations at end of life and bereavement are lacking, and their role and capability within the broader sectors of health and disability are unknown. Objectives: To ascertain the experiences and views of bereaved motor neurone disease caregivers with Motor Neurone Disease Associations about service gaps and needed improvements before and during bereavement and to propose a model of care that fits with consumer preferences and where Motor Neurone Disease Associations are effective enablers of care. Methods: A national bereavement survey was facilitated in 2019 by all Motor Neurone Disease Associations in Australia. A total of 363 respondents completed the section on support provided by Motor Neurone Disease Associations. A mixed-method design was used. Results: Respondents were generally positive about support received before bereavement (73-76%), except for emotional support (55%). Positive experiences related to the following: information, equipment advice/provision, advocacy/linking to services, showing empathy/understanding, personal contact and peer social support. Negative experiences included lack of continuity in case management and contact, perceived lack of competence or training, lack of emotional support and a lack of access to motor neurone disease services in rural areas. Suggested improvements were as follows: more contact and compassion at end of life and postdeath; better preparation for end of life; option of discussing euthanasia; providing referrals and links for counseling; access to caregiver support groups and peer interaction; provision of a genuine continuum of care rather than postdeath abandonment; guidance regarding postdeath practicalities; and more access to bereavement support in rural areas. Conclusion: This study provides consumer perspectives on driving new or improved initiatives by Motor Neurone Disease Associations and the need for a national standardised approach to training and service delivery, based on research evidence. A public health approach to motor neurone disease end-of-life care, of international applicability, is proposed to address the needs and preferences of motor neurone disease consumers, while supporting the capability of Motor Neurone Disease Associations within a multidisciplinary workforce to deliver that care.

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Section: Discussionmentioning

confidence: 99%

Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective

et al. 2021

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“…The final set reviewed included 18 peer-reviewed articles and 4 gray-literature publications from national organizations (ie, Hospice and Palliative Care Nurses Association, National Hospice and Palliative Care Organization). [9][10][11][12] Of the articles reviewed, various study methods were used, such as randomized trials, [13][14][15][16][17][18] survey types, 19,20 and chart or data review. [21][22][23][24] The gray literature offered guidelines and policies for implementing and promoting effective virtual visits, as well as advocating for continuing coverage and payment of the various telehealth platforms 9-12 (Table 2).…”

Section: Characteristics Of Studiesmentioning

confidence: 99%

“…Of the 18 articles reviewed, 6 defined their use of the term rural/remote using either the US Census Bureau Rural and Urban taxonomy 31 or the Economic Research Service of the US Department of Agriculture. 14,16,18,21,26,32 Several studies included urban and rural communities as participants in their research. 13,19 Many of the studies reviewed did not describe or define the terms of rural and remote.…”

Section: Rural and Remote Definedmentioning

confidence: 99%

“…Because of wider geographic service areas, programs incur increased costs, reduced touch points, and strained resources. 16,21,30 Pediatric palliative care and hospice programs experience insufficient policy initiatives, lack of trained providers, missing pediatric advance directives, and issues with cultural/social beliefs regarding pediatric death and dying. 17,18,28,29 Uses of Telehealth The use of telehealth for palliative care and hospice services was frequently grouped by disease, such as advanced cancer, 25 heart failure, 13 head and neck cancer, 21 and end-stage renal failure.…”

Section: Characteristics Of Rural Telehealth Programsmentioning

confidence: 99%

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A Rapid Review of Uses and Outcomes of Telehealth Care in Rural and Remote Regions in the United States

Fasolino

Koci

Huggins

et al. 2023

J Hosp Palliat Nurs

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As telehealth expands and becomes an increasingly important provision of palliative care and hospice services, the understanding of the uses and outcomes of this care delivery platform in rural communities is warranted. This rapid review aims to highlight the practice, policy, and research implications of telehealth in rural regions. Using a systematic approach for accessing and synthesizing available publications, this review included 22 articles published between January 2020 and January 2023. Telehealth was used with adult and pediatric populations diagnosed with serious illnesses. Acceptance of this type of care delivery was noted in adults and children, but not all found telehealth a valuable mechanism for care. Telehealth services included but were not limited to direct communication between the provider and the patient/caregiver, medication management, and a peer-to-peer consultant role for rural palliative care and hospice teams. Of those studies addressing provider-centered outcomes, noise level, interruptions, missed appointments, and challenges with providing emotional support were reported. Organizational barriers, such as the lack of financial support, were noted for pediatric hospices. Individuals living in rural communities require more frequent, immediate, and specialized attention over their illness trajectory. Practice, policy, and research implications are identified to consider the next steps for telehealth delivery of palliative care.

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“…Given the already small population sizes inherent in rural areas, compounded with the barriers to accessing care even when made available through telehealth, studying the effectiveness of teletherapy in rural areas can be challenging. Nevertheless, this has not prevented continued contributions including telephone (Dwight-Johnson et al, 2011; Heckman et al, 2018; Ransom et al, 2008) and videoconference (Gonzalez & Brossart, 2015; Griffiths et al, 2006; McCord et al, 2011) teletherapy interventions for a variety of populations such as veterans (Knowlton & Nelson, 2021; Morland et al, 2014) and children/families (Kohlhoff et al, 2020; Rooks-Ellis et al, 2020; Ryan et al, 2005) and presenting concerns such as depression (Openshaw et al, 2012; Ransom et al, 2008; Trombello et al, 2020; Tutty, 2008), psychosis (Lecomte et al, 2021), grief (Chang et al, 2016; Supiano et al, 2021), and substance use (Baca et al, 2007).…”

Section: Research Questionsmentioning

confidence: 99%

Assessing depression outcomes in teletherapy for underserved residents in Central Texas: Telehealth’s move to treatment-as-usual.

Armstrong¹,

McCord²,

Stickley³

et al. 2022

Journal of Rural Mental Health

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Telehealth is a flexible and cost-effective solution for providing psychotherapy services. The present study examines teletherapy outcomes data using two methodological frameworks: a categorical outcome approach, clinically significant change (CSC), and a continuous outcome approach, latent growth mixture modeling (LGMM). Archival data from 424 rural-residing clients were analyzed. Kaplan-Meier survival curves were fitted in two ways of comparison. The level of change was also explored and was modeled at five points as well as six points. A latent growth mixture model was fitted to assess depression severity over time. Clients achieved either CSC or overall improvement on the Patient Health Questionnaire-9 after three-seven sessions. Session-to-session results indicated that change took longer (10-11 sessions). Reliable deterioration was infrequently experienced and, thus, difficult to model. The LGMM fit best with three classes, of which two started clinically and varied in their improvement rates. The third class started nonclinically and showed little improvement over time. This study advances the literature regarding outcomes for rural clients by utilizing the frame of treatment-as-usual psychotherapy effectiveness and providing more generalizability to this specific population.

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Extending our reach: telehealth delivered grief support groups for rural hospice

Cited by 4 publications

References 21 publications

Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective

Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective

A Rapid Review of Uses and Outcomes of Telehealth Care in Rural and Remote Regions in the United States

Assessing depression outcomes in teletherapy for underserved residents in Central Texas: Telehealth’s move to treatment-as-usual.

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